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IrishHeart

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by IrishHeart

  1. IrishHeart
    Pondy, I am sorry to hear this, hon because I know you have overcome so much the last few months. I have suffered tinnitis and loud buzzing inside my head (yes, just like a roaring freight train sometimes ) but I confess that it is much less intense since DX and being gluten-free. My headaches come and go ---but again, they are less, so I am happy...
  2. IrishHeart
    I knew all that when I wrote the letters, K. I did it for me, mostly. And they were firm, factual and non-inflammatory in tone and context. But I pointed fingers and I had the facts on my side. I was married to a lawyer once (almost became one myself ) and I knew full well none of them would admit to a damn thing in writing. One did call and leave...
  3. IrishHeart
    Knock it off, you "Cougar"! hahaha There are some fresh ones who "get it"--like mine. He has the challenge of (1) diagnosing people properly (2) undoing the damage his colleagues have done and (3) trying to convince the old guard in his practice that they are missing the damn boat. Poor guy. He did not intend to become a celiac specialist,...
  4. IrishHeart
    One day when I was craving something sweet, I made this easy Buttery Pound Cake--- from the back of one of the BRM gluten-free flour packages--- and it was delicious! 1 cup Sweet White Rice Flour 1/2 cup Sorghum Flour 1/4 cup Corn Starch 2 tsp Baking Powder 1 tsp Xanthan Gum 1 cup Butter, room temperature 1 cup Granulated...
  5. IrishHeart
    Until you can "do dairy" again, try try Enjoy life chocolate chips, chunks and their Boom choca Boom bars. No dairy, soy or other allergens. Just a thought!
  6. IrishHeart
    Jam, I just started eating more foods than I had been for 3 years and some days, it is just "too much" for me to handle. Not gluten, dairy or soy in them and not packaged gluten-free stuff either---whole food. For example, I had grapefruit, mango and mahi-mahi (fish) yesterday and I haven't had any of those items since 2007. Also, I had champagne...
  7. IrishHeart
    YES!!!!!!!!!!! Read Dr. Fasano's "Where Have all the American Celiacs Gone?" he figured out back in '96 that it was likely from lack of diganosis that the numbers of us were so small --not because there were so few celiacs--- but because no one was diagnosing them properly. http://onlinelibrary.wiley.com/doi/10.1111/j.1651-2227.1996.tb14242.x...
  8. IrishHeart
    Yes, you did tell us about that icing binge. That stuff is loaded with SOY.... and SUGAR.. and corn syrup and God knows what else.. That would make me feel pretty sick for a few days. Gluten CC keeps me sick for 2 weeks But, remember symptoms come and go while healing a ravaged gut. Many people are quick to blame "an accumulation...
  9. IrishHeart
    I sent the letter to her (the NP) and a copy to the doctor who owns the practice and to the MD/"holistic" doc I was also seeing at the time who also missed the DX and told me "volunteer work" would be good for me as it would get my mind off the constant pain and my hair loss, etc. I posted that doozy of a story earlier in the thread. It's okay. They...
  10. IrishHeart
    I agree totally with Shroom's advice. I learned about getting testing results the hard way. I trusted too much and did not learn about a huge error that was made by my former GI doctor until it was too late. In April 2009, he scoped me and recommended that we continue the course we were on (various GERD and IBS medicines) despite my rapid 90 lbs. weight...
  11. IrishHeart
    I am so sorry to hear this news, Marilyn. And as always, I am appalled at the lack of good care we have both received during our long ordeal of trying to be DXed and to get well. If it matters, I was tested repeatedly for Lyme-- because of the many shared symptoms-- and the specialist told me flat out, he was sure I did not have it, but that the two diseases...
  12. IrishHeart
    Not one bit! Goes right around what we say, does not acknowledge those posts at all and only looks for excuses to ingest gluten. I'm with you--no way I am enabling this behavior. Sadly, we seem to be more concerned about Alice than Alice is about herself.
  13. IrishHeart
    Digestive enzymes helped me immensely when I was first DXed because my GI tract was a mess for several years. I thought I had fructose malabsorption myself but in reality, I was just malabsorbing nearly everything. In time, I was able to tolerate almost all foods once again. I am going slow with the dairy. I am not sure they will help with...
  14. IrishHeart
    Taking activated charcoal after a glutening may not help her at all. It is administered in the event of food poisoning by acting as a sponge in the gut. The trouble is, it absorbs EVERYTHING, including medications, supplements, good nutrients. It is not "selective" about picking out what you want it to "absorb". It will disrupt your good gut flora. Alice...
  15. IrishHeart
    Why do you care what the "risks of a salt water flush" are when you purposefully did the very thing we all told you was the biggest risk of all for you to take? There are many risks, as Raven has outlined above. You are being ridiculous. You ignore our advice, then expect us to help you after that nonsense? Here is the answer: A flush of your...
  16. IrishHeart
    The wrong kind of rice--(gasp!) off with yer head! Decaf coffee is allowed on Failsafe, I think. But I know most people view decaf with the same thoughts as "low-fat" ice cream...i.e. why bother? I went without various foods (elimination diets of all kinds)for a few years (before DX) trying to figure out what was wrong with me. I was so ill...
  17. IrishHeart

    You're such a sweet person...please do me the honor of being my "friend",I added you to my friends List, hope you don't mind!If you ever feel like "chatting" drop me a line!

  18. IrishHeart
    That's too funny!! :lol: and if you stray, you're voted out? I tried them all. Could not keep me interested. People think Gluten free is burdensome and limited? Not at all!! GAPS-- Gee, Average Plain Stuff PALEO--- Plain, Average Limited Eating OY! Failsafe? too many words to be clever, so I'll just say: Mamma Mia, I lasted ...
  19. IrishHeart
    I confess to being the kind of girl who freezes the cookies I make in an effort to control how many I eat at once. However, I also confess to eating them barely defrosted--- because I could not wait.
  20. IrishHeart
    Yes, it is so reassuring to have other members from our planet to hang with, isn't it? Makes that giant blazing neon C on our foreheads feel less obvious when we are inter-mingled with the WEEs (wheat- eating Earthlings.) I sometimes cover mine with a decorative bandana. But when I firmly refuse breaded chicken fingers, I give myself away. Fingers...
  21. IrishHeart
    I figure if you laugh really hard at least once a day, (I mean the almost wee your pants kind of laugh) then, that is a good day indeed. Cheers, IH
  22. IrishHeart
    I find that humor is healing, hon--even when things are not so very funny (like when I was very ill.) I think "gluten-freeness" is a fabulous term! I shall use it liberally--giving you the credit for coining the term, of course. May I? Feel free to use my "my life in Gluten-Head Hell***" phrase, but I hold the copyright. :lol: ***Copyrighted...
  23. IrishHeart
    :lol: :lol:
  24. IrishHeart
    what does she think you eat then , one wonders?? good lawdie, sweetie, you must be pencil thin, since you are allergic to eating food! :lol: Life on just fluids must be rough...although vodka drinks are not all that horrible to subsist on, yes??
  25. IrishHeart
    Sigh...oh yeah, it surely is. When I hear "be patient", I smile and nod--- but I envision a giant "think bubble" over my head that says "easy for you to say, you twit, you're not the one who's been sick and in pain for 4 years"... :lol: That makes me laugh and so when I give the same advice to newbies, I think...this is the LAST thing they want to...
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