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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by IrishHeart
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Here you are, kiddo. It's actually thyroid-info.com: Open Original Shared Link
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I was NEG on blood testing--as are many others on this site---yet, we are celiacs nonetheless. I have to disagree with the poster above (celiacmaniac)who says if your blood panel is NEG you do not have celiac. That is not necessarily true. And Justin, your biopsy result report suggests it could be many things, including latent celiac. Latent celiac refers...
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ARCHIVED Disappointing Doctors Visit
IrishHeart replied to Booghead's topic in Coping with Celiac Disease
One last thing about thyroid/gluten connection. PLEASE read this from Thyroid.com What happens in gluten intolerance is: The body lacks a particular digestive enzyme, intestinal glutaminase, that can digest gluten products Gliadin antibodies are produced as the body's reaction to the presence of the gluten The villi in the bowels... -
Trish X 2 Happy to hear you have some relief! yaaay!! I have discussed with my new GI doc why I felt like I was in a constant "histamine" response for so long before I was Dxed and gluten-free (although I had NO "allergies" at all-- per extensive testing)--I was itchy, had swollen throat and eyelids, scratchy throat, coughing, dry eyes, red face...
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ARCHIVED Best Friend Making Fun Of Me?
IrishHeart replied to MenHen's topic in Coping with Celiac Disease
Many of us were "lurkers" for a while before joining--me, too! Glad you're one of us now! Hang in there, hun--it does get better and better, I promise. -
ARCHIVED Best Friend Making Fun Of Me?
IrishHeart replied to MenHen's topic in Coping with Celiac Disease
Hon, In time, when she sees how well YOU are doing off gluten, she may ask your advice! Then, your friendship will be even more solid--and all your dining experiences together will be gluten free goodness I was a royal pest to my dear friend for almost a year (as she was a walking celiac if ever there was one) and she FINALLY heard me (yaaay!) and... -
Hi Mike, The first few months are unique to everyone, but I can assure you that what's happening is probably quite "normal" for YOU. Yes, gluten withdrawal does occur (it does not last very long)and yes, you will have dyspepsia, changes in your bowel patterns (sorry to be frank, but this is the human body we're dealing with), even your sleep patterns...
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then you may wish to steer clear of topics about bowel movements and C and D on here. :lol: We sometimes "tell all"--in gory details-- in attempts to figure out people's issues.
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ARCHIVED Favourite Music/tune For Today?
IrishHeart replied to Di2011's topic in Introduce Yourself / Share Stuff
I am a fan of powerhouses like Ella Fitzgerald, Etta James... but I have to say, This woman's voice is killer. Florence and the Machine -
ARCHIVED Best Friend Making Fun Of Me?
IrishHeart replied to MenHen's topic in Coping with Celiac Disease
um, not to be the "gluten police" or anything but these two AI diseases are OFTEN linked to gluten intolerance (I suffered alopecia myself) and "gluten problems are not always seen on the outside" --well, no, but many people have dermatological issues, including psoriasis, eczema, rashes and full- blown DH, and alopecia, etc. The irony is: she... -
ARCHIVED Best Friend Making Fun Of Me?
IrishHeart replied to MenHen's topic in Coping with Celiac Disease
Everyone gave you great advice about the gossip aspect and how to deal. I also know when I was still under the influence of gluten (even after 2 months gluten-free) I was sensitive and "touchy" (not at all like my personality ) so let it go and have lunch together soon. Good friends are hard to come by! best wishes. -
Fantastic news, Jen!! Congrats!
