Jump to content

Skylark

Advanced Members
 View Profile  See their activity

  • Posts

    5,198

  • Joined

  • Last visited

  • Days Won

    79

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Skylark

  1. Skylark
    Sorry to hear you're not feeling better yet. It can take a while. Usually it takes 6-8 weeks for a new dose of thyroid to stabilize, and if you go up too fast you can get heart palpitations, tremors, and other side effects. You may have to go through a couple rounds of dose increases. Don't panic about a PCP treating you for thyroid. Thyroid disease...
  2. Skylark
    Gluten-free is not a weight loss diet. If anything, it is a little harder on people with blood sugar issues because the starches we substitute for wheat have a higher glycemic index. This is a medical diet for people with celiac disease or non-celiac gluten intolerance. Are you experiencing GI symptoms when you eat bread, pasta, or other foods that are...
  3. Skylark
    Chipotle warms the corn tortillas on the same grill as the flour. That CC'd me once. I order the rice bowl now and avoid toppings they dish out with gloves and it works fine.
  4. Skylark
    You have to rethink the way you eat in general to eat gluten-free on the cheap. Cooking is a must and you pretty much have to give up things like bread, breakfast cereals, crackers, pancakes, cookies, and so forth. Even the gluten-free flours are expensive and I just paid a ridiculous amount for a small package of xanthan gum. Breakfast becomes eggs and...
  5. Skylark
    This must not be true for everyone. My Hashimoto's antibodies came up after I was gluten-free for a few years, and while I was on a correct amount of thyroid medicine. What does go dormant on thyroxine is the inflammation and swelling. Gluten-free diet status does not affect the Hashimoto's tests at all. By the way, are you starting to feel better...
  6. Skylark
    I'd try a couple brands of oatmeal if your primers are specific enough. People say they have problems with Amy's pizza so that would be interesting.
  7. Skylark
    It's only Enterolab. Those tests have not been validated as clinical diagnostic tests, and Fine's own data on his website suggests that they are not very predictive of long-term response to a gluten-free diet. Try gluten free and casein free and see if you feel better. If you don't feel better, don't worry about traces of fecal IgA. You are right at the...
  8. Skylark
    The blood tests are estimated to have a 20% false negative rate. They are just not very good. If you have a lot of symptoms that appear when you eat wheat and go away when you don't, it sounds like you need to be on the gluten-free diet. If you don't feel like you can stick to the diet for life, you will need to gluten yourself up really well, by eating...
  9. Skylark
    The only intolerance (other than wheat, barley, rye, and oats) I've seen documented to cause celiac-type villous damage is the casein protein in milk and it's fairly rare. Casein seems to cross-react with the gliadin antibodies in a few celiacs. There is no documented villous damage from corn or rice in the literature. I can tell from the way you worded...
  10. Skylark
    Ask them about flour paste on the oak casks. It's a source of gluten in wine and spirits that is of concern for the super-sensitive.
  11. Skylark
    I make pot roast in a pressure cooker. Onion and garlic like Patti uses, and I saute the onions and brown the roast on both sides. Put it all in the pressure cooker, add salt and pepper, and if I'm in the mood for something a little fancier I add some red wine, a bay leaf, and some mushrooms. It comes out tasting like a simple version of Beef Bourgignon...
  12. Skylark
    Is there any way you could invite them to your house occasionally for Bible study and offer some gluten-free snacks that everyone could eat?
  13. Skylark
    "Gluten" means different things to cereal chemists, bakers, and celiacs. Let's just get away from it because the word is confusing and not well defined when we are talking about all the different grains. Prolamin is the cereal chemistry name for proline-rich storage proteins in grains. Prolamins are a mixture of different proteins, some of which make us...
  14. Skylark
    If she is mostly gluten-free the biopsy may not show anything without a few months of gluten challenge. Even if she is only gluten intolerant and not celiac, current thinking is that keeping her off gluten can keep her from eventually developing celiac. She is at risk since you're celiac and she's symptomatic. You need to put your foot down and stop her...
  15. Skylark
    Blood in your stool is one of those things you should call a doctor for. It's not a "classic" gluten symptom, but I've read of it happening to a few people here. My understanding is that bright red blood is less worrisome because it's usually hemorrhoids or a little rectal damage from a hard stool but do call your doctor to be sure.
  16. Skylark
    You convince the family by going gluten-free and feeling well again. Remember that you are in control of what you eat, not anyone else. What your family will SEE is you no longer curled up with nausea, happier, and more comfortable. Going off gluten changes us for the better and most families love the "new you". Don't let your family take your gluten...
  17. Skylark
    I find it interesting that rum is such a problem. Normally rum is made from sugar cane and no grains are involved in making it. It sounds like the restraint you are practicing with alcohol is wise. As others have mentioned, once you've been gluten-free for a while you may find the lexapro is unnecessary. I used to have bipolar illness, and it has resolved...
  18. Skylark
    Hannah couldn't have gotten the celiac gene from you because she is not your child. It means your sister is probably also carrying the genes and needs to be tested. Your parents should be tested as well. Hannah almost certainly has celiac if both those tests were high. If your sister doesn't want Hannah to have the endoscopy, she needs to talk to the...
  19. Skylark
    I replaced my toaster, my bread cutting board, and my wok because I could smell the soy sauce in the seasoning. I didn't replace anything else, and I even cleaned up my old bread machine and kept using it because I was too broke to replace it. I have no gluten problems in my kitchen.
  20. Skylark
    To help with the suspense, that is a completely negative panel. There is a such thing as non-celiac gluten intolerance, and also wheat allergy. I's tricky to get positive bloodwork on kids. The next step would be an endoscopy with a biopsy. Then you try him on the gluten-free diet anyway.
  21. Skylark
    Hey, Cat. You will feel a lot better off gluten. I used to be bipolar and going gluten-free and taking high potency vitamins fixed it. My carpal tunnel stays a lot better off gluten too. You also may find your allergies less troubling in six months to a year. The celiac gut is "leaky" from the damage and lets bits of food through to the bloodstream...
  22. Skylark
    My family really helped with my first holidays. At Thanksgiving, my SIL looked up a sausage and cornbread stuffing to make for me, and Mom cooked some pumpkin pie filling in custard cups so that I wasn't left out of desert. We did the turkey gravy with cornstarch. The rest of the thanksgiving foods my family eats (cranberry salad, turkey, mashed potatoes...
  23. Skylark
    I agree. You should at least try again and doublecheck that the tea was plain old black tea. If you get glutened again and you're sure it's Panera, then you might say something to the church group. The group might decide they would enjoy trying some new meeting places.
  24. Skylark
    Do you realize you are risking a very serious health condition called refractory celiac disease by continuing to eat gluten? Refractory celiac can lead to some fairly nasty intestinal cancers. What you are doing with the pot is the equivalent of repeatedly beating your head into the wall and then smoking dope to get rid of the headache. Stop hurting yourself...
  25. Skylark
    There is also great information on the main site. Send her to https://www.celiac.com/. Right in the middle of the front page, there is a series of links on the gluten-free diet. As for the endoscopy, your sister needs to find out whether the doctor will positively diagnose celiac disease without it. Your niece will likely need doctors notes for school...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.