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Syl

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Syl

  1. Syl
    The rashes could very well be an auto-immune reaction from an unknown food intolerance. I have the same issue with my weight, lost many sizes over the last few years. The bloating sounds like it could be SIBO to me. I went to see the leader on this, Dr. Siebecker, and it's something many Celiac's will have to deal with along the road to healing. Read...
  2. Syl

    ARCHIVED Stupid Family

    Syl replied to cavernio's topic in Coping with Celiac Disease

    Hi Cavierno, I think a lot of the fine members of this community have already touched in what I wanted to say, but I just wanted to say you're not alone on your battle. I have been a diagnosed Celiac for three years now myself, only 26 years old, and have been trying to get my entire family on board ever since. I understand completely the frustrations...
  3. Syl
    No, I didn't happen to see that. I'm not surprised. I already had the risk factor from untreated Celiacs and an unresponsive diet so throwing on more to populate the little buggers isn't a shock. Thanks for all the advice Skylark, I really appreciate it!
  4. Syl
    Yes, I've been taking probiotics for 2 years now, using different ones along the way to see which affect me better. Currently taking SolarRay Multidophilus 20k beneficial strains as per orders of my doctor for my Lyme treatment. Taking three antibiotics now, Doxy, Amox, and Rifampin, so probiotics to hopefully help with the loss of bacteria. I find it...
  5. Syl
    Hey everyone, Thanks for the responses, I appreciate it! As far as Lyme goes, I was taking Amoxicillin and Doxy together for 2 months with only a continued worsening of symptoms, most especially my digestion. I was working with a Naturopath and the next step was to take Amoxy, Doxy, AND Rifampin together as she suspected perhaps it was Bartonella. Unfortunately...
  6. Syl
    Hello everyone, I'm looking to start an elemental diet to help my poor digestion finally start healing and was hoping for some suggestions. I've looked into the ones from Nestle like Vivonex, and I've even found one called AbsorbPlus which looked promising, but the problem is they're extremely costly. AbsorbPlus for example is $60 for a 10 serving...
  7. Syl
    Hi Carolina, I would also recommend looking into Lyme's disease. I too have had a suppressed WBC count since I was diagnosed with Celiacs, and I ended up finding out the real reason for this was Lyme's disease. It's unfortunately pretty common for someone with Celiac to also have Lymes. This comes from a tick bite of course, but can remain dormant in...
  8. Syl
    You may want to look into SIBO, actually. Small Intestinal Bacterial Overgrowth is an overgrowth of harmful bacteria in your small intestine and feeding them sugar of any kind can certainly cause unexplainable bowel issues. This condition is very common with Celiac's disease, and is currently something I am on the SCD diet for. Sugar is a big no-no, and...
  9. Syl
    I feel your pain Scarlett. Although I was diagnosed with Celiac's disease a year and a half ago, I too have continued to suffer the complications of the disease. I've also been dealing with SIBO along with a newly diagnosed Lyme's disease as well. I'm also only 25 years old myself and understand how rough it is when you once felt healthy, but now so sick...
  10. Syl
    Look into Country Life's Power-Dophilus, link below. I've used this and Dr Ohira's probiotics and honestly prefer Country Lifes. It's completely allergen free, dairy free as well as I have issues with dairy and soy myself. Last but not least, it is very effective. I've had considerable healing thanks to probiotics, especially in the food allergy area...
  11. Syl
    Thank you all for your wonderful, detailed responses. Fortunately I've been so busy with my girlfriends graduation and her family coming here that I didn't have a single second to focus on my health :] Its refreshing really. T.H., Much thanks for your response! I have recently segregated our cooking equipment and even a separate sponge, something...
  12. Syl
    I've never had a problem with Planters nuts, but Blue Diamond definitely causes a reaction for me every time so I had to drop the almonds I haven't seen any brands around me that sell any safe ones either so I hope someone can shed some light onto this. Ordering them online can be really pricey with shipping =(
  13. Syl
