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AVR1962

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by AVR1962

  1. AVR1962
    I am sorry you had to go thru all that. When my doc thought parathyroidism my thought was 'finally a relief' but I was very confused when that it all of a suddent could not be especially reading all the literature on James Norma's site. Way back in those mega pages on his site he talks about this very thing with Celiac and in there says that calcium can go...
  2. AVR1962

    ARCHIVED Bone Pain

    AVR1962 replied to pondy's topic in Coping with Celiac Disease

    Do the muscles get real hard after you have exercised? I had this happening and someone here suggested Omega3, took it and I have kept with it. I wo get swelling in my hands and feet sometimes when I do my hour walks of an evening. I was relating it too much sodium in my diet and not enough water. The traveling pain sounds like nerve pain.
  3. AVR1962
    Itching can happen from several different things, some you have probably already tried as they are the most obvious but my question would be what is in your diet right now? I went thru an itchy spell not long ago. I was loading my diet with frsh garden produce, thinking it was best for me but the veggies I was were high in Salicylates which act an an anti...
  4. AVR1962
    I'm trying to put more magnesium into my diet naturally and bought some Tahini but have no clue how to use it. Any suggestions?
  5. AVR1962
    Yes, Celiac could explain the symptoms. The issues Celiacs have are due to a lack of absorbtion by the villa in the intestines. Most of us end up with vitamin and mineral deficeincies which cause our symptoms, primarily B12, magnesium, calcium, and vit D. I too really thought my MRI was going to come back and docs were going to say I had MS, I was fully prepared...
  6. AVR1962
    Marilyn, my doc also thought originally that I had hyperparathyroidism, my calcium levels were at 10.9, PTH 23 and I was a mess. I was tested for EVERYTHING, went thru all the endo testing (I have stones).....bone loss was found, etc. In the meantime I went on a gluten-free diet which was suggested by a family member. It took a little while but my calcium...
  7. AVR1962

    ARCHIVED Bone Pain

    AVR1962 replied to pondy's topic in Coping with Celiac Disease

    Are the lumps you mentioned hard like bone or soft? Hard bone lumps where you have described could be spurs and I have heard they can cause pain. That's basically when the body deposits calcium to parts of the body and builds a calcification in that spot. Do your fingers feel like they can't move sometimes and then when you squeeze a fist it sends you thru...
  8. AVR1962

    ARCHIVED Bone Pain

    AVR1962 replied to pondy's topic in Coping with Celiac Disease

    The pain I have had in my foot and in my hand is bone pain. The one I felt was nerve pain was the one that felt like the pain was shattering from elbow. In that situation I think I had too much pressure on the elbow joint, I tend to have problems with my nerves. Something I do get joint pain from is putting too much stress on the joint like carrying something...
  9. AVR1962
    It would be my guess you are not getting enough nutrients. Typically celiacs are low in areas of B12, magnesium, iron and D. You really have to receive enough of all of these, spend plenty of time in the sun to help your body absorb those nutrients and eat lots of healthy foods loaded with the vitamins and minerals your body needs. It took me several months...
  10. AVR1962
    Not a rediculous amount. I thought my doc was going to croack at my last appt when he saw what I was taking but he approved it, said it looked good and to keep doing it. I take less calcium, an iron supplement, potassium, and vit E & C, also B vits but other than that our supplementing looks very similiar. Right now I am trying to put healthier vitamin...
  11. AVR1962

    ARCHIVED Bone Pain

    AVR1962 replied to pondy's topic in Coping with Celiac Disease

    I have had bone pain in my left hand and foot, and then I had shooting pains radiate from my elbows, thought to have been nerve pain. For the bone pain I have found heat helps. I have hot packed my foot with wet towels, out it in a plastic bag and then put it under a blanket for a half hour and it does make a difference for me. Just placing my hand in hot...
  12. AVR1962
    Caroline, can you tell me what you use the V2000 for? Is that a multi vit?
  13. AVR1962
    It can be very frustrating and sometimes I look in the cupboard and think the same thing. Look at your options as far as foods you can eat. If your stoamch is a mess still look up a low acidic diet, is helping me immensely. The muscle issues are probably due to a lack of magnesium in your diet and if you cannot get that thru your foods I would suggest supplementing...
  14. AVR1962
    Thought I'd pass this on for those who are trying to add more nutrients into their diets. I found these charts every helpful: Open Original Shared Link Open Original Shared Link
  15. AVR1962
    I will get the same symptoms from high fructose.
  16. AVR1962
    Found this today in my searching and thought I would share, a whole 71 page book about Celiac, diet, etc. Open Original Shared Link
  17. AVR1962
    You are off gluten and dairy and still having D? Could you possibly be reacting to soy products, given your dairy and gluten free diet are tight? Keep this in mind about going back on glutens for testing. If you can do it, great! Having that diagnosis does help docs so they know what direction to turn with symptoms and the focus can be there rather than spending...
  18. AVR1962
    Wow! Migraines at 10, goodness I can't imagine. They are so awful. They are hard enough for adults. Glad you got the help!
  19. AVR1962
    It is a bit crazy isn't it. I sometimes feel that if I were pulled over for sobriety testing (the part that they make you walk) I would probably fail without drinking! I am 4 months into a gluten-free diet. Have made alot of mistakes and have had to do alot of reading. My balance is getting better but not all the way yet. I can actually wash my hair...
  20. AVR1962
    I was reading an article by Dr Oz that said that something like 80% of people are gluten intolerant and a majority do not even realize it. I see people now eating a burger on a bun and my thoughts are that they could very easily being killing themselves and are totally unaware. So yes, in that sense, we are the lucky ones!
  21. AVR1962
    So what did you do? The article only talks about going on a gluten-free diet. With time these issues are supposed to go away on the diet. The issues listed are the ones I have not been able to make better so far with my diet and supplements. I have been gluten-free since April.
  22. AVR1962
    Wow! We have all been thru so much. It feels good to be a with a group that knows what we each have had to deal with and I think it is so great that we are learning and getting the support from one another than is so needed. Srall, I think it is grat that you were able to identify with your child's needs and get her the help she needed, that is just...
  23. AVR1962
    I have had alot of vision problems.....double vision, vertigo, double vision and depth perception issues which have all left on a gluten-free diet and supplementing. The jumpy eyes don't follow a line whether it is reading or whatever. If I read I may have to go back 2 & 3 times and read the same line. I am a piano instructor who is constantly looking...
  24. AVR1962
    There's a few of my symptoms that have not cleared up from supplementation and changed diet, on of them being the jumpy eyesight. Anyone have this, and what helps it?
  25. AVR1962
    BBQ sauce is how I found out I had a problem with high fructose. If you find out that this BBQ you ate is gluten free it more than likely have high fructose which makes me feel the same as if I were glutened.
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