Jump to content

Mari

Advanced Members
 View Profile  See their activity

  • Posts

    323

  • Joined

  • Last visited

  • Days Won

    6

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Mari

  1. Mari
    There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop...
  2. Mari
    As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
  3. Mari
    Hi Tiffany. Thank you for writing your dituation and circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines. Way back when I was in my 2...
  4. Mari
    Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but...
  5. Mari
    Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
  6. Mari
    I havesome of the replies to your post(which by the way is a gread piece of writing) and think that it will take lots of time and reading to decide what you are going to do. I would like to give you some practical suggestions. Your anxieties and OCD are a perfectly natural response when your body is sending signals that you have physical problems. The body...
  7. Mari
    Hi Vicky' If you are hesitant to visit your medical provider and if this discomfort persists you may choose to do that. I do have some suggestions and how ai have delt with digestive problems not caused by gluten but likely a result of having the autoimmune reaction in my small intestine for all the years before going gluten free. Before I stopped eating...
  8. Mari
    Hi StevieP I think it is best to take GliadinX Just before, during or just after you eat a food that may have a small amount of gluten. Taking 2 capsules of GliadinX in the morning will not protect you all day because it will be long gone when you need it. The upper digestive system is where the digestive enzymes break down gluten. The problem with...
  9. Mari
    Hi James47, You are less than 2 years into your recovery from Celiacs. Tell us more about the problems you are having. Do you just want to get rid of belly fat or are you still having symptoms like gas and bloating. For symptoms you may need to change your diet and take various supplements that you cannot adsorb from the foods you eat because of...
  10. Mari
    Hi Emily, What you described is very similar to what I experienced in coping with Celiacs. I think my first symptoms started when I was about 3 and I wasn't diagnosed until I was almost 70. I got along OK util I was about 30 when I began to have more problems that the Drs thought was an autoimmune problem that they couldn't identify. Then I worked in...
  11. Mari
    mcg Vit. B12Hi dlaino - You mentioned that you are now feeling sick all the time. If this is making you miserable you might want to go to your health provider, describe what you are feeling and your symptoms so that theySome of the people here can give you useful advice about taking supp;ements and the amounts you could take to improve your overall health...
  12. Mari
    Hi Edene - I usually feel hungry after eating a healthy meal. I also eat some food that has protein and fats or oils assnacks and I don't gain weight by eating extra food. If you are worried that you are not eating enough protein you could take a good look at your fingernails. Malnutrition often causes fingernails to break, crack or be too flexible. They...
  13. Mari
    Trents - yes you are correct in that Celiacs is synonymous with nontropical sprue. I just did a quick search online and the two words come up together. That wasn't the case when I went online 20 years ago when it seemed that there were other causes of this type of sprue. Terminology does change over time. There are probably gastroenterologists who see people...
  14. Mari
    Pancreatic enzymes are sold 'over the counter' and do not require a prescription. Many people take them for better digestion. If you are worried that you may react to something in a capsule open the capsule and put a small amount under your tongue. If you have a reaction such as a burning sensation try a different brand. This is useful but not 100% accurate...
  15. Mari
    Hi Dora77, I just want to add a little information. The villi in the small intestine main purpose is to adsorb the nutrients from the food you eat and is not involved in the digestion of the food. Digestion starts when you chew food and it mixes with saliva. When you swallow it goes into the stomach where the food is liquified.The liquid food then passes...
  16. Mari
    Hi Eldene, Your message came to me from the Coping with Celiac Disease forum at Celiac.com. When I read a message here from a person having difficulty with gluten intolerance I don't know any more about them that what they wrote. I will do my best to reply to their questions but will not ask about their lifestyle. Giving unsolicited advice has consequences...
  17. Mari
    Hi KierstenL, You have received loads of advice and information but while you are thinking about that I want to make a few comments about what you could do right now. I am so sorry that you thought you had a cure for your medical problems then they came roaring back. Since you been only gluten-free for less than 2 months ask your health care provider...
  18. Mari
    Nicole, you are very welcome. Marian
  19. Mari
    Hi Nicole, It is good that you asked this question as the answers have given all of some helpful information. To answer your question I became corn intolerant at least 20 years before I learned I had Celiac Disease. I would buy 3 ears of corn at the Farmers Market and eat them over the next three days, The first day - no reaction. The 2nd day a...
  20. Mari
    Hi James, Good to see you here asking a question. Your body is signaling to you that it has a problem that was not corrected by a gluten-free diet. You may have had this problem before you went gluten-free but you probably had more problems from being gluten intolerant and did not notice this other, more general problem in the background. It...
  21. Mari
    Not long ago when I would occasionally meet friends for a dinner out I would order a baked potato and Lettice and some mayonnaise, oil and vinegar. Now I would also take a capsule of an anti-gliadin enzyme after eating some and might take another capsule at the end of the meal. The capsules that I keep on hand are the ones that are advertised here - GliadinX...
  22. Mari
    Hi mishyj, When I was told that I might have Celiac Disease about 18 years ago I went online and read what I could find about this condition. I had a blood test called a Celiac Panel and my IgA was elevated but the TTg was in the normal range. I ordered a Genetic test from Enterolab.com that showed I had a Main Celiac Gene (DQ8) from one parent and a...
  23. Mari
    Hi Goatmanvivo, When I worked in medical labs we would examine fecal samples routinely noting the color, consistency and whether there was any blood or undigested food observed. Fresh blood as you described was noted as was an occult blood test reported. Fresh blood is usually from the large intestine and older (occult) blood is an indication that the...
  24. Mari
    Most helpful was the response by Scott Adams who posted some llinks to articles.
  25. Mari
    Hi Shortsgirl - = So sorry that your parents are not accepting of your need to stay Gluten Free. You need to get out of this game they are using to convince themselves that you are a person that does not have this problem. Kitty knitty wrote that they are in denial. That is often a word associated with addiction. It is well known that wheat and or gluten...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.