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Latest Celiac Disease News & Research:
Everything posted by pricklypear1971
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ARCHIVED The Most Annoying Thing About Celiac Is...
pricklypear1971 replied to GFreeMO's topic in Coping with Celiac Disease
Ever considered lyIng at the hospital? I would. Geez, that's a lot of stress. -
ARCHIVED First Day Of Chemo Went Well
pricklypear1971 replied to bonnie blue's topic in Coping with Celiac Disease
So glad it went well. Cocktail hour always does, right? -
ARCHIVED What Are You Cooking For Thanksgiving?
pricklypear1971 replied to freeatlast's topic in Gluten-Free Recipes & Cooking Tips
I let mine sit out 1 day. I also make it ahead and freeze it...but am wondering if that's good or bad for gluten-free cornbread. I'm on the cornbread treadmill...more experimenting to come. Cornstarch is an excellent thickener. DOnt know about tapioca. -
ARCHIVED Ow- Cool Ranch Doritos Are My Nemesis
pricklypear1971 replied to saintmaybe's topic in Super Sensitive People
Uhm, if you have a skin problem you suspect is DH I'd be very wary of Rice Works. One of the worst "flashback" moments I've had is after eating a small bowl of them. Instant DH. Also had neuro issues but that happens with DH for me... They are loaded with salicylates, salt, food colorings...quite honestly one of the junkiest foods I've ever seen. But... -
ARCHIVED Can 24 Hrs Of Gluten-Free Make You Feel This Much Better?
pricklypear1971 replied to silveylane's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A week probably won't change blood work; however, no one really knows. Just get it done ASAP. And if you put him back in gluten and it starts again that's a good indicator it's gluten/wheat related. Don't give up! -
ARCHIVED Aversion To Gluten-Free Bread Since Pregnancy
pricklypear1971 replied to ursulinskaja's topic in Related Issues & Disorders
Omg I couldn't stand anything sweet the first trimester. I made biscuits and almost vomited at the first bite...they tasted sweet (1tbsp. sugar). It passed.... The only think sweet I wanted (and craved) was apples. Couldn't stand coffee, milk, bacon.... The only thing that stuck the full pregnancy was milk. Fat free was tolerable, but barely if... -
ARCHIVED Why Aren't Doctors Up To Speed?
pricklypear1971 replied to SarahJimMarcy's topic in Coping with Celiac Disease
Yes, one must remember the students are being instructed (and therefore their learning reflects that of their instructors). -
ARCHIVED What Are You Cooking For Thanksgiving?
pricklypear1971 replied to freeatlast's topic in Gluten-Free Recipes & Cooking Tips
Hmmmm..... Ham/cream cheese wrapped asparagus. Relish tray... Turducken roulade stuffed with cornbread dressing. Carrot souffle. Some sort of green beans....perhaps wrapped in bacon and baked??? Gravy (from chicken drippings since that roulade won't give up juice). Homemade, liquored up cranberry sauce. Perhaps Chebe rolls/bread sticks.... Chocolate... -
ARCHIVED Can 24 Hrs Of Gluten-Free Make You Feel This Much Better?
pricklypear1971 replied to silveylane's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It could relieve some, but probably not all. Could also be an allergy (which doesn't eliminate Celiac, but allergies are fast-acting and fast-going, generally). -
ARCHIVED Fruit And Vegetables
pricklypear1971 replied to BakingQueen's topic in Super Sensitive People
Ooh, valley fever can be BAD. Lethal, actually. Ironic how most people are asymptomatic, but it really hurts others. -
ARCHIVED The Obligatory "is This Dh?" Post.
pricklypear1971 replied to saintmaybe's topic in Dermatitis Herpetiformis
Have fun. Yeah...if it acts like DH it probably is. That's the only consistency I've found in the zillions of posts compared to the scanty and repetitive info I've found. -
ARCHIVED You Might Be Celiac If.......
pricklypear1971 replied to AVR1962's topic in Introduce Yourself / Share Stuff
Love it! Laughed out loud at the "if I take a sip of your soda will I catch your "bread thing"..... I'd like to add that you may be Celiac if you watch what people eat and think "you're NUTS!". -
See the description for the last eczema type: Open Original Shared Link Perhaps this is what the derm thinks it is? If s/he won't biopsy (to see if it's DH) there's really not much else to do but try to relieve symptoms. It's incredibly frustrating, I know. Whether mine is DH or eczema or little aliens in my skin....gluten withdrawal seems to solve...
