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Skylark

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Everything posted by Skylark

  1. Skylark
    Thanks so much for all the stories. I guess I'll try cutting out corn and a challenge on a day when I can sleep in if necessary. At least it isn't an awful reaction - just one I'd prefer to avoid.
  2. Skylark
    You have hit at the heart of this board. A lot of us are terrified of being put into situations where we would have to eat gluten again. It would mean giving up our hard-won health. It is not an option for me at all because gluten makes me mentally ill. There are celiacs who challenge all the time for endoscopy and other reasons. Most get pretty sick...
  3. Skylark
    Congratulation, Raven! As someone who got a late degree myself because of celiac health problems, I know exactly how wonderful you feel. We need the little cheerleader smiley some BBs have!
  4. Skylark
    Did your doctor address the estimated 20-30% false negative rate on blood tests? Idiopathic anemia is strongly associated with celiac disease. If your biopsy showed lymphocytic infiltration only, your doctor may have some more ruling out to do. My understanding is that only celiac causes villous atrophy, though you should ask your doctor.
  5. Skylark
    I went through some personality changes as I recovered and some of my friendships shifted around. I also had a broken engagement when the fellow realized how much I had changed. It turned out to be for the best. I started new hobbies and made some new friends that way. I also throw my own parties, so that I know I have something safe to eat. To rebuild...
  6. Skylark
    I went soy and dairy free for about nine months and was able to add them back. Maybe corn will be that way for you.
  7. Skylark
    It's not common. I wonder if they're using a cheese flavoring in the meats.
  8. Skylark
    Thanks for moving this, mod squad! I'm glad it's not just me with a fatigue reaction. It's the kind of thing where you wonder "Is this in my head?"
  9. Skylark
    That's great news! It is possible because celiac damage can be patchy. Apparently you still have enough normal intestine to absorb much of what you need.
  10. Skylark
    The big concern with celiac is bone density. It's not yet clear whether people with silent celiac disease absorb enough calcium and vitamin D for bone health. You are not a "silent" celiac either if you have days-long episodes of pain. Your inability to handle fatty foods is from celiac malabsorption. There is also an idea of latency with celiac disease...
  11. Skylark
    B - Coffee. I pretty much skipped breakfast, as I often do. I tossed a pot roast into the crockpot before I left for work and did end up nibbling a few of the carrots I put in with it. L - Homemade frozen lentil and cabbage soup, carrots, raw broccoli S - cup of plain yogurt D - Pot roast, half a potato, steamed broccoli, some Greek olives
  12. Skylark
    Yes, all this is enough to keep your villi flattened. You are not describing minor cross-contamination here, but rather a lot of gluten in celiac terms. The butter WILL have crumbs, vertical toasters WILL have crumbs, colanders are almost impossible to really clean well, and the bite of pizza is guaranteed to cause problems. Even eating the toppings off...
  13. Skylark
    On the board, we understand how distilled vinegars and spirits work, and that traces of protein sometimes make it through the distillation. Vinegar tests gluten-free and is tolerated by most celiacs, but some like Ravenwoodglass very clearly react. My question is how the protein is removed from the wheat glucose and sorbitol. "Highly processed" is...
  14. Skylark
    My Immodium expired, my Tums expired, I hardly ever need Benedryl now (though I am on Singulair), and the rare times I need Pepto Bismol when I've been glutened or sick I usually have to go buy a fresh bottle!
  15. Skylark
    Would you really eat wheat derived maltodextrin? I sure wouldn't, processed or not!
  16. Skylark
    Been there, done that. I hope you feel better soon!
  17. Skylark

    ARCHIVED Poor Memory

    Skylark replied to gifree's topic in Coping with Celiac Disease

    I have memory trouble when I'm hypothyroid. An awful lot of celiacs are hypothyroid so is that a possibility for you?
  18. Skylark
    Anyone have food reactions where the only sign is tiredness? It seems like the day after I eat corn I can't seem to get moving in the morning. I have no other reaction at all, only the fatigue. Gluten definitely makes me tired, but I get a bunch of other symptoms that can include GI distress, mouth ulcers, and anxiety. Back when I did the elimination diet...
  19. Skylark
    I am looking suspiciously at corn right now, but soy does not seem to be a problem for me.
  20. Skylark
    It took me about 18 months to fully recover my health once I'd gone gluten free. I was definitely better at six.
  21. Skylark
    Enterolab only tests for IgA. That is not the only kind of sensitivity - you could have allergies with IgE or IgG to foods. You might get some useful information from Enterolab or an allergist running RAST. Once you have some foods to suspect, the only sure way is an elimination diet. You don't need the testing to try the elimination; it only makes it...
  22. Skylark
    Damage on biopsy and a positive response to the diet is plenty of proof. They want to rule out other problems but you are very likely celiac.
  23. Skylark
    Oh, nice! Some support for latency finally.
  24. Skylark

    ARCHIVED New Symptom!

    Skylark replied to K8ling's topic in Coping with Celiac Disease

    I had canker sores in my mouth all my life. They disappeared gluten-free. I often get one or two when I've been glutened.
  25. Skylark
    Only Marsh 1, where they see lymphocytic infiltration but normal villous architecture. Marsh 2 or 3 is specific to celiac. With Marsh 1, blood tests are a good idea, then try the diet.
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