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Latest Celiac Disease News & Research:
Everything posted by Skylark
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ARCHIVED New Celiac And Need Some Input On Diet/vitamins
Skylark replied to jeremytodd's topic in Introduce Yourself / Share Stuff
This is a pretty old thread from a fellow who never came back. I doubt he's reading any more. -
ARCHIVED Remedies For The Newly Diagnosed?
Skylark replied to jess-gf's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
There is no issue with enzymes and they help some people. Try a mix with papain and bromelain. Bromelain is nice stuff because it's a little anti-inflammatory as well as helping digestion. L-glutamine is good. Vitamins will be less of a problem if you take them just after a meal, on a full stomach. They are also absorbed better that way. The supplement... -
ARCHIVED Neurological Reaction To Coconut Oil
Skylark replied to YoloGx's topic in Food Intolerance & Leaky Gut
Try the Feingold association for lists. Open Original Shared Link -
ARCHIVED Neurological Reaction To Coconut Oil
Skylark replied to YoloGx's topic in Food Intolerance & Leaky Gut
Hi, Bea Benedryl is an antihistamine and not stimulant at all. On the contrary, is anticholinergic amd will make you sleepy so it's really good at bedtime if you are having a reaction that keeps you awake. Another way Benedryl is marketed is as Sominex, if that gives you an idea. It may also make your mouth a little dry. It is an old, good medicine... -
ARCHIVED Symptoms
Skylark replied to glufreecali's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It happens to me sometimes too. Sometimes it's fatigue and depression, other times it's little adrenaline "zaps" and anxiety. Gluten can really mess with your head in unpleasant ways. You just have to ride it out. B vitamins help me a little, or something like Emergen-C. (There was a recent thread on which flavors are gluten-free.) -
ARCHIVED How To Overcome The 2Nd Wave Of Denial...
Skylark replied to Marz's topic in Coping with Celiac Disease
I remember the days of borderline anemia, canker sores, chronic fatigue, and running for the toilet with D all the time. All of that is gone now. That's enough to keep me on the straight and narrow. -
It would be unusual for a high TTG titer to fall in 1-2 months. A low titer could fall to normal levels more quickly. Since your doctor does not know what your TTG was before you stopped eating gluten, I don't see how he can expect to have an accurate diagnostic test.
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ARCHIVED Equal Exchange Tea
Skylark replied to jess-gf's topic in Gluten-Free Foods, Products, Shopping & Medications
It seems I can't post the link. The article is at Lame Advertisement dot com. If you put that instead of lame advertisement you should be able to read it. Edit: oh, for crying out loud. a r t i c l e s b a s e (Skylark smacks the spam filter upside the head. ) -
ARCHIVED Equal Exchange Tea
Skylark replied to jess-gf's topic in Gluten-Free Foods, Products, Shopping & Medications
Gluten in tea bag glue is an urban legend. I wish people would stop repeating it on this board. I have yet to see a documented report of gluten in a tea bag. You do have to check for barley and other gluten ingredients in the tea itself. Open Original Shared Link Advertisement.com/diseases-and-conditions-articles/a-celiac-disease-urban-legend-1... -
The What's For Dinner Tonight Chat
Skylark replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
You know of BRK? Been reading his blog for years, as much for the wonderful Airman Howell stories as anything else. He's a great writer and that's his personal blog. -
The What's For Dinner Tonight Chat
Skylark replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
I'm going to try this easy-looking chicken cacciatore recipe. I'll probably have it with brown rice and some chard or spinach. http://www.dphowell.com/2010/11/27/chicken-cacciatore/ -
ARCHIVED Ham?
Skylark replied to SilverSlipper's topic in Parents, Friends and Loved Ones of Celiacs
I'd watch her reactions to other meats with nitrites. Also, does she react to pork if it's not been cured? -
ARCHIVED Memory And Concentration
Skylark replied to India's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Has your vitamin D been checked? That's another that can cause problems if it's low. -
ARCHIVED "gluten Free" Not Actually Gluten Free?
Skylark replied to naiiad's topic in Gluten-Free Foods, Products, Shopping & Medications
There is no USA standard at all. That legislation was only proposed, not passed. In the US, "certified gluten-free" doesn't have a well-defined meaning. There is no way to determine whether a grain food that could be CC'd in harvest or transportation is actually zero gluten. As much as 5 ppm can read as zero depending on the sensitivity of the test... -
ARCHIVED Is It Weird To React To Wheat Only Most Of The Time?
Skylark replied to SeattleGF's topic in Coping with Celiac Disease
It's inconsistent for me too. Last time I ate some wheat by mistake (got the wrong crackers) the only thing that happened was a little canker sore. I was really surprised since I've had D in the past from only fryer CC. It's really inconsistent, but I'm always glad when I make a mistake and don't pay too badly. -
ARCHIVED Went To The Hospital Last Night
Skylark replied to jess-gf's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Food poisoning can be spotty too, so one person gets it and others don't. I hope you feel better soon! -
Here is the actual evidence that there may be celiac-like reactivity to casein in some celiacs. The full article is available for free. It shows an inflammatory reaction to mucosal challenge with casein in 50% of the celiacs studied. They did not challenge long-term with casein or look at anti-TTG or look for villous atrophy. Open Original Shared Link...
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If you go off gluten and all your problems go away, that will have to be a "diagnosis". Actually what you describe could be more allergic than celiac and the definitive test for allergies is elimination and challenge. Try the diet and see what happens. good luck!
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I've seen a letter from Gallo where they say all their wines are definitely gluten-free.
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ARCHIVED Tried The Tinkyada Pasta
Skylark replied to TPT's topic in Gluten-Free Foods, Products, Shopping & Medications
I always loved spinach pasta, so I get the Tinkyada spinach spaghetti. I'll agree with everyone else about the rinse. -
ARCHIVED Total Serum Iga?
Skylark replied to veggiemomma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Oh - I was confused reading that too. The DQB1*0301 has the older name of DQ7. It's not a "celiac" gene, but it looks like she maybe has two copies of DQA1*05 since they don't list anything else. If so, she makes more DQ2.5 than someone with a different DQA1 would (DQ2.5 is one DQB*0201 and one DQA*05), but not as much as someone who is double DQ2.5. ... -
ARCHIVED Total Serum Iga?
Skylark replied to veggiemomma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
She actually has 2 genes that are common in celiac, DQ2.5 and DQ8. Deamidated gliadin peptide and the scope sound like a good idea. That way you'll know for sure whether or not her dad can give her a cookie once in a while. If I had those genes (don't know what mine are) I would go "gluten-light" at a minimum to keep problems from cropping up in the future... -
ARCHIVED Turkey Emergency!
Skylark replied to Annie4439's topic in Gluten-Free Foods, Products, Shopping & Medications
Here is Kroger's gluten info. Open Original Shared Link Edit: It looks OK since their other chicken and turkey is on the gluten-free list. -
ARCHIVED Celiac Mom's Dementia Issues
Skylark replied to TombRaiderShan's topic in Parents, Friends and Loved Ones of Celiacs
Sadly, you are describing very classic dementia. I think getting her to a neurologist is a great idea.