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Joni63

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Joni63

  1. Joni63
    LOL! I give you an "A" for determination! You did end up making those pretzels one way or another. Why are pretzels so darn expensive anyway? I bought a bag of Glutino for $7.00. Same size I could buy for 99 cents with gluten. I had a bad kitchen day too. I made Scalloped Potatoes and ended up spilling the contents inside of my oven door (between the...
  2. Joni63
  3. Joni63
    Funny you mentioned the sleep mask. I just bought one of those and used it about 5 nights but thought it was hard to get used to so I stopped using it. I also have ear plugs I could try. Did it take you a long time to get used having the ear plugs in and the eye mask on? I also have something the Doctor gave me I haven't tried yet - it's called zolpidem...
  4. Joni63
    Yes, it was frustrating me too!
  5. Joni63
    Oh my. Thanks so much Sue. Your post brought tears to my eyes. I guess I'm going through one of the crappy stages that happens after I did the "I can handle this" stage. I always tackle problems head on and handle them fine and fall apart later. I appreciate all the other help and ideas. I hope it's nothing serious. I have felt really lousy the past few...
  6. Joni63
    I'm having a rough summer. First in May I had an ovarian cyst burst, then an ER visit, several blood tests, a colonoscopy/endoscopy that diagnosed me with Celiac, 4 ultrasounds, and now my kidney had Caliectasis. I feel like I am just falling apart. I thought I was doing well - just started the gluten free diet 2 1/2 weeks ago and feel a lot better. Had...
  7. Joni63
    Hi Scooter5052, Sorry to hear your having these problems, but I think it's great your trying to figure them out by researching on the internet. This board is a great place for information. I'm very newly diagnosed and only been on the diet for about 1 1/2 weeks. When I was eating gluten I didn't always get an immediate reaction right after I ate something...
  8. Joni63
    This is nice information to have, thank you! I assume the product code will change over time and we will not know which ones are safe unless we call for each bag we buy? Am I right?
  9. Joni63
    Your Welcome! I agree, too hot for soups anyway. Honestly I haven't felt like doing all that cooking in this heat for a broccoli casserole. I can always just eat them both raw (which I did in a salad today). My Whole Food is also about an hour away. I want to go there to get some things because my choices locally are very limited. I just want to be able...
  10. Joni63
    I'm newly diagnosed so someone more experienced can chime in if I'm wrong, but I'll tell you what I've found. ANY time something says Artificial or Natural Flavoring or Coloring, theres a possibility that barley is in it. The only way to tell is call the company and they will all tell you, BUT the ingredients can change over time because they might change...
  11. Joni63
    Hi blueeyedamanda, I haven't made it yet but found the recipe on these forums. If you search 'creamy mushroom soup' and do a "most relevent" search you will come up with a few recipes. Also, if you have a Whole Foods store near you they carry a canned brand that is gluten free.
  12. Joni63
    I have to say this is all very interesting. It gives so much insight about different reactions people have to gluten. The most fascinating part is the fact that the medicines in your family are almost completely eliminated and the wide varitey of symptoms improved so greatly, in only 5 months gluten free. Thank you for your post. This is invaluable information...
  13. Joni63
    Thank you ravenwoodglass. You know with all the uncertainty and screwy labeling issues, I agree totally with what your saying. Especially since I'm not sure what kind of reaction I'll get and if I keep accidently getting gluten in my system, I may never figure this out. I went to the grocery store today and only bought things that I felt certain about...
  14. Joni63
    Hi, I'm new to celiac and just had both tests done last Wednesday. I had a very good experience and am glad I was tested with both tests at the same time. You will have to be close to a bathroom during the prep because you will need to get there fast. But really it's not bad. I was worried I would get hungry, but I made plenty of jello and home made...
  15. Joni63
    Thank you for this thread Luke987! It's so good to know that my symptoms are similar to other's who started the gluten-free diet. I started Wednesday this week so it's been only 5 days counting today. I did have the headaches for the 2nd and 3rd day, but on the 4th day I had the best day I've had in a long time until I think I accidently ate gluten. I...
  16. Joni63
    Wow! I would be totally upset over this too. I hate to say it but it does seem as though she has something to hide about it. There would be no other reason for her to not give the name of the person who did the cake. Why would she care that you want to complain about something that was entirely not edible and try to get your money back? I think she either...
  17. Joni63
    Good luck with your results. I know the waiting is the hardest part, but at least you should have a better idea of what's going on. Hopefully you will get some answers or maybe he would agree to further testing if everything's negative. Let us know how you make out!
  18. Joni63
    I think a lot of us just deal with things that way. We learn to live with the little problems instead of realizing they are part of one big problem. I will pray that your daughter has a positive outcome. Is she getting the blood tests? I have 2 children that will need to be tested, ages 7 and 9. Not looking forward to having it done, but know in the...
  19. Joni63
    Thank you, I do understand better now. I just don't understand why the labeling laws are so screwed up. It's nice they tell us about the wheat, but if barley causes the same reaction how can they eliminate that as an allergen and not disclose it? Something I ate yesterday messed me up. Today, I feel lousy after the best day I've had in a long time yesterday...
  20. Joni63
    Thank you. I went to their website and felt let down too. They don't clarify anything. I think I'll have to stay away from it myself. I'm not going to deal with a company that isn't clear on the subject because it makes me think they have something to hide from the consumer. I'll have to find an alternative! I think I've read other posts where other...
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  22. Joni63
    Thank you Burdee, I think I am going to ask for an ELISA test. Is that something my family Doctor will order? I think I will have to cut out all caffeine, even the decaf like you suggested. I didn't want to have to go that far, but around 6:00pm tonight I drank 2 cuts of lite coffee and woke up wide awake with racing thoughts. It's definatly much worse...
  23. Joni63
    I also had stomach problems on and off. I actually went to the doctor about them a year and 1/2 ago and he told me it was related to ovulation. So I figured all my stomach cramping feelings were related to my menstrual cycle in some way and ignored them. If you asked me if I had stomach problems before I got diagnosed with celiac, I would have said NO. I...
  24. Joni63
    I've also had the jitters, rapid heart beat and felt hungry soon after caffeine. I always thought I was hypoglycemic and needed to eat smaller meals more often. Then after going to strictly decaf, the symptoms went away and I felt more satisfied with eating and feeling full longer. What other food allergies do you have? I also have a problem with waking...
  25. Joni63
    Hey everyone, I am so thrilled at how I've felt today. My head felt clear and I've had energy all day. Only felt a little funny after eating a mini Almond Joy. I am so hoping that this will last. Only been gluten free since Wednesday, but did so right after my colonoscopy/endoscopy. Also started taking a multivitamin and calcium/magnesium supplement and...
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