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quincy

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Everything posted by quincy

  1. quincy
    no I have not heard a specific low acidic diet. I had a comprehensive nutritional evaluation done and my acidity/ph balance was on target, but not sure about low acidic foods. I mostly eat protein, veggies, and some fruit, mostly melon, red grapes once in awhile, or pineapple for the bromelain content.
  2. quincy
    yes, I am waiting for my lab results now. My last vitamin D reading was 25,which was down from the previous reading of 52. I am taking vit D2 50,000 IU's a week for now. My recent dexa scan showed slight improvement but I have Osteopenia
  3. quincy
    interesting. I posted a topic a few days ago asking if I had MS because I have experienced most of the symptoms for the autonomic system. I have had bladder issues, reflux, no hair loss on legs but definitely brittle and ridged nails (toes mostly). I really like my Celiac doctor but I have to admit something that really bothers me: I continue to...
  4. quincy
    Just wondering if anyone else has a hidden worry of MS? by hidden I mean, you have things going on in your body, but you went undiagnosed with celiac so long and complained to your doctor only to be branded a worrier or hypochondriac. So my ttg antibodies have been negative for quite a while, but new problems have arisen since my diagnosis in april 2...
  5. quincy
    I recently got the results back from a NMR LipoProfile which measures the number and size of the different LDL particles and HDL particles in your blood. My numbers are not good and it shows that my insulin resistance numbers are high leaving me at higher risk of diabetes. If anyone is experienced with this, please provide input. for example, my LDL-P...
  6. quincy

    ARCHIVED Panera

    quincy replied to quincy's topic in Gluten-Free Restaurants

    thanks great info. will have to find out if my store does the mixing as well. I will also go in the back and see how the food line dishes out the salad ingredients. if they use the gloved hands that they have been handling all the bread then I am a no-show from now on.
  7. quincy

    ARCHIVED Panera

    quincy posted a topic in Gluten-Free Restaurants

    Panera apparently has pulled their allergens menu. I went there yesterday and asked to see and was told there was no such thing. spoke to the asst manager who told me I was confusing them with another restaurant. Finally after giving up and ordering a 2 dollar soda instead, another manager admitted that they used to have one but they pulled it due to...
  8. quincy
    gluten free since April 2010. Gastro systems took months to calm down, maybe 7 or 8 bm's a day not too bad considering. ataxia took about 3 months to finally go away. Even gluten free cereals made me sick so be patient. stay away from dairy for awhile if you can. doing much better now, back on low fat dairy such as greek yogurt and grass fed milk,...
  9. quincy
    this is interesting I was not aware of inflammation of the cartilage but I experienced this up to and after my dx in april 2010. I thought I had gall bladder disease because the pain first appeared on the upper right and then radiated around the back of the right rib cage. Turns out I also had osteopenia so I wonder if that was also causing the aching...
  10. quincy

    ARCHIVED Help :)

    quincy replied to amy.renee's topic in Coping with Celiac Disease

    a snack that I have recently discovered that is wheat/gluten free and has a healthy list of ingredients is the snack bars called Kind. I love the ones that have almonds, cashews, and fruit with flax seeds. If you go to starbucks you may have seen them at the counter where you buy your coffee. They have a variety of flavors. I live in NY and recently...
  11. quincy
    I am also happy to say that I have successfully started to enjoy dairy again and its been over a year. I like almond milk but tea, coffee and cereal (gluten-free of course) just didn't taste the same. I have at least been buying organic, grass-fed, non-homogenized from the local organic store. I can't be happier, I feel like I am regaining a part of my...
  12. quincy
    thats great progress Roda, are you on maintenance now? if so, what are you taking daily?
  13. quincy
    when I was first diagnosed and found out my Vit D was 16, I went to an Endocrinologist and she wanted to put me on 100,000 IU's a week immediately. well I too balked at those amounts and went against her instructions and just did the 50,000 once a week. well as I said earlier, by the end of the summer I dropped to 11. After several more months I climed...
  14. quincy
    My first reading was 16, then after a few months on 50,000 IU's and a full summer of sun it dropped to 11 !!! So my doctor put me on 50,000 IU's twice a week for 3 months and it finally, after a year of trying, went to 52. It took a year of healing and persistence with the supplement to get my numbers up. and I have osteopenia. I go to the Celiac Disease...
  15. quincy
    actually, now that you mention lower abdominal pressure, that is how my symptoms first presented. The pressure was exerting on the bladder so I went to a urologist who did ct scan and nothing unusual was found. Celiac disease can cause swelling pain and distention in the abdomen so if you do have celiac these kinds of symptoms are very common. but before...
  16. quincy
    Hi Peg, welcome to the forum. I was diagnosed with Celiac through biopsy via Endoscopy. I had suspected Gall Bladder disease or a possible ulcer due to pain in the upper right quadrant. I was surprised when the diagnosis came back with celiac. My only indications of celiac were an increase in bathroom visits beyond my normal bodily schedule. Other...
  17. quincy
  18. quincy
    I had those dreams once a week, at least, for my first year after dx. I am now early into my second year since dx, and I don't have that dream much any longer. I think my fear level has gone down alot since my symptoms have gotten down to almost nothing anymore. all the shock that my body was in I think is calming down. I accidentally consumed gluten from...
  19. quincy
    my main withdrawal symptoms were nausea, dizziness, and terrible terrible anxiety. I had constant pain in my ribs on the right side and could not sleep on my right side, it felt like my intestines were going to "spill" out of me, sorry for the TMI. hand in there. it will get better, though the healing of your gut may take time if you have celiac damage...
  20. quincy
    I have had "blonde" stools for awhile. I took one of these digestive functions test using stool analysis and it showed I have no detectable bile acids in the stool. Typically too much bile acid in stool is not a good thing, but there should be some detectable amounts. my nutritional doctor said that only a HIDA scan can test to see if your gallbladder...
  21. quincy
    well you are not alone and i completely relate to your frustration. I have had a set back too after doing so well. My attack of colitis is subsiding but it has been slow getting back to normal
  22. quincy
    I just went through this as well. I suspect the colitis was from a glutening. It started with pain on the lower left side which they thought was diverticulits. Cat scan showed colitis and diverticular change from my scan from 2 years ago. how did your pain present itself sandsurfgirl? going for colonoscopy in June
  23. quincy
    who tested you for casein? was it by blood test or stool?
  24. quincy
    I assume that in all those years and all those theories, not ONE doctor ever thought to give him a celiac blood test? If true, it never ceases to amaze me.... If he has been sick all these years and panic attacks have set in (that was my first symptom) IMHO go for celiac blood work and/or endoscopy before you start the gluten-free diet just to see if...
  25. quincy
    my december 10 readings in the same order as above were: deamidated IgA: 16 deamidated IgG: 59 tTG: 3 my first tTG was a 51 back in april 2010, so yes I have gone steadily down. I may have had several accidental ingestions but they would have been in small quantity. I have to make a list of everything that I think might be...
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