Jump to content

Kamma

Advanced Members
 View Profile  See their activity

  • Posts

    195

  • Joined

  • Last visited

  • Days Won

    1

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Kamma

  1. Kamma
    Amen!
  2. Kamma
    Hello Gatita, I hope your brother responds to going gluten free. It would be great news if this is what is causing his ataxia and you can eliminate the cause (as opposed to it be idiopathic.) Keep us posted on how he makes out. Kind regards.
  3. Kamma
    Would the sensitivity be to the avenin protein in the oat cover crop? It's my understanding that the avenin shares similarities with the gliadin proteins of wheat. Coeliac Australia advises that: "Gluten is the name given to the protein in wheat, rye, barley and oats that affect people with coeliac disease. It is a composite name representing...
  4. Kamma
    Yeah, I could see that. Pulling a draft beer there's always some spillage and it's totally conceivable that some could have spilled on the ice. Thanks for the tip, dilettantesteph.
  5. Kamma

    ARCHIVED Legumes

    Kamma replied to cavernio's topic in Super Sensitive People

    Good point. To clarify: the washing is effective on removing the pesticides that are on the surface of the plant and not in the pesticides that have been incorporated into the plant while it was growing.
  6. Kamma

    ARCHIVED Legumes

    Kamma replied to cavernio's topic in Super Sensitive People

    Soap is an excellent cleanser because of its ability to act as an emulsifying agent. An emulsifier is capable of dispersing one liquid into another immiscible liquid. This means that while oil (which attracts dirt) doesn't naturally mix with water, soap can suspend oil/dirt in such a way that it can be removed more efficiently than using just water. It...
  7. Kamma
    Ciel, Eating whole foods is the best way to go. Fruit, vegetables, meat. I stay away from grains as well because of the cross contamination. In the beginning it is difficult but the better you feel, the more momentum and motivation you have to stay on the path. The real confirmation that you're doing the right thing is when you accidentally ingest...
  8. Kamma
    M. Hadjiivasilliou is doing clinical trials on the ttg6 blood test. He just released confirmation of a recent study that pointed that ttg 6 antibody response can be used as a marker in gluten ataxia. It will takes some time for the test to make it it to the mainstream. He's been working on this test for the last couple of years so perhaps it will be ready...
  9. Kamma
    Thank you, Peter. I will continue to post in both places. I'm sure you would agree that factual information based on credible and up to date research is valuable to all who read on here so they can make informed decisions no matter what level of sensitivity they are.
  10. Kamma
    I'm sorry, Peter. I'm unclear as to the direction you are taking. Are you contesting that some sensitives such as myself would not react to glucose syrup? In spite of first hand experience with it and recent studies that do back up sensitivity to parts lower than 20 ppm? For practical purposes for sensitives, glucose derived from wheat is technically...
  11. Kamma
    I think for many glucose syrup is safe but for the ones that are sensitive, it could cause an issue. For example, Cadbury has listed their glucose syrup as 'having trace amounts of gluten' - below 10 ppm.. "TRACE AMOUNTS OF GLUTEN: Contains less than 20 mg/kg GLUTEN - (source is generally Wheat Glucose Syrup where the level of Gluten is below 10mg /...
  12. Kamma
    One of the tell tale signs is the shrinking of the cerebellum in the brain. This will show up on an MRI. Some people have extensive damage that it will show up others don't have enough to show the shrinkage. Another thing is the current blood tests only test for the skin and intestinal manifestations of gluten intolerance and they will not not catch the...
  13. Kamma
    That's fantastic that he was able to preserve 80% of the pituitary. Seriously, you must be ecstatic about that. Glad you came out of this relatively okay. The black eyes will fade and the nose will grow back (somehow that sounds like Pinochio) and you'll move onwards to a more fulfilling life sans the pain and wacked out hormonal stuff.
  14. Kamma
    Pleased to meet you, yolo. Thanks for sharing your story. I was wondering if you could speak more about how gluten affects your kidneys. I have tested positive four times in the last two years for protein in my urine.
  15. Kamma
    In terms of soy bean flour I would proceed with caution as a fairly recent study showed cross contamination in various inherently gluten free grains. Especially in the milled flour products of these grains. Some flours tested above 20 ppm gluten and in one soy flour example, it tested in excess of 2000 ppm gluten. Here is the abstract of the study here...
  16. Kamma
    Well, you can roast a chicken breast or fish fillet in the oven. Simple stuff and fairly cheap. Potatoes you can slice up and boil or throw the entire potato in the oven to bake or put it in the microwave. Rice is easy - 1 cup rice to two cups water bring to a boil and then turn down to simmer for either 15 minutes (white rice) or 45 minutes (brown...
  17. Kamma
    Yup, I'd be freaking out too. Which procedure are they going to use?
  18. Kamma
    It might be wise to add an addendum: A recent study found gluten contamination in inherently gluten free grains including sorhgum. The study found levels of gluten in sorghum flour samples in excess of the 20 ppm as well as some other gluten free grains. Milled flour tended to be more contaminated than whole grains. The abstract is here: Open Original...
  19. Kamma
    Hello Jiggles, You've had quite the journey to get to where you now are. I'm glad you're finally feeling better and more able to join in your kids and husband's life. Being stuck running to the bathroom and the consequence of isolation because of it is a horrible thing to bear. I can't speak to what your testing means - I'll let someone else who...
  20. Kamma
    It takes a while for the antibodies to leave your system. For example, AGA antibodies have a half life of 120 days. So even if you stopped all gluten now, the antibodies would still be circulating your system full on for almost half a year. Hadjivissilliou seen the most improvements after one year. That's of course if you can keep the trace gluten out...
  21. Kamma
    clevercate, that it is absolutely wonderful that you are responding! Especially after so long of just 'suffering through things and being told not not worry about it. Arrrrgh, doctors make me so mad sometimes. I'm not surprized you would test negative on the blood test. Hadjivassilliou's research shows less then 30% of gluten ataxia patients will...
  22. Kamma
    Hello Leis, Glad you found that helpful. I wondered, after I wrote it, if I wasn't coming across too strong with it. I've found it's good to keep an open mind but also essential to have a good working knowledge so you're able to sift through what you're hearing/reading with some discrepancy. There's lots of people selling wonder cures which is great...
  23. Kamma
    You can have what is termed 'gluten sensitivity' in which you have identical symptoms as celiac but the current testing will not capture it. They believe the innate immune system is responsible and not adaptive immune system (which is what is coming into play with celiac). They are currently trying to develop a test for it. The treatment for gluten...
  24. Kamma
    Yes, Peter, which is why I am boggled. The information that I used is from the current G of C, Inspection Agency web page of "Guidelines for Commerically Imported Food". I have just sent an email to Canada Food Inspection Agency asking them to clarify this apparent discrepancy. I will post the answer when I receive it.
  25. Kamma
    Yes, mushroom. I find this glaring omission in Canada's Food Importing guidelines to be disturbing. To not require the listing of but 'recommend and encourage' listing of food allergens as well ignore barley and rye food sources is totally at odds with what we require of domestic food producers. I am a bit boggled by this. My understanding is that...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.