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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    She was really being the calm, confident leader right? Cesar needs to train her.
  2. squirmingitch
    Puts a whole new light on things doesn't it? And I have since found several references to that work in med publications since year 2000 & they quote from the original 1916 paper. Now WHY don't doctors see those & USE them??????
  3. squirmingitch
    This dog knows what he wants Open Original Shared Link
  4. squirmingitch
    ((((BIG HUGGIES)))))
  5. squirmingitch
    If you can stay away from condiments all the better! Mayo has dairy & often soy unless you get Hellman's Canola Oil mayo but it will still have some dairy & further it IS a processed food. If you can't live w/o it then use it very sparingly. For the fats --- you need those to help process protein. You can stir fry in canola, or olive oil. Use olive...
  6. squirmingitch
    Nora, can you please provide a link for your last statement? The question has come up several times lately & with ppl arguing that it is not necessary to consume that much gluten for that long so it would be nice to be able to provide documentation as to how much the recommendation is. Also would be good to give newbies so they can take "official" recommendations...
  7. squirmingitch
    Razzle gal, IMHO Ravenwood makes a lot of sense. I had been on Dexamethasone when i was misdiagnosed as hives for my dh. THEN, later I got an epidural in my spine & the doc gave me Dexamethasone (Dex). Effed me up real good! He didn't tell me he was going to use Dex or I would have told him to back off Jack! Anyhow, even when I was on the dex pills...
  8. squirmingitch
    AND cleiacs with dh tend to test neg. on the celiac panel blood work PLUS if you get an endoscopy the damage is generally much patchier than with non dh celiacs. Sooooo simply put --- DH is a BEAR!
  9. squirmingitch
    Oh, and Ctrain, if you want to get a biopsy of the dh then if you have been using topical steroid creams or taking steroid pills anytime 2 moths prior to the biopsy then the biopsy will turn up negative.
  10. squirmingitch
    Abby, not stupid questions at all. Short answer: YES, dh can come & go even when you're eating gluten. Mine came & went before I knew what it was & while I was eating gluten --- for years. I believe my mom had it too. She used to get places in her scalp that I NOW know were dh b/c I get the SAME thing & they are dh. DH can come & go gluten...
  11. squirmingitch
    And you have to have been ingesting gluten for at least 2 months at the rate of the equivalent of 4 slices of bread per day EVEN for a biopsy of the rash for testing for dh. Even then there is a 37% false negative rate on the biopsy.
  12. squirmingitch
    LOL!
  13. squirmingitch
    I have dh & I wouldn't gluten myself to win the freaking lottery! I have zero desire to suffer for years more of dh flares for a million dollars. Just IMHO. (And I've been poor all my life)
  14. squirmingitch
    I am self diagnosed but I have no children to consider in the mix. I have Dermatitis Herpetiformis. I had suffered so long with the insane itching that the very moment I figured out what it was & found this board & further confirmed in my own mind what it was I went gluten free. I knew the chances of getting a positive celiac panel for those of us...
  15. squirmingitch
    These first 4 are from Sept. 2011 when I was on the verge of discovering this was dh. This 1 shows the clear amber fluid. The blisters were coming up so fast & bursting all by themselves. The following ones are after 6 months gluten free & several months low salicylate & not a lot of iodine but I had been doing so well that I couldn...
  16. squirmingitch
    I've had that same thought myself eatmeat. Hmmmmm...... Both of you might find this very interesting too if you haven't already read it. Read the entire thread & be sure to read the links. https://www.celiac.com/forums/topic/84513-descriptions-of-dh-types/
  17. squirmingitch
    To the OP, Dapsone is some serious stuff! And it does not "cure" dh, it makes dh not itch & the lesions, blisters, "bites" what ever you want to call them will not appear but the only thing that cures dh is going gluten free. Think & research before you go the Dapsone route. I will not say I haven't thought of it myself at times but it's a drug I...
  18. squirmingitch
    Sounds like chicken fried steak to me! What time should we arrive?
  19. squirmingitch
    Get a copy of the test results & the ref. ranges & post them here when you do if there is any doubt or the doc gives you grief. There are ppl here very well versed in interpreting the tests.
  20. squirmingitch
    I couldn't have said it better than eatmeat has. I have had water blisters from the very beginning. Mine have gone down with gluten-free diet to what you & eatmeat describe to the raised flesh colored or pink colored bumps, hive-like, mosquito-bite-like except when they get the scab they will often flare with red raised areas around. I still get some...
  21. squirmingitch
    You're good to go emilyjoan! Be very happy you found a doc who knows what they are doing & recognizes symptoms of celiac when they hear them. I think you can trust the doc to do iron levels when she deems it's needed. But it won't hurt to gently remind her. ;-) Go on, be happy! Be very careful not to get cross contaminated & keep feeling great...
  22. squirmingitch
    I agree with bartful in that your symptoms sound like celiac. And get that flunking the glucose test straightened out with your doctor & make him/her tell you exactly what that means & what you are to do about it. And if the doc isn't forthcoming enough then get a new doc! You should get tested for celiac. Make sure they do the FULL celiac panel...
  23. squirmingitch
    I'm glad I could give you a laugh Marilyn. Laughter really is the best medicine. Gunkie, I do want to caution you about going gluten free BEFORE you get any celiac testing done. DO NOT go gluten free OR gluten light. Not until ALL testing is done including an endoscopy OR a biopsy for dh (Dermatitis Herpetiformis). You must be eating gluten for all the...
  24. squirmingitch
    YAY Roxie! Onward & upward from here on out. Wow, you sure are feeling chipper aren't you? Your endo was today wasn't it? And you're already home & feeling like being on the computer! Good for you. Now, don't go hog wild on gluten-free processed foods yet. Try to stick to whole foods as much as possible for about 3 months. To take to work? How...
  25. squirmingitch
    Okay, calm down. You're in panic mode right now. Take a breath. Breathe. #1 --- DO NOT, that is DO NOT stop eating gluten!!!!!!! I can not stress this enough! You MUST be eating the equivalent of 4 slices of bread per day all the way through until ALL testing is finished & that includes an endoscopy! Do not go gluten light. Do not go gluten free...
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