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Skylark

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Everything posted by Skylark

  1. Skylark
    Also, it just might take longer than two weeks. That's not long gluten-free at all.
  2. Skylark
    Celiac can really mess with your life, no doubt about it. I'm really sorry to hear you had to give up your bakery management job that you really loved. My anger is about lost years. I would have had a very different life had my celiac been diagnosed young, when it was first suspected. Instead I spent much of my young adulthood chronically fatigued and...
  3. Skylark
    A CT scan does not diagnose celiac disease. If your doctor thinks it does, run screaming and get another doctor! There are blood tests, and an intestinal biopsy done by endoscopy. Hopefully you were tested for total IgA, as in that case the IgA versions of the tests are the correct ones. If you want to continue to follow up for a medical diagnosis, you...
  4. Skylark
    There is nothing you can take, and the only way to figure out whether gluten is your problem is to try the diet very strictly. I hope your chef/house husband (gee, where do I get one of those???) is supportive enough to learn how to cook gluten-free for a little while to see if you feel better. IBS with no clear underlying cause is often gluten intolerance...
  5. Skylark
    That would be anxiety. And yeah, we don't seem to have nearly enough GIs reading this board. They sure would be better doctors if they did!
  6. Skylark
    Thanks for the link. I seem to be a little sensitive to amines myself, which is why I thought of it when you posted. I have to go easy on fermented foods, especially red wine and gluten-free beers. I thought I was yeast sensitive for a while, but I can eat yeast-leavened bread so now I'm thinking I have my father's histamine sensitivity. He can't eat...
  7. Skylark
    That deamidated gliadin peptide (anti-DGP) test is very good, and very sensitive for celiac. You are absolutely doing the right thing going gluten-free, especially with the dramatic improvement in how you feel. Biopsies can be negative in early celiac but people with anti-EMA or anti-DGP tend to end up with damage if they keep eating gluten. Celiac can...
  8. Skylark
    Most studies have some people who admit to cheating. They are generally not healed either. I found an interesting study on compliance and one of the helpful things is a discussion board like this. We are a self-selected group of people who are concerned about the diagnosis and seeking support in order to follow the diet well. You won't see a lot of cheating...
  9. Skylark
    Also, be sure you're not eating oats and go completely off dairy. Some celiacs cross-react to oats or to casein as if they were gluten. Soy intolerances are also not uncommon, though it will just make you sick and not have the autoimmune reacton. You can add foods you eliminate later if you get to feeling better.
  10. Skylark
    First, I'm sorry you're having such a tough time. It sounds like you have to deal with an extreme sensitivity. I'm fortunate enough to be able to be in the same room with gluten with no troubles. Wheatchef was very careful to point out that the mind and body are inextricably linked. I'd use the word neurophysical rather than psychosomatic as there...
  11. Skylark
    Thanks so much for all the info! I really appreciate your posting this. The papers cited don't really address this idea of "leaky skin", but rather support that the gluten-free diet can affect DH and psoriasis. As mentioned at the bottom, it's hard to sift whether the problem is from gluten that's been eaten, abnormal permeability to skin irritants,...
  12. Skylark
    Remember that it's basically healthy to eat a more "diabetic" style diet, light on carbs and with plenty of protein and fiber from veggies to slow absorption. That's easy for celiacs, since we rely on fruits, veggies, meats, beans, and other foods with modest amounts of starch. Lots of starchy food and sugar really isn't good for anyone and you'll avoid...
  13. Skylark
    Good luck. I hope the endoscopy is normal other than the possible celiac!
  14. Skylark
    I know 2-3 months sounds rough. That is why I've never gone back and challenged. You got me curious. I'm linking abstracts for you, as they're publicly available but I checked full text for two of the papers as the challenge time length wasn't in the abstract. Here is an article showing median time to relapse in children with gluten challenge with...
  15. Skylark
    oops... double post
  16. Skylark
    Low vitamin D can be connected with celiac, but it can also happen without. One of the major causes of idiopathic anemia is celiac disease. Thyroid trouble is not as strongly associated, but many celiacs do have thyroid trouble. If gluten is "addictive" it's a pretty strong sign that you are at least intolerant to it. Things that cause inflammation...
  17. Skylark
    Your test results are completely negative. The 12 is right in the middle of the reference range, meaning the lab cannot distinguish your results from the usual background in the assay. Immunoassays generally don't give zero readings. The negative result means either you are successful with your diet, or there were no antibodies to detect in the first...
  18. Skylark
    Many GI drugs can help with the symptoms from eating gluten. If your stomach and duodenum are irritated from gluten, a proton pump inhibitor lowers the amount of acid and helps relieve the irritation. A lot of celiacs get diagnosed with IBS and prescribed antispasmodics too. I used bentyl for a long time and it did help. Immodium did too. Unfortunately...
  19. Skylark
    There is a condition called non-celiac gluten intolerance where you are negative on the tests but still don't tolerate gluten. Sometimes people will show positive for anti-gliadin IgA in their stools or saliva as a clue. I saw one GI paper mentioning that some people who are not celiac feel better on the gluten-free diet. Some doctors are aware of this...
  20. Skylark

    ARCHIVED Fad Diets

    Skylark replied to Rowena's topic in Related Issues & Disorders

    We had a thread on this just last month. You are not alone. Here's an older one too, if you want to see more people's thoughts.
  21. Skylark
    I make my own cornbread because I've worked out a recipe I really like. I use a little Bob's gluten-free baking mix with the cornmeal to make it lighter. I also keep some starches and flours around for thickening gravies and sauces. I use the Bob's bread machine mixes too. Also, you can't buy gluten-free pie crust (or at least I haven't found one), so...
  22. Skylark
    Some in the studies admit to intentionally eating gluten. They tend to be the ones with the poorest and slowest healing, which is not a surprise.
  23. Skylark
    Thanks, Peter. The board expands the letters G F to gluten-free but I forget it doesn't expand CC. That might be something nice to add. There was a recent study showing that some flours that would normally be gluten free, like rice or soy, had enough gluten to cause problems for celiacs. The study didn't sample enough products to make any guesses about...
  24. Skylark
    Well, just start keeping a journal. Time you ate, what you ate and how much, blood sugar reading and the time you took it. You can show it to your doctor and try to figure out what's going on. You're not getting any dangerously high (>200) or low (<70) readings, which is really good.
  25. Skylark
    I really doubt it based on stuff my doctor told me, but no harm in checking...
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