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Marilyn R

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Everything posted by Marilyn R

  1. Marilyn R
    I have fresh peaches and strawberries and apples from the fruit market and was really craving shortcake or cobbler. It's fall! I've had so many reactions to so many things and wanted something safe. I've had oats in my cupboard for awhile and might be ready to try them, but I'm reluctant after reading all the CC issues. I've got brown rice flour and...
  2. Marilyn R

    ARCHIVED A Little Guidance?

    Marilyn R replied to Hamster101's topic in Doctors

    It seems like the UK is more advanced when it comes to knowledge about celiac disease compared to the US. I've worked with doctors for years and exactly understand what you're communicating about going in with a know it all attitude. My suggestion is to present your chief complaints, or symptoms, and see how your doctor responds. It he/she seems...
  3. Marilyn R
    Turnip fries? Inquirying minds want to know! Oh man I love trout, but live in the SE, have some frozen flounder filets... Last night I ignored them .. was all shroomed out from breakfast. I just peeked at them a few minutes ago and considered adding a bit to the steak marinade I made (which I found onlne and may be delicious or not). (Tahini, chopped...
  4. Marilyn R
    Hope you feel better soon!
  5. Marilyn R
    Only you, yourself knows if you need to go off dairy. I don't know ... for me, cc makes me feel a little crappy. If I couldn't sleep for 7 hours out of the night, I'd wonder what other protein my WBC were deciding to attack like Darth Vadar and make myself miserable all night and all day long. All of my symptoms are neurological, until they go ape...
  6. Marilyn R
    We had Schlar penne with marinara sauce, salad and grilled Italian Sausage (from the local meat market...just pork and fennel) tonight. It was good! I don't care for Ancient Harvest brand, but I have a few quirks when it comes to quinoa. We also like the gluten-free corn/rice pasta sold at Wal-Mart. For dessert, we had my soon to be infamous raw...
  7. Marilyn R
    LOL... love your responses! And photo! I'll definitely start stashing 'shrooms in a paper bag! And I think I have enough of my potent mixture to try all your suggestions. One little tip, based on my mushroom omelete this morning, is not to mix raw minced garlic and onion and chopped 'shrooms with olive oil and refrigerate overnight. The mushrooms...
  8. Marilyn R
    So. I had 1/3 lb. of mushrooms that I had intended to stuff or cook with something that were starting to look ripe. (Bought them exactly a week ago.) I had another 6 well soaked dry shtitake mushrooms. I roughly chopped all of the mushrooms except three nice looking ones that could be stuffed, minced about 2 T. of white onion and 1 T. of garlic, then...
  9. Marilyn R
    I went with the surgery at a prestigeous well known clinic after an endocrinoligist and surgeon recommended it. I had immediate relief from pretty horrid symptoms, but high calcium levels returned, as did horrid symptoms. And that was with only 1/2 of a parathyroid gland left! All of my symptoms have significantly subsibed with a gluten-free/Soy Free...
  10. Marilyn R
    I know a registered dietician that cheats! She was diagnosed as a child and told me if her friends want pizza, she'll go out for pizza (because she knows she's "going to end up with a colostomy anyway"). I couldn't comment, but think she's making irrational decisions. My mother is an RN and always cheated, but was a depression child and is very food...
  11. Marilyn R

    ARCHIVED Taco Bell

    Marilyn R replied to rockectman's topic in Gluten-Free Restaurants

    I bet Taco Bell fries everything in vegetable aka soy soil, which my system thinks is an evil invasion. Just thinking, have no proof to back up my hypothesis...
  12. Marilyn R
    Great question. Hope Kellog's will stand up to the plate!
  13. Marilyn R
    I live in the SE and there's a large hisipanic population here. My local Wal-Mart has a wonderful corn tortillia for $1.50 for a pack wrapped in plastic, then paper. There could be cc issues, but it is the best corn tortillia I've ever had. (And I'd been considering buying a press and making my own.)
  14. Marilyn R
    Oops, I responded strongly and irrationally regarding the envelop thing, and was clearly out of line. Something has me whacked today, eiter carageen or corn, not sure which. Double sorry.
  15. Marilyn R
    You reminded me of something funny that happened at work. I sat at my desk, addressed a note to a client, addressed the envelop, stuck the note in the envelope, licked the envelop to seal it and ALL OF A SUDDEN REMEMBERED THAT glue contains gluten. I ran to the kitchen of our office and spit in the sink, then swished my mouth with water and spit, repeating...
  16. Marilyn R
    Hi Dave, I'm glad you're feeling better. You're going to have a series of ups and downs for the next few months. I'm wishing you many "ups"! The best advice I've received for coping with this disease has been on this forum. What I've learned here is that at first it is best to stick with whole foods that you have prepared yourself. You may...
  17. Marilyn R
    Those corn tortillias I recommended could have cc issues.
  18. Marilyn R
    I'm 50 y.o. with a family hx of pernicious anemia (from maternal grandparents to mother to me) and celiac disease. I became symptomatic and suffered 25 years later in life than you, but have had similar reactions, including wicked tachycardia. Eliminating soy, gluten and dairy has improved my world 150 percent. I've wondered about corn, and I'll find...
  19. Marilyn R
    The easy/difficult answer is to eat whole foods, and foods you've prepared yourself. Eat what grew from the earth or swam in the ocean or was layed in an egg or used to eat grass. (Protien). Add that to something that was a root (onion, potato, radish, etc.) or grew on a plant or vine (bean, pea, berries, melons, lots of rice mixed with bits of this and...
  20. Marilyn R
    I think H&P has soy, not sure. I'd question soy or nightshades before crockpot, in that order, but that's just me. P.S. I made an awesome beef stew tonight gluten-free /Dairy Free/ Soy free from a Martha Stewart recipe. I haven't been around long enough to know if you're allowed to post links, but you can search it online. It's the one with flour...
  21. Marilyn R
    What I've found, after being on a fairly restricted (but not total elimination diet) is that you have a reaction to food intolerances roughly 10-24 hours after injesting it, and the after effects last longer. Food allergy reactions occur quicker, are more immediately severe, but don't last as long. That's my body, not sure if anyone else is the same. ...
  22. Marilyn R
    Hey, Black Sheep, thanks for the tips!
  23. Marilyn R
    Good for you! I hope they're delicious.
  24. Marilyn R
    I don't know if this will help you, but it helps me...really reduces the recovery time. Dissolve 1/2 cup epsom salt and 1/3 cup baking soda in your bath tub and soak in it with the hottest water you can stand for as long as you can. I read about this "detox soak" in a book about autoimmune diseases. I concentrate on the toxins leaving my body...
  25. Marilyn R
    Love your response, sandsurf, so true and to the point, and a great reminder that we need to stand up for ourselves, or be prepared for the consequences. Because the consequences are so particularly horrid for us, I agree that it's best to take your own food as a group dish, and avoid what others bring. Sometimes I pack a smaller dish of my "safe food...
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