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Latest Celiac Disease News & Research:
Everything posted by Morrisun
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ARCHIVED Pharmacy Not Celiac-friendly
Morrisun replied to OBXMom's topic in Gluten-Free Foods, Products, Shopping & Medications
Please write a letter to your state senator and also the FDA. I did this about a year ago and got an excellent response from my senator (Orrin Hatch). He actually contacted the director of the FDA on my behalf (and forwarded me the response) and I think if more Celiacs speak up about these types of situations, we might eventually make some headway. -
I've used Bette Hageman's flour for a couple of years now and I love it. I use it as a "normal" flour substitute and for the most part, the food still comes out good. I use it to fry chicken, make gravy, etc.
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ARCHIVED It Can Always Be Worse
Morrisun replied to henny's topic in Introduce Yourself / Share Stuff
This makes me so sad. I will keep your friend in my prayers. -
Just wanted to let everyone know I just recieved an update from Pier 49. "We have introduced Gluten free pizza in all of our restaurants. Please call the specific location to make sure they have the shells." Yay! I'm going to call the one by my house to see if they have them.
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ARCHIVED Aghhhhhh! Gas Prices
Morrisun replied to blueeyedmanda's topic in Introduce Yourself / Share Stuff
I think we're at $3.05-$3.09 as of yesterday. Sadly, I too remember paying under a dollar a gallon. It's such a scam!! -
ARCHIVED Tooth Decay And Very Noticeable Hair Loss
Morrisun replied to radgirl's topic in Coping with Celiac Disease
Yes, I've had tooth issues. 11 cavities in about 18 months, with proper hygiene. This was shortly before I was diagnosed. I have also had hair loss issues, which I attributed to being hyperthyroid at the time. -
ARCHIVED Can/are These Sypmtoms Of Celiac/gi?
Morrisun replied to SweetAmber32's topic in Related Issues & Disorders
To my knowledge clots are not a symptom of celiac disease. I'm sorry you had to go through that! I had multiple PE's in 2005, caused by birth control pills. Do you have any clotting disorders? -
Here's the response I got, thought I would share. "Right now the only store that has gluten free pizza is Downtown SLC. We are working on getting that pizza in all of our locations. Thank You"
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That's what I was wondering too, I live near the Layton one. Here is their website: Open Original Shared Link I'm going to see if I can email them. I'll let you know if I find out anything.
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ARCHIVED Angry Dealing W. Insurance Company About Medication
Morrisun replied to Yenni's topic in Coping with Celiac Disease
I've been going through the same thing. It is so frustrating. I too have been without a medication for about 3 weeks now due to the fact that I have to get my Dr. to write a letter to my ins. company explaining why I have to have name brand when generic is available. It's ridiculous. -
Awesome thanks for sharing!!!
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ARCHIVED Cadbury Mini Eggs =(
Morrisun replied to Moongirl's topic in Gluten-Free Foods, Products, Shopping & Medications
Wow that is just so wrong and seems like such a lazy CYA statement. Guess I'll add Hershey to my letter writing list. -
ARCHIVED Confessions Of A Cook
Morrisun replied to imsohungry's topic in Gluten-Free Recipes & Cooking Tips
Well I have one, but I was the only person that was going to eat it, so I don't know if it counts, I'll tell it anyway. Just last Thanksgiving I was going to make a gluten-free pecan pie (my favorite!) Anyway, I tried a new recipe and the crust was made out of gluten-free cereal. I used gluten-free frosted flakes type and I'm thinking maybe I should... -
ARCHIVED Trouble Staying gluten-free
Morrisun replied to Salazarai's topic in Coping with Celiac Disease
First of all, don't beat yourself up over it. I did the same thing. I was 100% gluten free for a little over a year and then I dunno...went crazy and was not careful about my diet. I wasn't eating gluten every day, but on a weekly basis. What finally got me in the mindset that this was something I had to do, was when I started thinking about the consequences... -
ARCHIVED What Happens When You Eat Gluten?
Morrisun replied to FlourShopGirl's topic in Coping with Celiac Disease
Before being diagnosed and going gluten-free, I would have to run to the bathroom after eating. It got to the point where I was almost agoraphobic, it was horrible. In fact I didn't fly on a plane for about 8 years due to the fear I had of not making it to a bathroom. Now, if I get glutened it's more delayed and not quite as severe. -
ARCHIVED Happy Birthday Jerseyangel!
Morrisun replied to happygirl's topic in Introduce Yourself / Share Stuff
Happy Birthday!!!!! -
Have you tried the Chebe pizza crust mix?? That's my favorite so far, although I haven't tried a ton of different kinds.
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ARCHIVED Anxiety And Panic, When Does It Subside?
Morrisun replied to Blondie's topic in Coping with Celiac Disease
I had severe anxiety for years. Mine was centered around the fact that I was afraid of not being able to get to a bathroom in time. I was on different anxiety meds for many years. Once I was gluten-free and I stopped having diarrhea, the panic/anxiety slowly went away. It probably took for me about 3-4 months. I too haven't had another panic attack,... -
ARCHIVED Cushion's Disease And Celiac?
Morrisun replied to annapumpkin's topic in Related Issues & Disorders
Yeah I don't blame you! I had some of those symptoms and they finally determined I have PCOS, and my blood work ALWAYS comes back normal. Good luck on Monday! -
ARCHIVED Cushion's Disease And Celiac?
Morrisun replied to annapumpkin's topic in Related Issues & Disorders
Hmm...have you had any tests done like CT scan or anything like that? I think you should try to find someone who will do more testing, have they done any of these?? Open Original Shared Link -
ARCHIVED I'm Stunned....and I'm Angry!
Morrisun replied to Morrisun's topic in Gluten-Free Foods, Products, Shopping & Medications
You're right. I told the lady at the insurance company that I either get it gluten-free, or I don't take it at all. It's for PCOS, and it's not a medicine that will cause me to die if I don't take it, but still. I was surprised that Express Scripts was actually really good about it and told me it wouldn't be a problem at all if my Dr. did them mail order... -
ARCHIVED Hey What Do You Do To De-stress ?
Morrisun replied to thumper's topic in Coping with Celiac Disease
I like to take baths and listen to music....sounds totally corny huh?! LOL I also like to read, but my favorite is probably taking a long, hot, bath. -
ARCHIVED I'm Stunned....and I'm Angry!
Morrisun replied to Morrisun's topic in Gluten-Free Foods, Products, Shopping & Medications
I finally heard back from Actavis regarding Spironolactone. He said that it contains malt dextrose, and I don't know if he meant to say maltodextrin because he then said he could not tell where it came from, the US (corn based) or Europe (possibly wheat based). What would you guys do? I've decided to go with the brand name because I know that it is gluten... -
ARCHIVED Please Stop Hating Pharmacists
Morrisun replied to sammers1's topic in Gluten-Free Foods, Products, Shopping & Medications
I totally agree. I just asked my Dr. to switch one of my meds to brand because the generic manufacturer was so ignorant and rude. Pfizer, had the information right on their website. It shouldn't have to be that way though, you know? -
ARCHIVED Thyroid Nodules & Biopsy
Morrisun replied to horsegirl's topic in Related Issues & Disorders
I have a multi-nodular toxic goiter due to Grave's Disease, however I never had to have a biopsy. BUT....my sister-in-law had a nodule and had to undergo the FNA. She said she was nervous about it, but it wasn't as bad as she was expecting. Her's turned out to be benign and I don't think they even needed to do treatment on it. Sorry I can't be of more...