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cahill

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Everything posted by cahill

  1. cahill
    WOW I havent though about listing this ,,, maybe be overwhelming At one point in my journey I really really started to wonder if I was intolerant of EVERYTHING ,, I did an elimination diet and (pretty much) reacted to most every thing I ate,,, but as Irish says "every day is a healing day" Over time my gut healed ,I was able to reintroduce some foods...
  2. cahill
    I had my gene testing done in Dec of 2013 . There are more than 300 disease-causing mutations that have been identified in the ATP7B gene and they are continually discovering new mutations . Yes I have responded well to treatment . In addition to my meds I am on a low copper diet and drink only distilled water. This is a link to the wilson...
  3. cahill
    Glad to hear your hubby does not have wilsons. I have to admit wilsons is very scary
  4. cahill
    It is not a matter of high exposure to copper ,, we all ingest the copper that is naturally found in our food ,for most people any excess copper ingested is eliminated ,, in my case my body does not eliminate excess copper properly .
  5. cahill
    Seeking2012 While I agree with you that heavy metal toxicity or poisoning happens more often than some of the members in this forum will agree with ,,, (as I stated in my earlier post I am personally dealing with copper toxicity) I have to agree with kareng that this forum may not be the best forum in regard to your heavy metal issues/ questions...
  6. cahill
    sorry double post
  7. cahill
    I believe you are confusing Irishheart post with mine Irishheart said that heavy metals were not a public health concern and that it's all total malarkey,, not I
  8. cahill
    Wilson's disease is an inherited disorder in which there is too much copper in the body's tissues. The excess copper damages the liver and nervous system.The condition is due to mutations in the ATP7B gene. You also can have high levels of copper ( as I do ) and the symptoms of wilsons disease with out having the genetic mutation The body can not...
  9. cahill
    I can only speak to excess copper deposition in the brain Doc Askari is my doc at the U of M . This is from the Wisons disease Associations web page : How/where is the brain affected by copper accumulation? Generally, the brain is affected symmetrically with excess copper deposition, although symptoms can be worse on one side of the body than...
  10. cahill
    I had to share that with my daughters
  11. cahill
    Sorry Deekle that this is happening for you this is why many of us do not complete a gluten challenge. I would rather not have a "formal " diagnosis then have done a gluten challenge.I got my diagnosis in a very round about way . Matter of fact when my GI mentioned me doing a gluten challenge he was teasing me and TOTALLY joking ,, cracked him self...
  12. cahill
    brown rice grits hummmm I will have to check them out Breakfast today was an orange ,2 eggs , fried rutabagas with peppers & onions Yep breakfast is my most favorite meal
  13. cahill
    Dinner was roast pork with baked sweet potatoes (I really need to eat more veggies but for some reason I just dont )
  14. cahill
    thanks Irish I have a few symptoms remaining that I had not ( until now) been able to identify their source. a histamine intolerance may explain my remaining symptoms .
  15. cahill
    Last night was Root vegetable hash with corned beef. After reading the MCAS thread and having corned beef this week I am wondering if histamines are an issue for me Welcome Scott,, I am also in PA ( northwestern PA actually ,, yeap we had a crappy winter )
  16. cahill
    After reading thru this thread ( and with it being St. Pattys day this week ,, think lots of corned beef ) I am very aware that I may have a similar issue
  17. cahill
    I am reading thou this thread,,, alot of information here A couple questions ,,, they may have already been answered but What test do you have /ask for ?? I saw where antihistamines where mentioned,, are you talking over the counter or prescription ?
  18. cahill
    I agree
  19. cahill
    Yeah not sure some times how to feel about that. When they FINALLY listen to us is a strange feeling. I had an appointment with the one of the top GI docs in the country last Dec. After I got my appointment , while arranging to send my records , numerous phone calls/ emails back & forth and the whole way out there ( a 6 hour drive) I felt guilty...
  20. cahill
    Get your testing ALL done before going gluten free. Even if your testing comes back negative you may want to trail a gluten free diet . Going gluten free may help reduce your RA symptoms .
  21. cahill
    Most of my reactions to ingesting soy are neurological
  22. cahill
    I really need to do some more reading on this subject. Thanks for posting everyone
  23. cahill
    Tonight was Lasagna and some cucumber salad
  24. cahill
    yeap it is not 'one day you feel like crap and the next day you are normal again never to be ill again' it is slow process ,after awhile you realize you are having more good days then bad, ,,,that you feel so good that a bad day can blind side you but good days come again , & again & again
  25. cahill
    as kareng and irishheart have already said no cure but a forever treatment. I am good with that I dont know if any one that knows me would call me normal in any way :lol: but knowing that my hard work in adhering to a gluten free diet has returned my gut to "normal" ( well as normal as I will ever get ) is priceless I ( as Irish) was undiagnosed...
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