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kennedymoore

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by kennedymoore

  1. kennedymoore
    Tirosint is the only gluten free T4. I am a celiac and I take it without any problems. None of the other T4 compounds are gluten free - especially synthroid. Also, a compounding pharmacist can compound T4 and T3 for you with a Drs Rx.
  2. kennedymoore
    Hellopixies90, I just want to add that you can find comfort on this site by just having someone to talk to who cares about you and understands. Like so many celiacs I too don't trust doctors. It took me 12 years of seeing doctor after doctor and getting no relief. Even when I could not walk, had to close my business, could not drive, and was from a wheelchair...
  3. kennedymoore
    I have been trying for a while to make the connection between celiac disease, EBV, CMV, Parvo B19, Low Red Blood Count, Low Hemoglobin, Hematocrit, Low MPV. Bingo - there is a connection. With IV iron and the new oral iron EZfe my Hematologist got my ferritin to almost 300, total iron over 82. I still feel rotten and my hair is falling like crazy. I have...
  4. kennedymoore
    CVS Pharmacy 1. Pop Chips (2/$5) 2. Blue Bell Ice Cream (2/$3) 3. Haagen-Dazs: (3$10) Here is a list of HD that are not gluten-free. I found this posted earlier on this site. But as always double check. Haagen-Dazs: The only Ice cream and Ice cream snacks that contain Gluten are: Superpremuim ice cream: caramel cone chocolate chip cookie dough...
  5. kennedymoore
    I love this forum. I was getting my grocery list together, checking the sales and matching coupons when I saw BB on sale and thought.... I could have this around the house as a treat for me and my boys. Then I decided to double check in the celiac world to make sure no complaints. So, So glad I found this. I would have checked at the store but it helps to...
  6. kennedymoore
    I actually have celiac disease and I don't believe that the reaction to gluten is any different in celiacs than those who are non-celiac gluten intolerant. The obvious reaction to gluten is what most people focus on, however, because exposure can be "silent" you are still damaging your precious body. I would turn my entire kitchen and house gluten-free and...
  7. kennedymoore
    Thanks for posting that about BRM. I just purchased two of their products, one being the chocolate chip mix. I had already decided to return it because it contained soy. I have Hashimotos too and SOY is out for me. No one should consume soy unless it is fermented (my opinion). Now I am returning all of their products. Great tip!
  8. kennedymoore
    Sharon: I love this entry. You have an attitude of healing. The statement you made, "If it is as simple as modifying my diet, I can do that" should be given in bold letters by doctors to everyone diagnosed with celiac or gluten-intolerance with credit given to you. We are told by everyone how difficult giving up the food that hurts us will be...
  9. kennedymoore
    I read your post and could certainly identify with you. Thank you for trusting us enough to share your feelings. I know just having a place where you can say how you feel must have felt good. I often say that family friends get tried of us being sick because as far as they are concerned there is no end in sight. What they fail to realize is that good health...
  10. kennedymoore
    I've never heard of a dual Graves/Hashi Dx. I have Hashi. Besides hair loss I feel great. I attribute that to taking vitamin D3 and getting my iron issues resolved. My oncologist started me on EZFe iron supplement. It is incredible. I would suggest that you take a soy-free D3 (Premier Research Labs), soy-free Omega 3 (no omega 6 or 9), vitamin C.
  11. kennedymoore
    Are you using the premier research labs HCL and Activator? I see that you are on a low dose naltrexone- any success? I read about using it to improve immunity. What Dr. Rx'd it for you.
  12. kennedymoore
    So sorry to hear of your difficulty. Take a deep breath... you are going to get through this. I would suggest that you try doing a salt water flush. Open Original Shared Link Here is the link at the website Healthbeyoundhype.com. The salt cleanses the entire digestive system, something an enema won't do. Keep doing it until you get some relief. Aloe vera...
  13. kennedymoore
    Stick with the gluten free diet - it is the key to health. Focus on the gluten-free choices that do not come in a box or bag. You have the pick of the liter - fresh vegetables, fruit, grass-fed meats, seafood and the water you can stand. Go easy on the fruit the sugars exhaust our adrenal glands. You can do this.
