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sahm-i-am

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by sahm-i-am

  1. sahm-i-am
    This is a very great idea - one to really consider. Thank you! I am going to her kitchen at the sorority house Tuesday to help her.
  2. sahm-i-am
    Hi everyone! I have a friend that is a chef for a sorority house at a university and cooks meals for up to 75 girls every weeknight. One of her girls just came back from Christmas break with a Celiac diagnosis. My chef friend (Rachel) is freaking out! Do you have any links, resources for her on how to set up her very large kitchen and how not to cross...
  3. sahm-i-am
    Thanks for the update and hope you and your family have a very happy Holiday!!!
  4. sahm-i-am
    I and my daughter can totally agree with this. It bewilders my family and friends when I say I don't crave breads or gluten anymore. They think I'm just saying that because I have no choice. Well, whatever the reason my body doesn't want it anymore. The only thing I miss about my pre-Celiac life was the ease in which I could go about my life. Now, I...
  5. sahm-i-am

    ARCHIVED Sick

    sahm-i-am replied to Booghead's topic in Coping with Celiac Disease

    I get nausea and vomiting when glutened - that usually lasts 2 - 4 hours and then I am just wiped out until the next morning. It takes a day or two before I can eat much. Very much like the flu without the fever. Hope you feel better soon and stay away from the poison!!!
  6. sahm-i-am
    Well, Celiac is definitely a genetic disease and can certainly pass from parent to child. My daughter had gastro symptoms and failure to thrive all her life. We had her tested and her bloodwork came back negative, but her Genetic testing told us she had 2 markers for it. She decided to go gluten free (she was 10 at the time and ready to feel better) and...
  7. sahm-i-am
    YES! EXACTLY what I felt when diagnosed. What a great laugh!!!! And it is even funnier that Pillsbury has the ad in front of the clip.
  8. sahm-i-am
    Yes, I have read that there are other things that can cause the intestinal villi to flatten. Cow milk being one that I can think of immediately. I read somewhere that corn is starting to do that to patients because food manufacturers are using so much of it in our foods, but I can't stand behind that until I find some more information. There are a few...
  9. sahm-i-am
    Before I was diagnosed with Celiacs I had no clue how much food affects all different parts of our bodies, not just our weight. I was a typical ignorant American. Now I know more about gluten and GMOs and the history of food; more than many doctors. So it seems so obvious to me. And you would think that information would be absorbed by our family. But...
  10. sahm-i-am
    Just heard from BIL - he said the only thing that helped him was medication and it is no longer a problem. He does get it checked every year. So it is hard to say if just gluten free helped him or just meds or both. Not sure if this helps or not.
  11. sahm-i-am
    Rick, I did text him but sometimes it takes a few days. He is undergoing a full house renovation and he teaches. He will get back to me - I'll keep bugging him! He needs that sometimes. :-) But I will respond as soon as I hear what he says. It makes sense what beebs said.
  12. sahm-i-am
    I hear ya Donna! It took a long time to find my new normal and I was all sorts of angry and resentful. Now I am at peace with the whole thing. Of course, as far as problems with Celiac, I've had it easy compared to so many on this forum. I think that if my undiagnosed Celiacs causes future health problems like Diabetes or lymphoma I may cry and be angry...
  13. sahm-i-am
    They aren't sure when my celiac disease kicked in - I think when I had emergency surgery with DD#1 a year before DD#2. I didn't have significant signs, just slight anemia. It gradually got worse over the years but nothing significant and finally I started showing obvious signs of malnutrition/malabsorption last year. Other than that I didn't have any complaints...
  14. sahm-i-am
    I would like to add Vomiting to my Nausea vote. Starts 1-2 hours after gluten accident and lasts for 2+ hours, depending on how much gluten I ingested. Then I sleep it off and fine next day. I do worry that the farther away I get from my diagnosis date the worse my symptoms may get. But so far, it just comes quicker, but not any new symptoms.
  15. sahm-i-am
    I believe he does. He has had celiac disease since 2003 and they discovered Diabetes at same time. I will text him about BE later today. I know he gets reg checks for it and I do remember him saying it was hard to manage (BE).
  16. sahm-i-am
    My brother in law has celiac disease and BE. He also has Diabetes, another related condition. I don't know of any scientific studies, just his story.
  17. sahm-i-am
    There are over 300 symptoms of Celiacs. Mine was anemia that couldn't be reversed no matter how many iron infusions I had. I also had enlarged lymph nodes in my abdomen. They found my Celiacs while trying to rule out lymphoma. I never had any GI issues. I like to believe that I am lucky they caught it quickly before much damage to my immune system could...
  18. sahm-i-am
    LOVE Pamela's!! React to Bob's Redmill, but never Pamela's.
  19. sahm-i-am
    My daughter had tons of symptoms and yet her bloodwork came back negative. She did have the two genes for Celiac (forgot which ones) and both her dad and I tested positive for celiac disease. So, even though her tests came back negative she wanted to try the diet to see if it helped with her GI issues. A few weeks later she was right as rain! So, sometimes...
  20. sahm-i-am
    My baby girl was failure to thrive. Heck, I even had trouble gaining weight when I was pregnant with her! (But that was my undiagnosed Celiacs, not hers ). We didn't discover our Celiacs until last year and she was 10, almost 11 years old. She was always small, but I tell ya - it may be that she has been gluten free for 18 months or just her time to grow...
  21. sahm-i-am
    It is actually crazy how people avoid the Celiac test. I have finally stopped asking and talking about it. I sit and listen to them complain about ailments, trying this or doing that, nothing is helping. I roll my eyes and say to myself "Idiot!". If I (who never had one GI problem ever before diagnosis) can have Celiac why in the world would someone...
  22. sahm-i-am
    Katie - here is a link to a resource you might find useful: https://www.celiac.com/categories/Celiac-Disease-%26amp%3B-Kids-by-Danna-Korn/ Danna Korn started a group called R.O.C.K. (Raising our Celiac Kids) and they have support groups/websites in alot of states, too. She has a wealth of information that helped me. An adult living a gluten free lifestyle...
  23. sahm-i-am
    I know that casein and lactose can be hard on Celiac's systems, especially when healing. Take out dairy while your child is healing. If she has had Celiac since birth there is alot of healing that needs to take place. It will take a while. Maybe in a few months you can add diary back in and see how she tolerates it. My daughter has been gluten free for...
  24. sahm-i-am
    Hugs to you Lucky28!
  25. sahm-i-am
    It sounds very much like Post Traumatic Stress Disorder. For years, decades even, you have been battling an unknown enemy. Journaling, reading, researching, testing, probing, all while you are suffering debilitating side effects; it is enough to cause PTSD-like symptoms. You have been your own health warrior, advocating and even questioning your doctors...
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