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IrishHeart

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Everything posted by IrishHeart

  1. IrishHeart
    Not sure why a GI does not know the distinction between Crohn's and Celiac disease ( ) but if he suspects Crohn's or ulcerative colitis in addition to Celiac, then he should do the appropriate tests for it. The first thing my new GI doctor did was make sure I did not have those 2 diseases (they run in my family) and look to see if I had evidence of...
  2. IrishHeart
    All right you two, quit bragging. It was a crisp 31 this AM in NY State Mark, For what it is worth, I have caught my cat drinking the pool water many times (even though I provide filtered fresh water) and she is none the worse for wear. You are swimming (good for relaxation, cardio, endorphins) You are in the sun (great vit D boost) You...
  3. IrishHeart
    I would like to clarify something: Celiac disease is a "form of gluten intolerance" yes, but it has some dire complications not found in NCGI. And that is not at all what "that book says". The author differentiates these two conditions by discussing them at length. Page 55 "In order to understand the various forms of gluten intolerance, we first...
  4. IrishHeart
    Some NY docs will do a stool test via Prometheus for gene testing and it is covered by insurance. Maybe your doc will do it?
  5. IrishHeart
    When I said "luckiest", I meant it in terms of he would be ONE IN A BAZILLION. Seriously? What are the odds that someone happened to be standing there the exact same day he was at the pool ...and that person was eating a sandwich ....and some odd crumb fell in.... and it happened to somehow survive the chemicals in the pool water ....and then,...
  6. IrishHeart
    Honestly, Barty...IMHO? Those are a lot of "sometimes" ....and so unbelievably remote that if it has happened to him, then the OP should buy up all the lottery tickets he can because he is the luckiest person alive.
  7. IrishHeart
    Make a list of all your concerns and ask him/her what the test results really mean. Hang in there. IH
  8. IrishHeart
    One more thing Mark, I was thinking maybe if you read a book like Celiac: the Hidden Epidemic by Dr. Green, it would reassure you about what goes haywire in the body and how it makes us anxious, too. Also, Recognizing Celiac Disease by Cleo Libonati is very informative and discusses the GI tract and other body systems that are affected as well as...
  9. IrishHeart
    People who say "it's all in your head" are usually people who have never been seriously ill. Just blow that off. It's not in your head. But you can make yourself crazy with worry that anytime you feel "off" that somehow, gluten got you. You're pretty tough, believe me! It is very hard to function day after day after day when you do not feel well and...
  10. IrishHeart
    Never. Not possible, hon. How can gluten be in water? It cannot. Please, try to relax. FWIW, I had some PTSD from being deathly ill and not DXed for 3 years. It helps to learn coping mechanisms, being strictly gluten-free and addressing any nutritional and vitamin deficiencies. Anxiety comes from gluten and multiple vitamin and mineral deficiencies...
  11. IrishHeart
    Oscar and I totally agree!!!!!!! I'm about ready to go have a Bombay Sapphire martini---freezing cold and bone dry--as in absolutely no vermouth ---right now. Thank God for gut healing. I admit it, I missed booze. It's only 4:52, but I'm old enough and who cares?
  12. IrishHeart
    what she said! (If I knew how to successfully insert that cute little clapping guy emoticon in here, I would. My technical assistant is not home right now.)
  13. IrishHeart
    Not a dumb question at all, Kiki! I am thinking you are having a reaction from gluten ingestion, period, so it is difficult to blame the toaster or the muffin or anything, for that matter. I just blame the gluten. Under a gluten challenge, who can say when/how you will feel worse? None of us. Inflammation from gluten/celiac can last a long time...
  14. IrishHeart
    I love you, Oscar, you trashy thing you!!!. Even I feel a tad grouchy today. Must be the "weather".
  15. IrishHeart
    ......as it was back in 2005. I knew the minute I posted that article that the date of it would be used as a reason to dismiss it. The truth is, it would be great if everyone had a positive blood test too. There is more work getting a "proper diagnosis" than there needs to be. I still think the article raises one important issue: many studies...
  16. IrishHeart
    I was stunned to read the words "5 years"--granted that may be a small number of people. This is why some people say "Gluten up" as much as you can tolerate. Likewise, it may take a long time for healing the damage. My GI says he will not be surprised if he sees residual damage in me next Spring (after 2.5 years) when he biopsies me. I...
  17. IrishHeart
    I read this recently, for what it is worth. "Another problem faced by gluten-free individuals who want a diagnosis is that it can take more than five years after returning to a regular gluten-containing diet before the characteristic damage of celiac disease can be seen on a biopsy (1). Simply put, after beginning a gluten-free diet, only a positive...
  18. IrishHeart
    Neither do I, but this is just my opinion and I am no doctor. Some doctors still require it for a diagnosis, however.
  19. IrishHeart
    Hi Mark, Yes, it is horrible to go from healthy to an "awful" existence. I can relate. But, it can also improve! You said: "My Dr informed me that my numbers were only slightly elevated but I also have the Dq2 gene. " FWIW, I think you have celiac, hon. Welcome to the club. It takes many months (6-24) for most of us to feel better...
  20. IrishHeart
    No, I am sure the "usual posters" are just afraid to post anymore about this topic, having been shouted down and argued with repeatedly. Blevois, "gluten light" is not helpful for symptom resolution. You need to be strictly gluten free for symptoms to resolve, but conversely, you need to be gluten heavy for about 3 months for the best diagnostic...
  21. IrishHeart
  22. IrishHeart
    I ALWAYS stand up for people on this site. Do you even know me? Then you would know this for sure! I validated her feelings, hon...over and over. I said she had "real symptoms".. ..didn't I? Please read what I said carefully. The very reason why we are sick and grasp for "straws"-- is the very reason why we come to this site. TO...
  23. IrishHeart
    ooooo, no, sweets, gosh! I wish I could take credit fer that kind o'cleverness...but I was so stuck on "winging" an such, that honestly, chickie, it was a slip o' the beak.
  24. IrishHeart
    Seems a bit sweet for me, too (eek) ....I may have to wing it, too. ...lemme know what all yer "winging" produces....with all this winging and flappin, we could be in Costa Rica for the winter with the hummingbirds.
  25. IrishHeart
    Shroom, Bunz....I found it! http://www.lhj.com/recipe/acorn-squash-with-maple-cream-bacon-and-nuts/
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