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ARCHIVED Fruit And Vegetables
pricklypear1971 replied to BakingQueen's topic in Super Sensitive People
Perhaps. Pits and grow lights? Many veggies can be grown in pots - tomatoes, potatoes, herbs, peppers.... Apples can be kept in a cellar for a while after harvest.... Find a local permaculture group. -
ARCHIVED You Might Be Celiac If.......
pricklypear1971 replied to AVR1962's topic in Introduce Yourself / Share Stuff
If you can stand in the middle of a candy store and not be tempted to taste even one piece for fear of spending a week trying to detox....you might be a Celiac. Btw the top shelf liquor one is sooo true! -
ARCHIVED Fruit And Vegetables
pricklypear1971 replied to BakingQueen's topic in Super Sensitive People
Bell peppers - tag but nothing about wax, just a bar code and producer name. Clementines - ON BOTTOM of box but no tag on bag in box. Cherry tomatoes - no wax info and in little plastic container packed by grower. Not super shiny. Organic apples - no wax info, but they aren't super shiny. In bag from grower. Just what I had on hand... -
ARCHIVED Recently Diagnosed, Looking For Hope/help
pricklypear1971 replied to lesquee's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Try probiotics and digestive enzymes ( gluten free, of course!). I use pb8 (but I think it has milk), and Digest Gold (don't know about the milk). Both help a lot in the beginning, especially. -
ARCHIVED Fruit And Vegetables
pricklypear1971 replied to BakingQueen's topic in Super Sensitive People
I never see signs saying produce has been waxed...when it obviously has been. The only time I've seen it is on a bag (packed by grower) - said "resin". -
ARCHIVED Fruit And Vegetables
pricklypear1971 replied to BakingQueen's topic in Super Sensitive People
I've seen it said "food grade wax". Beyond that it's tough to nail down. Perhaps if you call the grower? Maybe Stephanie knows... I did see organic apples at TJ's labeled as having a coating. -
ARCHIVED Touching Flour Now Breaks Me Out
pricklypear1971 replied to Macbre's topic in Coping with Celiac Disease
I'd make them fix it somewhere else if you're reacting to gluten like that....kids aren't exactly neat and clean chefs and flour FLIES through the air.... -
ARCHIVED Fruit And Vegetables
pricklypear1971 replied to BakingQueen's topic in Super Sensitive People
I have no idea why or how but it's common knowledge that companion planting influences tastes of fruit/veggie producing plants. I'd have to dig out all of my stuff (which I'm not gonna do) but certain produce is more negatively affected than others (and certain plants are more guilty of causing it than others). It's also very likely that "stuff" sticks... -
ARCHIVED Help From Fellow Celiacs!
pricklypear1971 replied to ShaelaRuns's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Uhm, yeah! I'd get my hands on the negative Celiac blood tests - all of those tests, actually. If you aren't Celiac, you could be gluten intolerant-same cure...no gluten! Good luck and hope it goes well. -
ARCHIVED Celiac....or Ulcers....
pricklypear1971 replied to kaki-clam's topic in Coping with Celiac Disease
Perhaps it would be a good idea to get a copy of the biopsy lab report and any associated comments, notes? Never know what they say.... Many people need probiotics/enzymes in addition to a gluten-free diet to get their system working again. I can't believe they didn't address your C earlier. Ugh! -
ARCHIVED Celiac....or Ulcers....
pricklypear1971 replied to kaki-clam's topic in Coping with Celiac Disease
It's a super-duper probiotic. It's not unusual for people with digestive issues to benefit from probiotics and digestive enzymes. I'd definitely give it a long trial ( 3-4 months) then get another endoscopy. I'm glad it's working for you. C is literally a pain in the butt! The question is why do you have the "ulcers"? -
ARCHIVED Touching Flour Now Breaks Me Out
pricklypear1971 replied to Macbre's topic in Coping with Celiac Disease
Yes, it can happen. Wheat Germ Oil does it to me...in cosmetics, shampoos. I've had a few "WTF, you've gotta be kiddin' me" moments in the last 5 months. I particularly loved my eyes swelling after applying eye cream.