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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    That would be because there is no research whatsoever. I looked up the so-cailed references and they document occasional allergies to green coffee beans among coffee workers. It gives me even less respect for Dr. whatshisface because it's considered poor practice to pad bibliographies. Most people get over that in high school. Coffee is considered...
  2. Skylark
    At a bare minimum, total IgA, TTG-IgA, and deamidated gliadin IgG and IgA.
  3. Skylark
    "Celiac panel" means different things to different doctors. It usually includes TTG-IgA but we've seen doctors do some pretty stupid stuff. Any chance you can find out what they actually tested?
  4. Skylark
    Good luck! Be sure you're off oats as well. Some people react to oats as if they were a gluten grain. There's recent research suggesting corn can be an issue for some folks as well.
  5. Skylark
    Yes, and we said pretty much the same thing.
  6. Skylark
    Yes, your reaction sounds like an allergy. That all-over itching was probably a systemic reaction to something in your pasta. Maybe wheat, maybe tomatoes, maybe herbs in the sauce. Big systemic reactions can escalate to the point where they are very dangerous. I am a little concerned for your safety. Will your insurance cover a referral to an allergist...
  7. Skylark
    They didn't do the right tests to pick up celiac-related neuro problems. They would need to do the old anti-gliadin IgA and it's very prone to false negatives. Someone just pointed out that Cyrex is doing assays for autoimmunity against the neurological transglutaminase, TG6. It's part of their Array 3 - Wheat/Gluten Proteome Reactivity & Autoimmunity...
  8. Skylark
    Bartful, that's not a fair question to ask. There is no way for us to know what is happening in your gut when the psoriasis flares. There is an association between psoriasis and malabsorption, probably because the intestines are also epithelial skin. Whatever happens when you get a flare-up, you will heal plenty fast. Even GI viruses cause transient...
  9. Skylark
    True, but the threshold of the R5 elisa, the most common commercial gluten test, is <3 ppm. Udi's, Kinnikinick, and anyone GFCO certified is using a cutoff of <10 ppm. IMO the <20 ppm proposal in the FDA has nothing to do with safety for people with celiac or test limitations and everything to do with food conglomerate lobbying. But that's neither...
  10. Skylark
    Yes, it's possible you are reacting. Not everyone tolerates the traces of gluten in grain-based foods. The proposed FDA standard is <20 ppm, which is why Blue Diamond and many other brands label gluten-free at <20 ppm. Even great GFCO certified brands like Udi's are only guaranteeing <10 ppm. It's also possible you are reacting to all dairy...
  11. Skylark
    What blood work did your Dr. do? Maybe he didn't order the right tests. Biocard is a TTG IgA test and it's hard to imagine a false positive twice in a row.
  12. Skylark
    You can't be tested for celiac without eating a fair amount of gluten, which doesn't sound like a good idea. Two weeks is not even long enough. Chicago Celiac Center tells people to challenge for three months, other clinics say two. The genetic tests are not terribly useful as far as telling apart celiac vs. gluten intolerance since you can be gluten intolerant...
  13. Skylark
    Wow, that's great that they are adding transglutaminases. If only I could get tested without eating a bunch of gluten. Did any one have followup on those Cyrex panels?
  14. Skylark
    Retesting your daughter makes sense if you're having trouble with schools but you have to put her back on gluten for a couple months. The tests are not accurate on a gluten-free diet. It can also be harder to get the antibodies to show up in kids than adults.
  15. Skylark
    Thanks everyone! I did have coffee with them. I'll see if I can find some palm oil shortening because that sounds like it would be the closest sub or butter. I have some applesauce in the pantry so I can try adding a little. I'd hate to switch from sucanat to honey as much as I love honey. I've never tried baking with sucanat before and I loved...
  16. Skylark
    I've gone strict dairy free and I'm having a bit of trouble baking my occasional grain treats. I modified my gluten-free scones recipe and the scones had a great flavor but they were kind of dry and crumbly compared to making them with butter. Can someone suggest how to make these a bit less dry? 1 c brown rice flour 1 c oat flour 2 T Sucanat dried...
  17. Skylark
    Let's see if I can explain. The part of your immune system that causes celiac does not react to fully digested foods. It reacts to longish peptides, usually around 15-20 amino acids. Gluten is very difficult to fully digest, which is part of why it can interact with your immune system. For some unknown reason people with celiac have permeable intestines...
  18. Skylark
    I've eaten it with no problem. If I remember correctly it's got some corn maltodextrin or starch but not gluten or any sort of wheat warning but it's been awhile since I looked at the label.
  19. Skylark
    Grains and starches can be really troublesome and trigger IBS problems. You could try the Specific Carbohydrate Diet. A lot of people find it really helpful. Open Original Shared Link
  20. Skylark
    Good one. Also Open Original Shared Link
  21. Skylark
    Dunno. It's not been a problem of mine. I go the other direction.
  22. Skylark
    Chia seeds are supposed to be good for constipation.
  23. Skylark
    Waitaminute. You are describing post-traumatic stress disorder. People can get PTSD from childhood trauma. It can cause insomnia, depression, mood swings, irritability, hypervigilance, and just about everything you've said you are experiencing. Open Original Shared Link PTSD is treatable, though a lot of therapists are ineffective at it. Cognitive...
  24. Skylark
    Sorry, I thought you were asking theoretically or maybe about someone else's test. Your son's test is not positive at all. It is negative, and low-negative at that. 0.7 is considerably below the 4.9 cutoff.
  25. Skylark
    Yes, that would indicate celiac. DGP-IgG is very specific.
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