    Sorry to hear about the vitamin issues, in the same boat myself. Finding the root cause of the acid reflux and not just covering up the symptoms with medication is the most important thing you can do. Unfortunately the majority of conventional doctors will send you away with PPI's no matter what symptoms you're having so you need to be assertive and attempt...
  14. Syl
    That sounds great! I am yet to see a corn based version of pasta myself, but I'd love to try it. I'll also have to try commending every company I usually buy from so I can get in on that sweet generosity they showed you Have you ever tried Tinkyada? I've tried a lot of pasta myself once gluten free and none have come close to Tinkyada's brown rice...
  15. Syl
    Don't give up bud, hold on to HOPE as tight as you can. I am only 24 years old myself and in the exact same situation. I know all too well how depressing it can be, but it DOES get better, and like many of the great people on these boards have told me - celebrate the small victories, don't dwell on the losses! This community is a wonderful support group...
  16. Syl
    Interesting. Perhaps it is the form that the soy comes in that you are able to tolerate as well. Since there are different make-ups, proteins, etc - you may be able to tolerate one but not the other :] Envious I remain I can see the negative effects each day that my deficiencies present me (fortunately getting further vitamin testing on Tuesday), but...
  17. Syl
    Thank you all for your suggestions. The MDR one looks interesting, I'll certainly consider that one :] Looking at the Cod Liver Oil on Nature made's website they state it contains soy, perhaps its in an amount you can tolerate tho. I seem to have a tolerance level for it, but not much. With the Spectrum oil only a tsp was enough to send me into an...
  18. Syl
    Hello everyone, thanks for reading. I've been using Country Life liquid multi-vitamin and their calcium for almost 10 months now, and I definitely think its a large part of how I regained a lot of my energy, BUT I am concerned. I have a known citrus allergy to Oranges, Lemons, grapefruit, and so on (as shown in IGG testing and personal experience) so I...
  19. Syl
    Those are so incredibly good! The first day I moved to Corvallis we stopped into the local co-op and found them - it was love at first site. I sure wish I didn't find out about all my other allergies so I could ignorantly and mindlessly indulge on them like I once did Oreo's, hehe. Roda's recipe there looks even better tho - darn I wish I wasn't on...
  20. Syl
    Sorry to bump an old thread. I too was interested in this vitamin when I saw the article written here on Celiac.com, but after speaking with them it seems there are allergens within that haven't been disclosed, such as eggs. Not sure why eggs were even used in the process (something I haven't seen), but the fact that they don't label any of the allergens...
  21. Syl
    Ellette, Thanks for the tip. I don't normally use paper plates or cups whatsoever fortunately, tho I hope paper products don't contain gluten after all! That just opens a whole new world of paranoia for those special occasions when you want a coffee while your out (not that I do that since I always get glutened!) Txplowgirl, Thanks for the...
  22. Syl
    Amanda, Thanks for the heads up. They did eventually mention Eosinophilic Esophagitis and advised me to use flovent for the treatment of it, but that was more towards November. I never took the Flovent (not fond of western medicine) and as of right now the symptoms I had after my endoscopy cleared up for the most part. I'm really sorry to hear you...
  23. Syl
    Been reading about this one myself, but I'm still torn The fact that they are in pill form for one goes against what I've been taught so far about liquid vitamins and for their fish oil they do not list the source or type of fish that the oil is derived from. Impurity is a big deal when it comes to fish oils unfortunately. They do split the dose of the...
  24. Syl
    Just to add to this for anyone looking to start Digest Gold. I have tried their regular Digest three times daily recently and found it helped a bit without any negative reactions and I am soon going to try the Digest Gold to see if a higher, stronger dose will help. I too was tripped up by the Maltase and sent an email this week to see if they could inform...
  25. Syl
    I'm happy to hear you were able to have a positive outlook ;] It's not an easy thing being told you can't eat the way you've eaten your entire life, but in the long run it opens you up to so many new and exciting things that almost make it a beneficial disease. Alllmost. I would follow Raven's advice on that one and be sure to get them tested! Perhaps...
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