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Marilyn R

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Marilyn R

  1. Marilyn R
    When I get glutened, my symptoms last a solid three days. Since I'm underweight, I always try to avoid "D". If you're a coffee drinker, try a caffeine free tea in the morning vs. coffee. If you really need caffeine, green tea is the way to go. Coffee is too harsh for your system when you've been glutened, at least in mho. Since chicken salad is the...
  2. Marilyn R
    My recurrent dream was that I'd be at a barbeque and eat a big fluffy hotdog bun with a hotdog. It was so vivid. Music, friends, barbeque, big bite of hotdog! Then I'd go into the OMG! I JUST ATE A HOTDOG BUN version of the dream. It would turn into nightmare and I'd wake up in sweats. I told my Medical Dr. about the recurring dreams and she said...
  3. Marilyn R
    I relate the to "no cold" thing too. I used to get two horrible colds a year. I haven't had one in eighteen months. I relate to the "C" too. This is the world's best natural gluten-free intervention when you can't poop, and feel cruddy. Heat 2 oz. of Prune Juice. Drink it, then heat about a tablespoon of honey, in water, (make a honey tea...
  4. Marilyn R
    I take a good, long, hot soak in a bath with epsom salts and lemon or lime. I rub my feet (especially the ball of my foot) with Bag Balm and put socks on before bed. I drink plenty of liquids too. (Filtered water.) If I can, I excercise the next day to sweat it out. I haven't had to do this for awhile because I'm really careful. The bag...
  5. Marilyn R
    I'm so sorry you aren't feeling better yet. It could be that your autoimmune system is attacking other similar proteins like soy, dairy, corn... something you may find worthwhile searching on the forum. I was good with everything gluten-free at first, then had to eliminate soy, dairy and corn to alleviate that darn tooting "D". I had to start...
  6. Marilyn R
    I bought one cookbook: "Pressure Cooking for Everyone" by Rick Rodgers and Arelene Ward at a local book store. I also checked out a vegetarian cookbook by Lorna Sass at the library (she's the PC guru and has videos on U-Tube on how to make curried split pea soup in 15 minutes. (A great recipe, btw.) I actually e-mailed Lorna suggesting she write a PC...
  7. Marilyn R
    My 5 qt. pressure cooker has been a life saver! I use it all the time. My homemade stock only takes 10 minutes in the PC, and it is as flavorable as cooking it in a slow cooker or on the stove. Most soaked dry beans (rinse and put them in water when you leave in the morning) take 12 minutes to cook up perfectly, even chick peas. What I like most...
  8. Marilyn R
    Thank you Sara, I appreciate the good advice. I think I just need to simmer down. I was stressed about the results and your answer was perfect. Twe, I don't know how old you are, but every 6-12 months for a blood draw is the norm for my age ... older people usually have their blood drawn more often (I'm in my 50's), younger people usually have their...
  9. Marilyn R
    This is an old post but I'm hopeful that someone can help me shed some light on my results. (My doctors haven't bothered to call, but I was fortunate enough to pick up copies of my blood tests.) I have been referred to a rheumy, but that appt isn't until next week. ANA 1.80 Homogeneous pattern ENA screen: RNP Antibodies 2.9 (Normal is 0.0 - ...
  10. Marilyn R
    Yes, it will be totally safe for you to eat food grown in the field, whether or not you grow wheat in the same field this year. I'm a farmer's daughter, not a scientist or physician or nuclear health physicist, but I'm 100 percent confident in my answer. Any root crop would be fine, grown with or without wheat in the same field. The same would...
  11. Marilyn R
    I've never had a reaction to Ziyad brand Tahini. But I don't repeat the same protein source for at least 2-3 days (preferably 4 days, like the allergists recommend) since it seems like my autoimmune system is fighting most protein sources these days when eaten repeatedly. It could be cc though, maybe I just got lucky with the jar I bought. Even in...
