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Latest Celiac Disease News & Research:
Everything posted by pricklypear1971
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ARCHIVED Crohns Vs. Celiac
pricklypear1971 replied to Stubborn red head's topic in Related Issues & Disorders
DH accomplishes the same thing. Although, there were a few days I wondered how life was gonna work out, pre DH...with the belly aches, etc. Yeah. All-over blisters make you reevaluate the importance of a baguette. I agree. They just aren't sick enough yet (from their perspective). -
ARCHIVED Symptoms Worsen?
pricklypear1971 replied to sallyalewis's topic in Coping with Celiac Disease
No one is really sure, but the idea is that pre gluten-free your immune system was busy attacking alot of tissues, and lots of gluten. Then it gets a break and comes back energized and ready to make you feel like total crap when you get into gluten. Mine is a terrible version of the idea, but it gets the point across. Or, as some people put it - your... -
Yum. Please come make it for me?? I planted okra one summer. I had trees. It was fabulous!!
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ARCHIVED Symptoms Worsen?
pricklypear1971 replied to sallyalewis's topic in Coping with Celiac Disease
Yep. -
ARCHIVED Help! Please!
pricklypear1971 replied to CeliacFashionista's topic in Dermatitis Herpetiformis
Cougie, do you really want one of us to tell you about your little red pinpricks? Because we'll tell you to start reading the DH forum...and point out things like iodine and sals.... And let's not get started on Dads. Yours, mine, and a few others are on a slow boat down DeNile (rashes and all). -
ARCHIVED Need Help.
pricklypear1971 replied to TomC's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sorry, I missed this. Gluten is a protein found in some grains: wheat, barley, rye, etc. Oats are glutened by association - processing, so don't eat them unless they are certified gluten-free. If a product is marked "contains:wheat" it contains gluten. You don't know if it contains other glutenous grains like barley unless you read the rest of the... -
ARCHIVED Need Help.
pricklypear1971 replied to TomC's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Noooo!! Sorry, dang auto spell!!! They are NOT unusual. I got glutened and felt like I'd been caned. Happens alot to people. -
Keep eating gluten for your Celiac panel!!! And make sure they give you all the tests - page 1 and 2. Insist on it. Open Original Shared Link And I'd still get the lab report. Yes, there's a connection between gallbladder disease and Celiac. Your doctor is an idiot, btw.
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ARCHIVED Need Help.
pricklypear1971 replied to TomC's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Unless they scope you now for Celiac it's rather pointless since the antibodies fall quickly on the gluten-free diet. You say one blood test. Just one? Do you mean one draw, several tests? If they didn't run more than one you didn't get a Celiac "panel". I suggest getting a copy of the results. Here is a listing of Celiac tests - ask for all of them on... -
ARCHIVED Need Help.
pricklypear1971 replied to TomC's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, if you got a full Celiac panel run and you were on a glutenous diet, and we're negative but feel better off gluten then there's a high probability you have a gluten problem . Yes, there could have been false negatives, or you could be iga deficient, or they could have not run all the tests... But what you're describing is a classic gluten... -
The What's For Dinner Tonight Chat
pricklypear1971 replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Just take it slow and add whiskey or bourbon. Or skip the caramel and go straight to the whiskey or bourbon... -
Get the lab report and see ifctgey biopsied you or just looked. Did they run a Celiac blood panel? If you go gluten-free now you can't undergo Celisc testing. Let's figure out if the testing has been done yet (if you can stand staying on gluten).
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I don't like hugging. It's reserved only for specific people at specific times but I'm weird that way. Half my family hugs and kisses left and right and they always laugh at my expression and explain I have to do it. It's about personal space for me. I don't like to be touched. And yes, I'm from the U.S.. Southern U.S. Oddly enough it...
