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IrishHeart

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by IrishHeart

  1. IrishHeart
    HOLD ON! If you want a "REAL" diagnosis from biopsy??--she needs to be CONSUMING GLUTEN!!!! Once you take gluten out of the diet, you start the healing process of the villi and the antibodies start to go down and the biopsy results could be affected, rendering a false negative. Wait to see if the doc will do it--press for it to be done ASAP. Then,...
  2. IrishHeart
    Kiddo, Your doctor is not pushy, he's thorough. He's wonderful!! He's enlightened!! I would have given anything if my former GI had been so thorough. Mine mis-Dxed me for 12 years. The "shroom", Roda and Skylark and takala speak the truth. I can't add much more to what they have said except, I was "mostly fine" too (IBS, GERD, MUSCLE and JOINT...
  3. IrishHeart
    Okay, Mom.... here you go. is your printer ready? This info was compiled for a friend with celiac disease and my family and is a starting point for information about celiac/gluten intolerance. Let me know if I can help further. For info: Open Original Shared Link Open Original Shared Link Dietary concerns –LISTS OF safe and unsafe g...
  4. IrishHeart
    ha ha that's okay, hun. I fixed it and put it back to neutral --but now, your vote up has given her a ONE! She deserves a "Thumb's up" for all the hard work she is doing.
  5. IrishHeart
    maybe not, but hon, any INFLAMMATION in the body is caused by something.
  6. IrishHeart
    I fixed it for you. That's how you vote a post "UP" as being helpful.
  7. IrishHeart
    The more you tell me about her symptoms, the more I cringe. And yes, seizures are a symptom. Please look at this: Open Original Shared Link and get yourself a copy of "Gluten Free Living for Dummies" by Danna Korn. Written by a Mom of a celiac and extremely helpful for newbies.
  8. IrishHeart
    Open Original Shared Link
  9. IrishHeart
    Oh, that's nothing....here, check this out: Open Original Shared Link
  10. IrishHeart
    Gene tests were used as exclusionary tools before. Now, we know other genes are associated with celiac. People on here are living proof! So the tests are questionable anyway. More research needs to be done. Celiac can "trigger" any time in life. If someone is "neg" on biopsy or blood work in 2011, they may be "POS" in 2013 or 2016.... Consuming gluten...
  11. IrishHeart
    Thanks, Marilyn for adding this in support of what I said earlier..... I sound like a broken record on here, but the truth is, when your gut is so ravaged, EVERYTHING seems like it is a problem. I drove myself insane with that stuff "is it this, that, the air I breathe??" Rotations diets, elimination diets, blah blah blah. I know many do not like...
  12. IrishHeart
    Hubs had to restrain himself on more than one occasion from doing bodily harm to insensitive, arrogant doctors .... He is also our grocery shopper and READS LABELS like a pro. I taught him. He reads every damn article I show him and like LOVE2TRAVEL's man, he knows what goes on here on celiac.com. His bread recipe has made the rounds. Anyone's...
  13. IrishHeart
    DITTO from moi.
  14. IrishHeart
    OMG!!!! a 12- year- old on prozac??? First of all, SSRIs (selective seratonin uptake inhibitors) are contraindicated in children under 18 as they can cause WORSE depression. Secondly, if her gut is damaged, she will not absorb that medicine. It will circulate in her system and possibly cause more agitation. (this is exactly what happened to me) ...
  15. IrishHeart
    No, I HAVE a DOUBLE HQ2 gene, actually. The story I told you --that was about another one of my doc's patients. I was blood test NEGATIVE. Told it was okay to eat gluten. Went downhill for another year. I got a gene from both parents. We know NOW this is what killed my Dad. My 84- year- old Mom went gluten-free a few months after I did and feels...
  16. IrishHeart
    yes, Great idea! ( I forgot--I used ghee for months with no issues)
  17. IrishHeart
    This is so very true. My husband watched helplessly while I deteriorated, at one point saying to one doctor, "I just want my wife back." I felt my heart break. He had to help me get dressed when I was so bad and he held my head while I was ill, applying cool compresses so I would not pass out in the bathroom. He made me water/salt/sugar drinks to keep...
  18. IrishHeart
    I have that one by Wagnen as well.
  19. IrishHeart
    Since any ---"itis" means inflammation (I know because I have a bunch myself: osteoarthritis, sacroiilitis, glossitis, blepharitis...blah blah blah) why wouldn't it be related to celiac malabsorption? Could very well be. I do not know how you could RULE OUT RA if she did not do any testing. Sed rate, C-reactive protein, ANA??? These would be done...
  20. IrishHeart
    Hey Alex, Elizabeth Gordon creates gluten-free, Df, SF, and egg -free and nut- free goodies. I have her book Allergy Free Desserts. Maybe she has some more ideas for you:) Open Original Shared Link
  21. IrishHeart
    First, you are not crazy and your daughter would have no reason to "make all this up". Besides, you cannot "fake" short stature and eczema. Secondly, OF COURSE we know about wanting to feel validated. I went YEARS trying to find answers to DOZENS of inexplicable painful symptoms. This thing tried to kill me. I KNEW in my heart that it was SOMETHING...
  22. IrishHeart
    Chad, Not sure how long you have been gluten-free, but the bloody nose/fatigue can still just be from celiac, too. It may resolve soon enough. I had sinus congestion & pain, swollen throat & puffy face, difficulty swallowing, sneezing, swollen eyelids, a swollen, burning tongue and lips, headaches...I was a mess for 2 years with that stuff...
  23. IrishHeart
    EXACTLY my point. Thanks for the back-up. The criteria for "diagnosing" needs to be revamped. They're all missing the boat--look at all of US!! The whole tone of the article was off-putting to me anyway. The "savoir doctor" swoops in and "saves" the day??? PUL-LEEZ!!! Five minutes with this woman and WE could have told her she was a celiac. Just...
  24. IrishHeart
    It is my understanding that it just means the damage is not extensive yet, or the biopsied areas were not damaged?
  25. IrishHeart
    shroomie, we all seem to know this, yet this recent article claims: "false positives are not unusual"...what the heck?? How could they write that? There are more things in the article to take issue with,but that bothered me terribly. Open Original Shared Link
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