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ARCHIVED Disappointing Doctors Visit
IrishHeart replied to Booghead's topic in Coping with Celiac Disease
And yet, her DOCTORS have her taking it....for the loveofmike. -
ARCHIVED Disappointing Doctors Visit
IrishHeart replied to Booghead's topic in Coping with Celiac Disease
I'm going to try one more time to summarize we are trying to tell you. And have your mother read this thread, please! Some people do not have any gastro symptoms with gluten intolerance. Some people have rashes, cramping and gas. (dermatological and gastro) Some people have anxiety, depression, ataxia and insomnia (neurological) Some... -
ARCHIVED Disappointing Doctors Visit
IrishHeart replied to Booghead's topic in Coping with Celiac Disease
Oh man, that is completely untrue--- "endos only take strange or peculiar cases".??waaa??? Endos are specialists for endocrine system problems WHICH you HAVE. And BTW, itching and dry skin are also HYPOthyroid problems. (But, they are also celiac symptoms.) The GP will likely start you on generic levothyroxine and run no further tests. What... -
ARCHIVED Disappointing Doctors Visit
IrishHeart replied to Booghead's topic in Coping with Celiac Disease
I had questions about your celiac panel as well. Shouldn't there be more results than that? Blood tests are often NEG and the person has celiac nonetheless. (me, for example) and so, I am guessing, he has cancelled the biopsy??? Time for a new GI as well??? We're not telling you what to do. We're offering advice based on personal experiences... -
ARCHIVED Disappointing Doctors Visit
IrishHeart replied to Booghead's topic in Coping with Celiac Disease
First of all, you are not HYPERthyroid, hon. A TSH of 5.79 is slightly HYPOthyroid not HYPERthyroid. HYPOthyroid is an underactive thyroid and causes fatigue and constipation is the most common autoimmune disease associated with gluten intolerance. HYPERthyroid is an overactive thyroid. Your numbers would be LESS than 1. the range reads like... -
ARCHIVED Disappointing Doctors Visit
IrishHeart replied to Booghead's topic in Coping with Celiac Disease
Idiot doctor, yes ...BUT YOU just TOLD US in a post a few days ago that YOU FELT SO MUCH BETTER after going gluten-free! and felt lousy after being glutened. Right? So, gluten IS a problem for you. I had both hypothyroid and Hyperthryoid symptoms in the 3 years I was undiagnosed. I felt like crap and they put me on meds and I still felt like crap. It... -
Hon, dairy LIGHT won't help you. Take it OUT for awhile. Like a month...then add it back in later. I'd skip the Silk soy milk. Use coconut or almond milk.
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I Agree!!! ...cheese was harder for me to give up than gluten... I went many months DF (except for butter)---just added some cheese and yogurt back in. Still use coconut milk, though. So far, so good. IN MODERATION.
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ARCHIVED Could It Be?
IrishHeart replied to researchmomma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is very interesting! You sound like me--starting to look at all your symptoms, collecting data and seeing how all the pieces of the puzzle start to come together. I was a mystery wrapped in an enigma for sooooo long and now, it ALL makes sense. From the gall bladder disease to the insomnia to the reproductive problems to the 90lb. loss to the... -
ARCHIVED Could It Be?
IrishHeart replied to researchmomma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, Momma...seems like you've got a gluten issue yourself, hon. You're very welcome. Wish I could do more. Please do not hesitate to ask for help. I'll do my best or point you to the one who will know the answer. These people are the most generous, knowledgeable and supportive bunch I know. Hang in there!! -
Your concerns are very real, Justin --and you get to gripe big time!--we totally understand that!!! We vent on here all the time! But here's the thing....You do not have to give up pasta. Just WHEAT pasta. There are rice and corn pastas that are DELICIOUS! There are breads, pizza crusts, pie doughs, cookies, even donuts...all of it....it's just not made...
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ARCHIVED Could It Be?
IrishHeart replied to researchmomma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ladies, A few more thoughts. The "backed up poop"? That's from chronic constipation. (been there/done that ) That alone causes toxicity in a body and creates irritability. Get them on some probiotics (like Culturelle) and have them drink LOTS OF WATER. No sugary sodas for a week. Skip cheese and ice cream. These foods can cause constipation.... -
ARCHIVED Could It Be?
IrishHeart replied to researchmomma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sounds like you have a good plan, hun! Some folks on here will say just go gluten-free and forget the test and some will say wait and see what the results say. I usually say "go with your gut instinct" (pun intended ) because you know best. Awfully glad your hubs is on board, too. Makes your work easier. As for you, Mom? She is one lucky kiddo...