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Skylark

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Everything posted by Skylark

  1. Skylark
    The standard celiac panel is total IgA, anti-gliadin IgA, anti-TTG IgA, and sometimes anti-endomysial (EMA) IgA. The anti-EMA is expensive and is not always run. If you come up IgA deficient, you can justify the IgG versions to insurance. The new deamidated gliadin peptide IgG is very sensitive and specific if the lab your doctor uses has it (that one...
  2. Skylark
    You can get a little dehydrated from chronic D. Obviously you've made it this far, so your dehydration problems are not extreme. I do get a little tired and lightheaded if I'm dehydrated. I've read that Gatorade is too strong for simple hydration, since it's formulated for hard exercise where you're sweating out a lot of salt. I water it down to half...
  3. Skylark
    I went through a phase this spring where I was reacting to trace amounts of gluten. Fortunately, now that I'm on the right amount of thyroid medicine, my immune system seems to have decided that a molecule or two of gluten is actually not going to kill me. The high sensitivity can come and go. Drink lots of fluid to help your body flush the gluten out...
  4. Skylark
    A positive test would be above whatever cutoff the diagnostic lab provides. It can be very different from lab to lab with the celiac tests because the units of measurement are not standardized. You would have to ask your doctor for the "reference range" of the diagnostic test to know what a positive result would be. Nora's comments are accurate, as always...
  5. Skylark
    Are you sure it's not a medication side effect?
  6. Skylark
    In the US, if the food starch is derived from wheat it must be declared a "wheat ingredient" on the label.
  7. Skylark
    Gulp. I'll be checking the hot chocolate ingredients on our new coffee machine when I head over to get a cup! Thanks so much for the heads-up.
  8. Skylark
    It is not only B12 problems, although I agree that that B12 and other B vitamins can a big issue for celiacs with neurological problems. The celiac autoimmunity can attack the nervous system as well as the gut. (It can attack skin too, causing DH.) That's why the intestinal biopsy may not be positive. Some folks with only neuro symptoms don't have anti...
  9. Skylark

    ARCHIVED Ataxia

    Skylark replied to Loey's topic in Related Issues & Disorders

    I fell flat on my face why my thyroid got really low this summer so I feel for you. Turns out lack of coordination is one of the signs of hypothyroidism. Just something else to look at.
  10. Skylark
    Glad to help. I loved McCann's oatmeal and was so sad when I read that study. Bob's is actively testing all their oats with the R5 ELISA, which is the most accurate test avaliable. They don't say on their website what they are using as a cutoff for gluten-free, but I'm sure it's below 20 ppm. If you tolerate whatever traces of gluten might be in the...
  11. Skylark
    Feeling healthy on the gluten-free diet and sick eating gluten is pretty much the definition of non-celiac gluten intolerance. As your doctor says, if it makes you sick, don't eat it! I wish most doctors had that much common sense to offer their patients. Jecka - Try to stick to unprocessed whole foods. You might be into a gluten withdrawal, or you...
  12. Skylark
    You have to get it though your daughter's head that she is celiac and poisoning herself. There is no way she can gluten challenge for an endoscopy. It sounds like she would land in the ER again. She absolutely needs to refuse to eat any food that might have gluten. When the food on her meal plan is uncertain, she needs to be able to go back to her room...
  13. Skylark
    Don't be upset. Gluten neuropathy will not necessarily give a positive intestinal biopsy. Your immune system is attacking your nervous system, not your intestine. Based on the TTG-IgA, your doctor is giving really sensible advice. The firm diagnosis comes from trying the diet very strictly for a few months and seeing if the neuropathy improves. You want...
  14. Skylark
    McCann's oats are NOT celiac safe. Tricia Thompson tested four separate tins of McCann's in a study published in the New England Journal of Medicine in 2004. One can had no detectable gluten and another was 12 ppm, but the third can had about 23 ppm and the fourth had over 700 ppm of gluten! Another study done at the Chicago Tribune in 2008 pulled a can...
  15. Skylark
    It went really well down in Mexico. I was at a resort where the staff spoke reasonable English, but asking about harina de trigo in foods was much better. The wedding coordinator was able to verify that the corn tortillas they were using had only corn and no flour. I had some wonderful paella, black bean soup, cevice, chile verde, guacamole, and of course...
  16. Skylark
    Oh, wow. I really need to give this one a try. Thanks for posting!
  17. Skylark
    Have a glance at my profile. Gluten can definitely cause mental issues!
  18. Skylark
    I have been cautiously eating some Bob's Red Mill oats and seem to be tolerating them. In studies, the majority of celiacs do tolerate oats (no reappearance of antibodies, symptoms, or damage on biopsy), so I wouldn't shy away from trying them. Just keep in mind that if you react, it's not in your head as there are some documented celiac reactions to avenin...
  19. Skylark
    1. A celiac cannot safely eat anything derived from wheat, rye, or barley. Celiac is a gluten sensitivity, and it is almost impossible to remove all the gluten from anything derived from gluten-containing grains. The only exceptions are grain vinegars and alcohols where the final product goes through multiple distillations, and even those bother super...
  20. Skylark
    Drink lots of water to flush your system. Some people take L-glutamine since it's supposed to help heal intestines. I find Immodium and Pepto-Bismol helpful for symptoms.
  21. Skylark
    ((( hugs ))) If that guy is worth anything, he will quickly figure out things to do on dates that do not involve eating out. Concerts and movies are always good, or any favorite shared hobbies. Remember that you can always invite him over for dinner. I've only tried bringing my own bread. I've never gotten any negative response from pulling out my...
  22. Skylark
    It means the problem is likely gluten rather than wheat allergy. The word "celiac" is tricky, as it is strictly defined as a particular autoimmune reaction to gluten that causes intestinal damage or a skin rash called dermatitis herpetiformis. We often say "gluten intolerant" to describe what happens to folks who clearly get sick from gluten but do not...
  23. Skylark
    Most of us find that the symptoms from eating wheat after going gluten-free for a while are somewhat stronger. It's also common to get symptoms from small amounts that wouldn't have given you trouble before. This does not seem to happen to gluten-tolerant folks, who can cut gluten out and return to eating it with no issues at all. None of us knows...
  24. Skylark
    Sublingual B12 and fish oil help my anxiety from gluten. I also use inositol powder sometimes. You'll feel fine in a few days and I'm sorry you're sick. Next time the pot impulse hits, throw out all gluten and surround yourself with safe snacks.
  25. Skylark
    Hi there. You'll have to be much more specific about what tests you had, the results, and the normal ranges provided by the lab for us to say anything. About 20% of celiacs have negative blood tests and their celiac is only diagnosed by an endoscopy with small intestinal biopsies. It is also possible to have non-celiac gluten intolerance, where you are...
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