Jump to content

eatmeat4good

Advanced Members
 View Profile  See their activity

  • Posts

    1,553

  • Joined

  • Last visited

  • Days Won

    9

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by eatmeat4good

  1. eatmeat4good
    You are absolutely right it will help someone else. There were many times I sat there in the dermatologists office crying and saying that my migraines were connected to the face sores...and my "fibromyalgia" is worse when the sores are there. And I would say "These sores are burning my brain." They would just shake their head and tell the PA who was standing...
  2. eatmeat4good
    Enzymes, Probiotics, and Vitamins can all be found over the counter. No prescription needed. Make sure they are gluten free. I stopped eating out or eating food prepared by others. It made a world of difference and I feel so much better. The Outback is the only restaurant I will go to and that is only on a birthday or special occasion. It sounds like...
  3. eatmeat4good
    Mention Celiac testing to whatever Dr. you are following up with. Any of them can order the blood testing which is a good place to start.
  4. eatmeat4good
    Probably CC from every surface. Benches, chairs, tables. And flour in the air too. I once had a meeting at Panera Bread. I arrived early to scope out the seats. All covered in crumbs and I wiped them with a napkin the best I could. I decided not to even drink anything during the meeting as I could see flour dust on every table. I never noticed this before...
  5. eatmeat4good
    It took me a year and a half to heal my DH. Any cross contamination would cause the lesions to weep and peel and sting again....for several weeks. I recommend you do not use any products that are manufactured in a facility that processes wheat. Limiting iodine won't really help if you are getting contaminated from gluten. I think you are getting a lot CC...
  6. eatmeat4good
    Are you sure it's yeast infection spots that you have? Have you read about Celiac DH? Dermatitis Herpetiformis is the skin form of Celiac and it would be very sensitive to the cross contamination of gluten and it also can be sensitive to iodine. Would you mind describing your rash? Or spots? Do they itch? Burn? Sting? Are they worse at night? Do they weep...
  7. eatmeat4good
    I hope the Dapsone works for you. Are they going to do blood tests in 2 weeks? You should be monitored by blood tests to be sure you don't get anemic. I had great relief from Dapsone and then a terrible reaction so I couldn't take it anymore. Just be aware of what to watch for with side effects. Many become anemic. Some have no problem taking it. You will...
  8. eatmeat4good
    Before I went gluten free, I was invited to dinner by regular eating folks. They served chicken breast, green beans, mashed potatoes and salad. There was no bread served. So it is perfectly appropriate to omit the bread from a meal. It didn't seem odd to me at all. I doubt anyone will say anything. I surely did not miss the bread when it was omitted from...
  9. eatmeat4good
    Yeah learning about cross-contamination is a hard lesson. I tested french fries, then kissing a gluten eater, then products made on shared lines but with no gluten ingredients. Ugh to all of them. The reaction lasts weeks and it is hard to get out of bed and I can't wait to get back into it. I can't take all my vitamins either when healing. After a week...
  10. eatmeat4good
    Good for you mom! He needs you in his corner with all that is going against him physically. So glad you trusted your instincts and investigated until you found the source of gluten ingestion. It is so hard to know. You are a great example of Mother Knows Best!
  11. eatmeat4good
    I agree with telling your gastro that the ped won't test. Then ask for a referral to a ped that will. Let your ped know that you will be going to another ped until you find one that will test your children since this is an inherited disease. You can tell him you are happy with his work except for this situation which is serious to you and your children....
  12. eatmeat4good
    Yes! Butter your steak too! haha! The only thing I don't put butter on is bacon. Bacon needs no help.
  13. eatmeat4good
    I had to go Paleo to get relief, so maybe the article is right and I was reacting to other foods, particularly the grains. I don't know. All I know is I feel better without any grain and kind of ok if I eat a little rice. It certainly is a battle trying to figure out what you can eat the first year. Is it cross contamination? Cross-reactive foods? Things...
  14. eatmeat4good
    You are very astute. I admire your observations of her reactions. Keep reading. Are YOU getting tested? Are you gluten free? Sounds like you know how to fight for testing. Either way the testing goes, you might want to both be gluten free.
  15. eatmeat4good
    Hey Dave! I hate avocado's too! But I make myself eat one every day because they are so darn good for you. the trick is to find exactly the ripeness you like them. I like mine just barely ripe...soft enough for the pit to pop out but not to the mush stage...yuck. And if there is any brown...I cut it off...it can't be good for you I figure...but I know others...
  16. eatmeat4good
    You might be lucky and caught it before it flattens you. Actually the number of symptoms doesn't seem to correlate with positive biopsies. Many people never knew they had Celiac at all due to having no symptoms but their biopsy came up positive. There is something called Silent Celiac where no symptoms are felt subjectively by the person with Celiac, yet...
  17. eatmeat4good
    Yes the symptoms of glutening CAN and DO last more than a week for many of us. For me it's more like 3 to 4 weeks and it works from the top down. Migraine, DH sores, Stomach ache, moody, restless, sick feeling, muscle and joint pain, then the D starts, and swelling of legs. Then it all starts to subside but it takes about a week for the full set of symptoms...
  18. eatmeat4good
    Salicylate sensitivity can cause a persistent dry cough. Do any of her medications contain salicylates? Also can cause muscle weakness and fatigue in those who are sensitive. 1/100 are sensitive to salicylates. Check it out on salicylate sensitivity. Open Original Shared Link If this is the case, asthma like symptoms can be caused by food coloring...
  19. eatmeat4good
    I wouldn't want to gluten challenge if gluten makes you feel awful. Just believe the 1999 biopsy. A positive is a positive no matter what year it was done. The travesty is that you were not told you were positive. Many people do a gluten challenge because they want a positive test, but you have one. And you have the 6 months off of gluten where you felt good...
  20. eatmeat4good
    While you are supplementing vitamins and getting tested for Celiac, do some reading about Nightshades. Many people with joint pain and arthritis symptoms find that the symptoms disappear when they eliminate nightshades. I had severe joint pain and the cracking and popping joints since childhood. It can definitely be caused by gluten. The only way I know is...
  21. eatmeat4good
    I feel stronger and "lighter" mentally and physically now. I hope this makes you feel better. Anyway, it's worth the ole college try!
  22. eatmeat4good
    Yes, DH can present like hives. I had long raised red welts that eventually started weeping and oozing. It burned and itched like crazy. I now have long linear scars where the skin was scratched and they are white and de-pigmented where the DH healed. So yes DH can present as welts and rashes without blisters. I have Hashimoto's and a goiter too. I was...
  23. eatmeat4good
    Yes, Asthma is related to Celiac but it is a fairly recent finding. About a year and half ago three studies were published in Sweden about Celiac and Asthma occurring together. It definitely stopped the asthma roller coaster when my son went gluten free. He has used his inhaler only a few times. Before it was Severe asthma. I did research and a vitamin D...
  24. eatmeat4good
    I'm so sorry you feel lousy and do not get sympathy or even simple support at home. It has to be frustrating and stressful. I would purchase a pan and wash it at every use and take it to my room if I had to. Mother can what she wants to. If she is up for being educated, you can share articles with her. If it doesn't help, just know that you are not alone...
  25. eatmeat4good
    Yes, Dr.'s are frequently wrong. My son had severe asthma and leg aches his whole childhood. Some bad stomach aches but not always, and no BM problems. Depression set in in early adolescence and I worried it was because I was "sick" all the time. I was diagnosed with "fibromyalgia" and nothing changed in 7 years. He laid in his bed with asthma and depression...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.