  14. kennedymoore
    Sorry to hear that you have Hashimotos. I refer to mine as the DEVIL. However, you can live well with it, I am . Don't stress about it. Yes, that is easier said than done. Read the book by Dr. Datis Karrazhian. I have the ebook and will forward it to you if you like- just email me. Also, if you decide to go on a T4 replacement don't get on Synthroid...
  15. kennedymoore
    I am responding to your comment about Dr. Datis Kharrazian book. I read it and found it helpful. On my own I started a non-soy based vitamin D3 (Premier Research Labs D3 Serum) I take 5000 ius daily. It is in an olive oil base. I increased my vitamin C, tremendously, started taking LIPH to raise glutathione and SOD levels, I also take the Oxicell gluatathione...
  16. kennedymoore
    I too suffered with gallstones, acid reflux and heartburn. I was able to treat all of those issues naturally. A HIDA scan confirmed the gallstones, I opted not to have surgery for the gallstones and contacted my holistic practitioner and did a gallstone flush. You have to be strong and healthy to do one, so you will need some guidance. I passed the stones...
  17. kennedymoore
    There is a great list at Open Original Shared Link . The list contains allergen information for the top 8 allergens - wheat and soy included. Hope this helps. I personally don't eat soy. If you live in the USA you are most likely consuming non-fermented, GMO - (genetically modified organism) soy. Remember when you hear people talking about the health benefits...
  18. kennedymoore
    Just my opinion... something else we should consider about citric acid and maltodexrin is that often they are derived from gmo-corn. I would contact the manufacturer when you see it included in a product to make sure the source is a non-gmo source. That is if you can tolerate corn.
  19. kennedymoore
    Guys, I could not help it. I had to re-post this with corrections. Tonight was a big night in Louisiana for celiacs. Oh, yes it was. The state's first emotional healing support group for those living with celiac disease met tonight in Baton Rouge. This emotional healing celiac group was facilitated by Johnny Patout, LCSW. Spouses and family...
  20. kennedymoore
    8 people were there. I was reading my post today and must apologize for all those typos. I was just so excited. I think there should be international celiac emotional healing support groups accessible to us all. I will keep posting our results. We have to be the change that we want to see - I truly believe that. Those of us living with celiac disease...
  21. kennedymoore
    I ate at Jason's a few days ago. The manager said the gluten-free menu was online. I have not been able to find it yet. But he did let me use his list which details all of the allergy information for their products. I just got a salad and while getting some cheese I saw where someone had dropped two pieces of tuna pasta in the cheese. I know they can't avoid...
  22. kennedymoore
    Tonight was a big night in Louisiana for celiacs. Oh, yes it was. Tonight is a big night in Baton Rouge, Louisiana. The state's first emotional healing support group for those living with celiac disease met tonight in Baton Rouge. This emotional healing celiac group was facilitated by Johnny Patout, LCSW. Spouses and family members came to support their...
  23. kennedymoore

    ARCHIVED Frustrated With Drs

    kennedymoore replied to milkmommy's topic in Doctors

    Hi, just read your post tonight and you sound like me with the anemia. I have celiac disease, anemia, lupus and hashimotos. Please find a Dr. who will do what you need done. I am going to address the iron issue. Please, please find a good hematologist who will take care of your iron. Hashimotos and celiac will cause the low iron. As your gut heals the better...
  24. kennedymoore
    ...just sharing. Thought this might be of interest to those living in the affected areas. [b][u]Celiac alert: Whole Foods Recalls Marinades Due To Undeclared Wheat[/b] [/u][/b] Howard Portnoy Nutrition Examiner Examiner.Com August 16, 2011 Whole Foods Market has announced that it is recalling two beer-flavored marinades whose contents labels...
  25. kennedymoore
    There are two support groups in Baton Rouge, Louisiana an gluten intolerance support group (meets quarterly) and an emotional healing support group for celiacs (weekly Wednesday at 6pm in Baton Rouge). Both groups are free and open to the public. Each deal with different aspects of living with celiac disease. 1.Celiacs of Baton Rouge, a gluten intolerance...
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