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Skylark

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Everything posted by Skylark

  1. Skylark
    If a doctor tells you something obviously physical is in your head, it's time to find a new doctor.
  2. Skylark
    The instant stomachache was enough to have me not making mistakes pretty fast! Have you been tested for celiac? The tests don't work if you're gluten-free and not everyone is comfortable with self-diagnosis. I see from your previous posts that you tried the diet before and I guess you stopped for some reason?
  3. Skylark
    In a young child, anti-TTG is quite specific for celiac. It is an autoimmune antibody. In adults it can also appear in rheumatoid arthritis and a couple other conditions but that's rare in a child. She definitely needs to be seen by a GI and chances very good are she will have a positive biopsy. Even if she doesn't have a strongly positive biopsy you should...
  4. Skylark
    There is nothing in Rice Chex that isn't in Honey Nut. I agree with Steph that you probably just got a bad box.
  5. Skylark
    Your daughter has two celiac risk factors, the low IgA and the copy of DQ2.5. Fortunately she didn't get two genes that are associated with celiac. I wouldn't feel completely confident about testing after five weeks gluten-free. The three year old tests are exactly that - three years old. They are not a guarantee that she hasn't developed antibodies since...
  6. Skylark
    I couldn't eat cow dairy at first and ate only a little goat and sheep cheese. After a while (probably six or nine months) I was able to eat dairy again. With me it was a cow casein sensitivity. I don't seem to have problems with lactose.
  7. Skylark
    Sorry for your loss. Your husband must be pretty upset. I eat a tossed salad with oil and vinegar in a restaurant where I am uncertain about the rest of the food. Sometimes you can get a baked potato or a completely plain piece of chicken breast or fish. If it's an Oriental restaurant, I get plain rice and plain steamed veggies. At chains, I ask for...
  8. Skylark
    Yeah, that sure sounds like allergy. Itching is a really classic sign of histamine release, and the groginess and headache is the systemic part of the reaction. I'll never forget the intense itching under the skin like you describe on my hands and face when I had a severe medication reaction once. It came on about 20 minutes after the pill and I ended...
  9. Skylark
    Which test was positive? There are a number of different celiac blood tests, some more specific than others.
  10. Skylark
    Gluten lurks in soy sauce, oyster sauce, fish sauce, commercial broths in soup, and even the rice noodles sometimes. Unless you're lucky enough to get a chef that speaks fluent English and is willing to check labels or alter recipes for you, Thai is a really bad idea. I've gotten sick so may times at Thai restaurants even when I've asked carefully about...
  11. Skylark
    You might want to have a look at this if you are eating barley malt. Tricia Thompson, who is one of the best celiac dietitians around, says eating barley malt not a good idea, despite whatever your book might say. The testing that has been done has determined that cereals with barley malt in them are not necessarily safe for celiacs. Open Original Shared...
  12. Skylark
    They can't learn if you don't give them the opportunity by telling them when she reacts.
  13. Skylark
    The Glutino dream cookies are just like Oreos too.
  14. Skylark
    Well, since we can't have barley malt it's sort of a non-issue. I would be surprised if a tiny bit would make a big difference though. They're probably talking about eating it by the cup, as a normal grain. Some high-fiber grains can lower blood sugar. Oats do it, as does rye. Looking at the references, I'm not entirely sure why the guys at Harvard...
  15. Skylark
    I'm the exact opposite as Marz. My nausea and D pretty much went away in a week but all the mental symptoms took more like a year. I had no idea the gluten was even causing them until I realized I was getting anxiety attacks when I got glutened.
  16. Skylark
    I use that recipe all the time. It should bake at 450, not 350. It's better with fresh buttermilk but your substitution works in a pinch. The batter will be pretty thin - definitely a batter and not a dough.
  17. Skylark
    Well, it's creative. I don't see how a service dog could do something like smell CC in a restaurant where there is bread on all the tables and crumbs everywhere but it's hard for us humans to imagine how a dog's nose really works.. A nice lab might help with the panic attacks, but I doubt it needs to be a service dog.
  18. Skylark
    I'm another who overcame major mental illness from going gluten-free. I was bipolar and sometimes suffered from panic attacks. The bipolar went away with the diet and some high potency vitamin supplements, and as you expect, it did take a while. The anxiety and insomnia were still sometimes an issue. I never cheated because wheat makes me sick, but I...
  19. Skylark
    I believe what Cass was trying to say is that she is personally beginning to understand the role of the various antibodies. What she said is correct and has been shown in studies. The question isn't that of which antibodies play what roles, but rather whether there are anti-EMA and anti-TTG antibodies in places we aren't measuring. Blood is not the place...
  20. Skylark
    When I hit quote, I saw all the spaces the forum ate. Labs do all sorts of different things. Reporting a 1 and 2 is not unheard of, just a little unusual.
  21. Skylark
    Me too. When Bob's says gluten-free they've tested the product. Agreed with Julieabove that you always have to doublecheck Wikipedia information.
  22. Skylark
    Thanks for the heads up! I think I've seen mention of flour in some of the other holiday Reese's. That's one where you always have to check the label. On the bright side, Hershey's says they will always put gluten ingredients on their labels.
  23. Skylark
    Blaming you for bringing celiac on yourself? Ugh. That's terrible! So you're newly diagnosed with partial atrophy? Give it some time. You're right that partial atrophy is not as bad as it can be. Total atrophy is the worst and studies show that total atrophy takes years to heal. Partial atrophy may still take a few months. Stick to the gluten-free...
  24. Skylark
    That makes a lot more sense. Your test values were very low, only 1 unit and 2 units, with anything below 20 being negative. That means they are definitely negative. It's good that you don't have severe enough autoimmunity to give positive tests. I really hope the diet helps you out! I used to get that startled, shaking inside feeling so I know how...
  25. Skylark
    Your first labs are definitely negative. The second looks like a computer glitch. Value 1 and Value 2 should be YOUR numbers and it looks like the computer didn't fill them in. Are they somewhere else on the page? I think you need to ask your doctor for the actual numbers. That is a new, very sensitive test and four days gluten-free will not skew it...
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