  12. Marilyn R
    It's so exasperating and confounding, isn't it? My best advice is to give up all processed foods and artificial anything (including sweeteners). Go with whole foods you can trust that you have cooked or prepared raw by yourself in your own kitchen for a few months. I couldn't tolerate coffee for the first 6-8 months after going gluten-free, never...
  13. Marilyn R
    Oops. I didn't search the forum before I posted my response. I highly recommend doing so...I'm not sure if I'll schedule the Rheumy appt. now. I refused to have my PCP office schedule it, because I wanted to check it out some more. Anyway, search "Mixed Connective Tissue Disorder" on the forum. Everything I've read supports the gluten-free diet.
  14. Marilyn R
    I had a follow up visit with my PCP today for results on blood tests that my new endocrinologist ordered. One test was an ENA Screen which was ordered in conjunction with an ANA Screen. (It was to rule out Lupus and RA, according to the endo.) My PCP told me I have above normal RNP Antibodies, which means that I have Mixed Connective Tissue Disease. ...
  15. Marilyn R
    I absolutely loved it! You produced a wonderful documentary, and I'm going to share it with everyone I know, most importantly relatives. Well done! I think your documentary will make a difference in their understanding of the disease.
  16. Marilyn R
    Oops. Was sent to gluten-free Mall while previewing my response and hit "send". Six hours is an improvement, I think you'll see better days ahead. I've read that pears are one of the least offending fruits. Can you tolerate pears? I'd still try to put some fruit in your diet because of the amino acids and vitamins. And inquirying minds want...
  17. Marilyn R
  18. Marilyn R
    Ok. I have to get up close and personal. Are you sure that you aren't just having a normal amount of gas? Passing gas is a normal function of the digestive systems. Could it be that you are more conscious of passing gas because in the past you didn't know if you were going to have a bout of D or just fart? (I've been there.) All the men...
  19. Marilyn R
    Do you have a blender? I whip up some tasty fruit smoothies that satisfy, and I only use rice milk or coconut milk sometimes. For instance, a quartered peeled chopped apple, spash of OJ, a peeled chopped kiwi, frozen berries or other frozen fruit (like mango) and about 5-6 ice cubes (from a regular tray of cubes...I don't have an icemaker connected...
  20. Marilyn R
    Skin prick testing with an allergist was an eye-opener for me. Turned out I'm allergic to pecans (an ingredient in a gluten-free SF DF bar I'd been snacking on fairly regularly. Some other surprising allergies turned up. (Turkey, clams, tomatoes.) I'm not functioning at the level I'm used to, but the improvement is noticable. Good luck figuring out...
  21. Marilyn R
    Sorry about the delay in my response. I never had a thyroid problem. Symptoms (in order of occurence) included tingling sensations (especially on fingers and toes, but all over my skin, acute depression (with no prior personal or family history), hair loss, insomnia, gait problems. (I couldn't deal with stairs!) A routine blood draw came up with...
  22. Marilyn R
    I get anxious to. My doctor prescribed some anti-anxiety medication and when I start feeling the symptoms of having been glutened, I take half a dose. It really seems to help. You sleep better, so you can function better the next day, and it helps my state of mind. Regarding the leftovers, it may help to try rotating your foods. Allergists recommend...
  23. Marilyn R
    Sylvia, thanks for reminding me. Because the grill master isn't gluten-free, sometimes he's a pain, but worth keeping. I didn't eat much tonight. I accidently had some soy today. That twists me up.
  24. Marilyn R
    Depending upon what is on sale, sometimes I stick pork, beef or chicken (better if browned first but not necessary_ in the crockpot, squeeze a grapefruit over it, add a bit of water, cumin, s&p, a quartered peeled onion and a few cloves of peeled smashed garlic, then cook it all day. Then we have cooked shredded cuban ... meat over rice, and it goes...
  25. Marilyn R
    Hi Kolla, Reactions from gluten can vary from one person to another. I think your girl would have a reaction similar to the problems she was having before she was diagnosed with celiac disease if she eats something harmful at a friend's house. Usually the worse effects occur several hours after eating something with gluten, but that may not always be...
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