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Joni63

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Joni63

  1. Joni63
    Hello, I'm new to the area and looking for a support group or other's in the area to do things with. I bike ride, hike, swim, kayak, and just want to have people to have fun with. Anyone local?
  2. Joni63
    Thanks for your reply. Yes, I think SIBO is what I'm about. I decided to go to the Celiac Center at Jefferson and see what happens with that visit the end of january. I can't stand this fighting battle - it's always something. Sometimes my immune system is in great shape and other times it's constant chaos. I went 8 months feeling the best ever, then crashed...
  3. Joni63
    Hi, I was dx'd with celiac disease 8 years ago and have been strict gluten free. I need to know what type of gut infections other's have had and how were they treated. I'm having bloating and gas and some stomach pain/discomfort. I have tried SCD diet in the past with great success and seem to do well as long as I stay on it. I cannot drink coffee...
  4. Joni63
    Hi gifree, I just found an ND in Sewell. Her name is Jennifer Phillips and she is gluten free herself. The visit wasn't cheap and I had some blood tests that were covered under insurance and micronutrient testing I chose to pay for on my own. I have iron and vitamin D deficiencies and am working to get a few more answers for things I have struggled with...
  5. Joni63
    Hey! I have had this pain or tired feeling in the muscles above my right eye for a while now. My eyes also feel like they are burning sometimes. My eyebrow area looks puffier on the right side than the left and it causes my eyelid to appear slightly droopy on that side. I take clarinex occasionally for other allergy symptoms, but it really doesn't seem...
  6. Joni63
    Thanks Lizard00! You should start running again. Nothing better than running with music in your ears! Thanks tictax707! It's an awesome feeling. The training is really enjoyable because of the variety. Yes I am already signed up for one in June! : ) Are you doing one any time soon? I totally understand what you mean about feeling bad...
  7. Joni63
    Hi everyone! I am so happy I completed my first Sprint Triathlon this past Sunday! I was sick with no voice and did it just for the experience. It was AWESOME! I would highly recommend it to anyone who wants to train in swimming, running and biking. It is the greatest feeling to have finished it. Keep in mind I have no background in any of those sports...
  8. Joni63
    Thanks Patti! It worked when I tested it...not sure what happened. I put in the actual news clip...better than the article!
  9. Joni63
    Yes, thank you -it is a relief. Let me tell you though...he wanted to do a colonoscopy, but was refusing to do an endoscope. I figured if I was going to get one test and prep for it, I might as well have both done. He said there was no need since I know I have celiac disease and am gluten free. Funny all my symptoms were on the left side just below the rib...
  10. Joni63
    We all know this, but they are finally starting to ackowledge it! Open Original Shared Link
  11. Joni63
    Thank you irisheyes13. I never answered your question about casein...I did eliminate it totally. A couple days after I totally stopped eating it, my sinuses cleared up completely. On a good note, had a 2 week check up with the gastro yesterday and my catscan showed NO diverticulitus - yay I'm cleared to eat nuts, seeds and popcorn again! Wooohooo!!!
  12. Joni63

    ARCHIVED Really - Wth?

    Joni63 replied to Joni63's topic in Related Issues & Disorders

    I've tried melatonin 5mg time release version with no luck. My doctor is now telling me low iron can cause sleep issues. Also just an update on the Ambien CR. Just got off the phone with Sonofi-Aventis and Ambien Cr is not made with any gluten ingredients. It is not certified or tested to be gluten free, but has no ingredients in it that contain gluten...
  13. Joni63
    I did attempt to eliminate the soy, but wow yes it is in a lot of my vitamins. I have a pretty large stock pile of those that cost so much $$$. I did finally eliminate all dairy and my sinuses are so much clearer. My doctor gave me the name of an allergist to visit and I'll be making the appt. this afternoon. Hoping to get some kind of answers. It's hard...
  14. Joni63

    ARCHIVED Really - Wth?

    Joni63 replied to Joni63's topic in Related Issues & Disorders

    My prescription company called the manufacturer and they said the Ambien CR is gluten free (brand name). I called one ofthe pharmaceutical companies that makes the zolpidem and was told it is NOT gluten free. Ambien CR is also listed on the gluten free drug registry as gluten free as of feb/2011. Looks like I'm placing another phone call...I'll let you know...
  15. Joni63
    I've had the same problem for a year now and was working out hard 5 days a week training for a triathlon...could not lose a lb. My trainer thought I was not eating enough so I upped my calories for 6 months. I did end up losing 2 lbs. by doing that, but recently took out dairy and caffeine and lost 5 lbs in a month. I'm still bloated and rotating foods to...
  16. Joni63
    I thought exactly what you meant...no worries!
  17. Joni63
    I sure hope they help me, thanks. Still haven't seen her special, but went to Walmart today and saw some probiotics there that said 15 billion and slow release. Came home and found out they are her product, lol!
  18. Joni63
    Your awesome - thanks Meatballman!
  19. Joni63
    I'm looking for a 65mg dose of iron that is soy and gluten free. Anyone have a suggestion for brand names or stores to look in? I currently am taking 2 of these a day. The one I bought from Walgreens contains soy Thanks!
  20. Joni63
    Thanks mushroom. This stomach pain is starting to get to me. Antibiotics didn't help...removing dairy, caffeine, eggs, and nuts did not help. I am constantly bloated and in stomach pain!
  21. Joni63
    Ok. I'm tired of tests. The more I read about it the more I think I have leaky gut and malapsorption and candida now that I've been on 2 antibiocs for 7 days to treat a *possible* h. pylori infection. I am terribly bloated, am extremely cautious about gluten (3 1/2 years on diet), and even an abdominal catscan showed nothing! Now they want to rescope me....
  22. Joni63
    Wow Scotty! I had so many of those same symptoms, especially the panic attack type. Was checked for an enlarged heart at 14 because it would beat so hard and strong and I felt like my throat was closing off. And yes, I was told it was all in my head more than once. I hate to even discuss it with people because they still are so clueless as to all the symptoms...
  23. Joni63

    ARCHIVED Really - Wth?

    Joni63 replied to Joni63's topic in Related Issues & Disorders

    Oh, I'm glad your pain is gone. Seems a lot of people get relief from the diet and feel better, but the tests don't always show the whole picture. If you know you feel better on it, then that tells you a lot! My mom is a classic case of that. But if you ask her she couldn't possibly have Celiac because the scope didn't show it. Ugh! Luckily she follows...
  24. Joni63
    Anyone watching? I saw the first 5 minutes and have to tape the rest...promised the kids they could watch a movie. It looked really interesting and informative. Can't wait to watch the rest. Anyone have any of her books? What do you think?
  25. Joni63
    I hope some day it will change. I've had much better luck asking for the chef and explaining your needs to them. They are usually so much more sympathetic and understanding. The server may get a little annoyed, but they usually get over it pretty quickly.
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