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cahill

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Everything posted by cahill

  1. cahill
    vit d25-ohd2 is an indicator of sources of vit d such as diet or supplementation . Is she on vit d supplements? Is your 7 yo celiac? How long has she been gluten free?
  2. cahill
    Thanks Colleen, I have not seen any type of connection to celiacs in the limited information I have read. I posted in these forums hoping that if some one had first hand knowledge of Wilsons that they could share information with me .
  3. cahill
    Not sure if this is the correct forum for this topic since I do not know of any connection to celiacs but I did not know where else to put it .. My youngest daughter is being tested for Wilson's disease . Does anyone have Wilsons or know anything about this disease ?
  4. cahill
    I feel every one of those previously broken bones during the winter months I walk out side for exercise / stress relief most of the year so during the winter months I utilize my stock pile of walk at home DVD and exercise DVD so I dont have a excuse to slack on my exercise ( and most of them are fun any way ) I live in northwestern PA so I winterize...
  5. cahill
    Very true. OP, I was vegan/vegetarian most of my adult life untill celiacs decided to have it's way with me .It was very difficult to go from vegan to paleo but it was what my body needed to heal . For awhile ( I was pretty ill) meat,rice and a few vegetables was it for me.As I healed I was able to expand my diet . For me ,,some meats are of limits...
  6. cahill
    the ingredient list for synthroid does not indicate any ingredient with gluten Open Original Shared Link . Corn yes but not gluten . Could you provide a link to your source of information that states that synthroid contains gluten .
  7. cahill
    egg and banana pancakes OH MY they were delish !!!
  8. cahill
    For years my " loved ones" ( my relatives) ridiculed and belittled me at every turn . Saying things like " you cant ALWAYS feel that bad " " its all in your head'', "you could benefit from psychiatric care"( and much much worse) After my official diagnosis they reacted with" well that is you I dont have that ".Then both my daughters and niece ...
  9. cahill
    Nope it does not go away Yes you are stuck for life if you are celiac,, your gut may heal but there is no cure for celiacs Yes celiacs can kill you
  10. cahill
    One of the first things my endocrinologist did when I was first referred to her was ANA testing , it came back positive but negative for lupus . My hashimoto antibodys were high ( read off the chart .lol) Both my daughters (both diagnosed celiacs) ANA testing came positive but negative for lupus .
  11. cahill
    Today was an example how easy it is for doc's to excess information . I had abdominal surgery( ventral hernia ) 5 weeks ago I saw my PCP Monday, he ordered several blood test and an abdominal X ray because I was having pain that IMHO was not related to my recent surgery . Diagnoses was diverticulitis . Today ( Wednesday ) I saw my surgeon ( to be...
  12. cahill
    There was a thread awhile back about tattoos that someone suggested a phoenix ( rising from ashes ). I love that idea and consider it very celiac appropriate Open Original Shared Link
  13. cahill
    I have a medical alert bracelet for my diabetes. My cell phone (which I am almost ashamed to say ) is most always with me has my emergency contact information in it. I live in a very small town and the local hosp has my information ( celiac, hashimotos ,diabetes ect...) on file ( numerous ER visits will do that lol) as does my local pharmacy. I do like...
  14. cahill
    isnt everyones pinky fingers short ?? both mine are short
  15. cahill
    The following is a list of causes of flattened villi which was published in a book titled Coeliac Disease by W. T. Cooke and G. K. Holmes, published by Churchill Livingstone, Medical Division of Longman Group Limited (1984). Celiacs on a gluten-free diet (for a prolonged period) who continue to have flatten villi may be want to look for other causes to their...
  16. cahill
    how do you make your lentil patties? Do you have a specific recipe or ( like me lol) do you just throw them together ?
  17. cahill
    Rice Dream got me too I have a specific reaction to gluten ( watery and i do mean WATER diarrhea) about 26 hours after ingestion of gluten . I did not realize at the time that rice dream was filtered thru barley or how sensitive I am . Lesson learned .
  18. cahill
    Vitamin B12 is a water soluble vitamin there for difficult to reach a toxic level. There have been studies that showed no adverse consequences of doses above the RDA Vitamin B12 deficiency can potentially cause severe and irreversible damage, especially to the brain and nervous system. At levels only slightly lower than normal, a range of symptoms such...
  19. cahill
    Welcome and know that you are not alone . One foot in front of the other, step by step, celiacs is not a race it is a journey Hang in there
  20. cahill
    I do not blog so I have no idea if I could post it or not I find this topic very interesting. I started a thread not long ago questioning if endometriosis. is an autoimmune disease . My PCP indicated to me that she considers endometriosis an autoimmune disease.. I have had endometriosis ( total hysterectomy years ago) and both my adult daughters...
  21. cahill
    I take a prescription dose of vit D ( 50,000 iu cap) once a week and 5000iu daily and my vit D level just makes the scale ,. My levels are checked every three months. I also take mega doses of vit b 12 .
  22. cahill
    Why cant you post it ?
  23. cahill
    Not knowing the kind of neuro issues you have had I would suggest researching 'gluten ataxia' and see if that gives you the answers you are looking for .
  24. cahill
    I was undiagnosed for a very very long time and the damage to my gut was quite extensive . How have I cut soy gluten and dairy from my diet??? I had no choice After my diagnoses I discovered many other intolerances . We all do what we have too .
  25. cahill
    have you had your vitamin and mineral levels tested ?? when you where diagnosed with celiacs did you have an endoscopy ? what did the biopsys show?
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