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U Gluten Free

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by U Gluten Free

  1. U Gluten Free
    Totally agree with LauraTX.
  2. U Gluten Free
    @seeking2012 — Heavy metal poisoning is increasingly rare. Decades ago, lead in paint and gasoline were a major issue. Unless you have a particular reason to think you have been exposed, I suspect that your CFS has some other cause. Some "alternative" practitioners try to promote the myth that this is common, but I recommend that you work with a qualified p...
  3. U Gluten Free
    kareng — I agree that it's important not to over-sell the potential here. However, since a large number of celiacs heal slowly (or not at all)—possibly because of the effects of trace gluten contamination—I think it would be great to have a pill that could take care of this problem.
  4. U Gluten Free
    Fascinating topic, Scott, and conceivably important as one factor in the increase in adult celiac disease prevalence that has been seen over the past decades.
  5. U Gluten Free
    Hi nvsmom, Do you have any more information about this? I haven't come across this idea before—I try to stay up to date with the research, but this is unfamiliar.
  6. U Gluten Free
    GottaSki, I don't claim to be a clinician, and just rely on the published literature and information from celiac disease resource websites. However, it's well known that clinical guidelines are just guidelines. Physicians will use more or less diagnostic resources depending on several factors: particular case, personal preferences, ability to pay for tests...
  7. U Gluten Free
    Hi gottaski, Hi mushroom, The guidelines for diagnosis have continued to be refined over the years. No doubt, individual physicians will use their discretion regarding what approaches to use in their diagnosis, and antibody tests are just part of the picture. However, as far as i can tell, serology to measure levels of anti-gliadin antibodies is no...
  8. U Gluten Free
    The FDA has stated that there is no validated test for gluten in "hydrolyzed foods" (such as sourdough bread or barley based beer). When I last checked, the Tobacco Tax Bureau had ruled that no beer based on barley can be labelled as gluten-free in the US. The technologies that some breweries are trying are exciting, but unproven. I can give more detail...
  9. U Gluten Free
    It is fairly common for a person with one autoimmune disease to also have another. This increased susceptibility is probably genetic. There is no evidence that one causes the other—in other words, gluten has not been shown to be a trigger for other autoimmune diseases, other than celiac disease.
  10. U Gluten Free
    The body produces large amounts of IgA antibodies, and these are thought to provide a protective "coating" to the intestine. Antibodies to different foods and microorganisms are common. There is no evidence that the presence of anti-gluten IgA antibodies is important in celiac disease or gluten sensitivity.
  11. U Gluten Free
    Gemini, can you share some details? I have not found any published research of any test that is effective for testing compliance with a GFD. Such a test would be a huge step forward, since many people continue to have symptoms even after going on a GFD: nutritional counseling can help, but an actual diagnostic would be great.
  12. U Gluten Free
    Physical symptoms are a poor indication of what is actually happening in the intestine. Even people on a strict gluten-free diet can have damage that persists for a long time, even years. While this forum is not intended to provide medical advice, everthing I have read would indicate that if you have had a positive diagnosis you should be avoiding even traces...
  13. U Gluten Free
    Leaky gut syndrome is not a recognized medical condition and should not be confused with celiac disease. A number of diseases and infections can increase gut permeability, including celiac disease, but the importance of this change in permeability is not clear. Much less is known about non-celiac gluten sensitivity, but early research suggests that this condition...
  14. U Gluten Free
    There is no validated test for (non-celiac) gluten sensitivity.
  15. U Gluten Free
    While we are all sympathetic to your situation, it's important to stress that interpretation of test results should be between you and your Dr., not by a public group of well-wishers. The tests that "mushroom" mentioned are presumably FDA-approved, but I personally question relying on over-the-counter self-diagnosis with unapproved tests.
  16. U Gluten Free
    Yes, unfortunately, celiac disease is diagnosed once there is substantial intestinal damage. This leaves a number of individuals with less damage and only mild inflammation in a grey area. In my opinion, since there are a large number of genes involved in celiac disease risk (beyond HLA types), it seems plausible that celiac disease is more of a family of...
  17. U Gluten Free
    The authors of this paper pointed out that there were ethical challenges in continuing a clinical trial in which intestinal damage was clearly being caused by the gluten administered to the patients. Now that I think of it, I wonder if such a clinical trial would be approved in the US? It seems that most of these studies are done overseas.
  18. U Gluten Free
    In addition to Janet's suggestions, a couple more to try would be: Chili's To Go On The Border Qdoba Mexican Grill Wolfgang Puck
  19. U Gluten Free
    You might check out a blog specifically devoted to this topic: Open Original Shared Link
  20. U Gluten Free
    As part of the current review of proposed "gluten-free" labeling, the FDA has asked for input from celiacs who are highly-sensitive. From the Federal Register p. 46675-6: Open Original Shared Link A couple of quotes: and Other than some of the members of this sub-forum, does anyone have any information about the size of this minority?
  21. U Gluten Free
    Good point. The problem may be ethical rather than technical: it may not be ethical to give gluten to people who are already known to be extremely sensitive. Each research center has an "Institutional Review Board" which reviews the risks and benefits of a given study. A safety study is different from a therapeutic drug trial
  22. U Gluten Free
    Good point, T.H. While the patient who dropped out of the trial may indeed be clinically significant , it is usual for a trial design to be fixed at the start, so that only data from patients who complete all the steps of a trial can be included in the final data.
  23. U Gluten Free
    Thanks for posting this. People also need to check out the FDA's own Hazard Assessment report. It seems that almost no-one is referring to this important document: Open Original Shared Link The 93-page report is a bit heavy-going, but it shows how thorough the FDA has been on the question of gluten safety. The final sentence is very interesting, and...
  24. U Gluten Free
    Beef Moussaka The original recipe typically involves eggplant and lamb, but I prefer this beef version. It's also easy to freeze and re-heat. 3 large potatoes, peeled, cut into
  25. U Gluten Free
    With all the recent internet buzz about the Open Original Shared Link, I decided to delve a little more into what these preliminary results might mean, and explore some of the issues behind this approach to a celiac disease vaccine. --Many people have highlighted that the authors observed "biological activity", but this definitely doesn't mean that the...
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