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Skylark

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Everything posted by Skylark

  1. Skylark
    Sounds like an allergy, either environmental or food. Does Benedryl at bedtime help? Are you working with an allergist? I'd be suspicous of the corn or almonds as both are major allergens. If it's always at night, you may need to clean out your bedroom to eliminate dust mites, pet dander, and other airborn allergens. An allergist can tell you how...
  2. Skylark
    Gosh that's a lot of grains. Try shifting your diet towards a lot of fruit and vegetables and easing off all the grain products.
  3. Skylark
    Too funny! I guess I'm a southerner because the idea of sweet grits sounds gross. I eat plain grits as a side dish for eggs with butter, salt, and pepper. If I want to get fancy I use any combination of cheese, chunks of sausage, sliced ham, or crumbled bacon.
  4. Skylark
    I'm confused. All the things on your list are gluten-free. Is this meal giving you trouble? I like eggs and mushrooms on spinach salads too, or some crumbled bacon (cook your own - Bacon Bits have gluten). I also take homemade soups for lunch, or frozen baked pasta made with rice penne. Of course olive oil and lemon is safe. So is red wine vinegar...
  5. Skylark
    Your post makes me really mad. I am sorry to hear that you were being discriminated against, but you have just done the same to ME!!! You honestly believe I'm supposed to poison myself and risk long-term health consequences for a couple months to get a piece of paper that tells me what I already know - that I need a strict gluten-free diet? And why...
  6. Skylark
    Lactose intolerance is dose dependent. A little like milk in a piece of chocolate candy will be OK for most folks with lactose intolerance. A big glass of milk will pretty much always cause trouble. The amount you can tolerate is different for everyone and the only way to find out is to experiment a little. Lactose will not silently damage you like gluten...
  7. Skylark
    Your doc is an idiot. Deamidated gliadin is 98% specific for celiac disease and combined with the TTG there isn't much room for doubt. Get biopsied as fast as humanly possible (or opt out entirely) and stop eating gluten!
  8. Skylark
    Enterolab is as poorly validated as LEAP. Good luck with the elimination and RPAH diet. I really hope you figure out what is causing your troubles!
  9. Skylark
    What's secret about Enterolab? They test for fecal IgA. Problem is, it's not necessarily meaningful. If you come up positive on Biocard you're celiac and need a biopsy, but it has similar sensitivity to doctors' tests with a high false negative rate. If you test positive for TTG at Enterolab, you need medical followup but it could also be microscopic...
  10. Skylark
    My gluten-caused psych disorder story is in my profile. Just click on my name to have a read.
  11. Skylark
    Gas is probably lactose, raffinose (the sugar in legumes and cabbage family plants), or fructose malabsorption. You might try some Lactaid milk and there's a gluten-free version of Beano called Bean-Zyme. Fructose malabsorption is a little tricker with the diet, but there is some info here. Open Original Shared Link
  12. Skylark
    LEAP is definitely not devoid of controversy. As far as I know, LEAP will not pick up celiac disease. They are not looking at the right cells. I can eat a little wheat sometimes with no obvious consequences; other times I react to ridiculously low amounts of CC. It's not predictable but I feel dramatically better on a very strict gluten-free diet....
  13. Skylark
    I also agree. You can't think about refractory celiac until you are eating only foods you know are 100% gluten-free like fruits, vegetables, rice, potatoes, home-cooked meats, and cheeses. I eat very few processed foods and I don't even bake with "gluten-free" baking mixes or flours much. I only eat out at chains that have a well-trained staff and a specific...
  14. Skylark
    You are not celiac by blood panel - you've had enough negative IgG tests that would show celiac even if you were IgA deficient. The deamidated tests are new and somewhat more sensitive than the older tests. It does not mean that you are not seriously sensitive to gluten. Stick to the diet and give it a little more time. Also try eliminating soy and dairy...
  15. Skylark
    If you are IgA deficient, your total IgA will be low. You have not told the group a total IgA. Did your doctor run one? I think I tried to explain your celiac tests once before to you and we figured out that the 1 and 2 are your real test results. They are not mistakes or typos, but simply negative results. If your total IgA is low you will get false...
  16. Skylark
    Vent away! Just going to add some thoughts and constructive suggestions, as pity parties aren't much fun. This diet will get easier with time. You get to the point that gluten food just looks nasty, not tempting. Generally, the people around work look at my home-cooked lunches and wish they had brought something as nice for themselves. My answer...
  17. Skylark
    It takes much longer to really recover from celiac than most folks think, especially since it takes a long time to master the diet. After five and a half years gluten-free, the only thing that has not resolved is my Hashimoto's thyroid disease. It took me over two years to get back to more normal levels of energy and shed the lingering depression and mood...
  18. Skylark
    Me too. I find it hard to believe that there would be gluten on the mature fruits. Dates are well-known to have a laxative effect though. They have a lot of fiber, sort of like prunes. Overindulging is usually a bad idea.
  19. Skylark
    All the Tiger's Milk Bars except for the crunch flavor were gluten-free and have no oats last time I checked their website. There are also the Nature Valley Nut Crunch bars. They are marked "gluten free" on the front of the box and contain no oats.
  20. Skylark
    For starters, healing from celiac takes months, or even years if the damage is severe. A lot of people have off-and-on improvement for the first few months. Some celiacs are sensitive to dairy too at first so you might mention the possibility to her. As far as the kitchen, start out simple. If you wash dishes, silverware, and metal pots and pans well...
  21. Skylark
    You want the blood tests because they provide a simple way to follow your response to the diet if they're positive. Any TTG that's present should fall to zero with the diet. You have to gluten yourself up for 2-3 months for the biopsy anyway, because it's as meaningless as the blood test on the gluten-free diet.
  22. Skylark
    Everyone's gluten reactions are different. It could be a virus but if it's still going on the 27th when medical offices are open again you might want to put in a call to your doctor. I assume you are testing your blood sugar and it is within acceptable ranges? My friend who is diabetic got very tired and dizzy when her blood sugar got out of control.
  23. Skylark
    I would never go back to electric. Gas stoves crank out the heat when you want it and changes in flame are instant so you can go from full boil to simmer much faster than electric. You can also fine-tune the heat much more easily because you can see the flame. I know what you mean about kitchens. My realtor couldn't understand why I was so focused on...
  24. Skylark
    It's a sad state of affairs when a meaningless and woefully overpriced piece of paper is more validation than ones own body. This is not aimed at anyone in particular, just something I find deeply disturbing over and over on this board.
  25. Skylark
    It's the fact that it takes SO LONG that makes me think it's more likely to be celiac and less likely to be an allergy.
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