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ARCHIVED Injured Area Where Have Dh?
pricklypear1971 replied to Metoo's topic in Dermatitis Herpetiformis
I think fingers must be one of the worst spots to heal. I got a spot after the flu. It goes down, then if I wash dishes or do alot of food chopping it flares back up..each time getting more and more dh'ish. Try wearing rubber dish gloves and those food service gloves while cooking. Also, I out a band-aid on it and that helps, with a moisturizer. I... -
ARCHIVED Problems With Cinnamon Chex Gluten Free Cereal
pricklypear1971 replied to Kelsmom's topic in Parents, Friends and Loved Ones of Celiacs
Some people will say its gluten in those foods. Personally, I vote for the level of "processedness" and preservatives. Many people have problems with processed gluten-free foods, especially in the beginning. My guess, at this point, is that the health-food-store stuff contains less volume of or less offensive " junk". -
ARCHIVED Lactose And Casein ...
pricklypear1971 replied to Annie June's topic in Food Intolerance & Leaky Gut
Lactose is a milk sugar. Casein is a milk protein. Lactaid helps replace the enzyme you'd be lacking to digest lactose. Casein is a part of milk, and so far they don't make a pill/workaround. Yes, if you only have a problem with lactose (and lactaid helps) you can take a pill and eat dairy products. If its casein you have to avoid milk products... -
ARCHIVED Help! Please!
pricklypear1971 replied to CeliacFashionista's topic in Dermatitis Herpetiformis
I'm sorry you're going through this. DH is awful. I remember you were headed to a doctor a while ago-was the pred the result of that visit? Did you discuss dapsone? What did the doctor say? You say the low iodine diet us helping but you're still flaring. That is unfortunately, normal, for quite a few people. Have you thought about salicylates? There... -
ARCHIVED Fructose Malabsorption
pricklypear1971 replied to jessthirtytwo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, people go on low/no fructose diets. Have you tried digestive enzymes with meals? It maybe a stage of healing you're going through (I went through a gassy/bloaty phase). -
ARCHIVED Doctor Is (Pretty Much) Stumped. Need 2Nd Opinion!
pricklypear1971 replied to kwylee's topic in Coping with Celiac Disease
Yo. My ND put me on estrogen/progesterone bio identicals and I have been "imagining" a dry tongue!! It never clicked til you mentioned it. Also, I think it's the estrogen component for me. Progesterone didn't do it to me. I stopped using it a few days ago but noticed dry tongue alot today. I chalked it up to the unseasonable heat. But yo!!! -
I'd suspect the other grains or another food intolerance before worrying about wax coatings. Also, if she's in school (not home schooled) I've seen quite a bit lately about kids getting cc'd at school. Worth a thought. I wash my veggies/fruits down because I'm nervous nelly about salmonella, germs, etc. I'm not OCD (seriously) but the thought of all...
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ARCHIVED Crohns Vs. Celiac
pricklypear1971 replied to Stubborn red head's topic in Related Issues & Disorders
I hear that crohns patients should be on an anti-inflammatory diet - which excludes gluten (and all grains, I think). I don't see the correlation of Celiac very often. -
ARCHIVED Toddler- Undiagnosed But Suffering
pricklypear1971 replied to Ayla'sMama's topic in Parents, Friends and Loved Ones of Celiacs
Wow. Sounds familiar. Our son had what we assumed was milk protein intolerance, so he was on Nutrimiagen and breastmilk and I was mf and soy free because he seemed to have a problem with soy formula too. I was pumping - he wouldn't nurse but did do much better on breastmilk if I was df. That was a long 8 months - I couldn't do it anymore. Mastitis, yeast... -
ARCHIVED Crohns Vs. Celiac
pricklypear1971 replied to Stubborn red head's topic in Related Issues & Disorders
I have a cousin with Crohn's and while I haven't talked with her about Celiac and gluten-free I have talked with her sister who has gallbladder disease and "other issues". I know the Crohns cousin is not gluten-free. I mentioned there's quite a bit of overlap and my cousin didn't know that. It seems the crohns community is not very aware of the correlation... -
Try this, Open Original Shared Link Get on Pinterest! Lots of ideas. Pm me if you need an invite.
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ARCHIVED I Need To Complain!
pricklypear1971 replied to Littllemel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, I don't know a thing about what she said except I will agree that steroids can mess you up on a psychodellic level. Been there, done that. I hope it helps.