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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    Just a reminder to remain eating gluten until the test is done or you risk scotching it. And IMHO it might not be a bad idea to keep the appt. @ the celiac center if you really want a firm dx. They may decide to retest you & even do another endoscopy so keep eating gluten.
  2. squirmingitch
    I have an intolerance to soy & avoid it completely. The only exception was my mayo & I used it very sparingly until I found Hellman's aka Best Foods has a canola oil mayo with no soy. YAY! Can't help you with the marinade question --- I never liked soy based marinade. I do like to marinate chicken (cut up) in wine vinegar, olive oil, & spices...
  3. squirmingitch
    I like the way you termed that rosetapper --- gluten lights the fire & iodine lets it continuously burn. How true. For low iodine diet: Open Original Shared Link and sometimes we also have to remove salicylates but we'll cross that bridge if & when we come to it.
  4. squirmingitch
    No, but I found the movie "The Man Who Sued God" to be absolutely hilarious.
  5. squirmingitch
    So the gene tests say what you are NOT but fail to say what genes you DO have. Right? And I'm copying & pasting here from another thread: https://www.celiac.com/forums/topic/93450-please-help-me-interpret-my-4-yr-olds-celiac-panel-results/page__pid__802152#entry802152 This information is straight out of the book "Living Gluten-Free for Dummies...
  6. squirmingitch
    Wait a minute. The op said in the dh forum that she had the rash with blisters just like the photos she saw of mine. I think she's celiac.
  7. squirmingitch
    I do have dh & dh IS a diagnosis of celiac. And like bartful says; if she's 95% gluten-free that won't get it. She needs to be 100% gluten-free forever! And even though the rash has improved for now that doesn't mean it will stay improved. DH can come & go --- eating gluten or not eating gluten but the longer she waits to go gluten-free 100% the more...
  8. squirmingitch
    I love that they pointed this out! "Biopsy rates were also lower among older patients, African-Americans, and Hispanics. Dr. Green added,
  9. squirmingitch
    And Sunny, take culturelle or some kind of gluten-free probiotics. I wasn't where you or IH were & I still know it when I've forgotten to take my culturelle. Hits me between breakfast & lunch & then I say Oops! Forgot my culturelle. And in the last year, year & 1/2 before I figured it all out I had that nausea, indigestion thing going on...
  10. squirmingitch
    Welcome to the board sickdaddy! And perhaps you can print out some excerpts from this thread as well as other threads you read & let your family read them; perhaps it will help them to understand & take this seriously.
  11. squirmingitch
    You mentioned gluten-free corn flakes. If you are already gluten-free or if you were gluten-free or gluten light prior to the blood work OR the endoscopy then that can skew both tests to negative.
  12. squirmingitch
    It may not be food related at all either. My hubs gets literally "plugs" of wax that the nurse or doc has to pluck out with a tool like tweezers. The plug actually makes a loud sound when it hits the metal catch pan. He never gets anything out of his ears when he cleans them; it's like his wax is so hard it never runs. Sorry to be so detailed but..... When...
  13. squirmingitch
    Have fun at the races Marilyn. Watch that sun though!
  14. squirmingitch
    We were slated to be 95 today but we topped out at 89.3 around 4 pm with 45% humidity & a nice breeze. It was quite comfortable under the shade of old Live Oak trees. Tomorrow were supposed to be 99. I hope not.
  15. squirmingitch
    This is an interesting sight --- check it out for ingredients Razzle Open Original Shared Link
  16. squirmingitch
    I never took photos of it at it's worst before I went gluten-free except those few on my neck. I could not stand to look at myself. I certainly couldn't see why I would want photos of the horror hanging around. Now I wish I had. Might be good proof to a derm one day. Hindsight 20/20. I certainly hope your never comes back again! NEVER!
  17. squirmingitch
    Oh yeah. Same old story. And if one is skinny you have an eating disorder not celiac. And if one is overweight you have an eating disorder not celiac.
  18. squirmingitch
    Aw what do they know? A billion times docs have said that to ppl here. You're lucky the doc didn't say it's all in your head; you need some anit-depressants. If they can't fix it with a pill or surgery they aren't interested. Actually had a doc tell me & hubs once, "There has to be a carrot at the end of the day." ---- Yeah, works both ways jerk...
  19. squirmingitch
    I knew IH had all that burning stuff --- YUK! That's why I asked her to talk to you. Celiac almost killed her but she's healing & feeling a whole lot better. I've read many times ppl on here saying they get that throat thing too. We're here for you. You can ask questions, moan, groan, whine & vent or anything in between! We get it.
  20. squirmingitch
    I've heard a number of ppl on this board who got too sick to work. And the antacid stuff --- sort of a hard call to make --- lots of celiacs actually have TOO LITTLE acid which is the opposite of acid indigestion but gives the same type effect. Let me see if I can get a couple of the more experienced ppl on here to help you with that.
  21. squirmingitch
    Money grubbers.
  22. squirmingitch
    Yup. Normal. We tell ppl to eat only whole foods for at least the first 3 months. Several reasons. 1) give the gut time to heal 2) gives you time to learn what foods have gluten & learn how to shop w/o being overwhelmed all at once 3) keeps you from getting glutened right off the bat. Most celiacs can't tolerate dairy for a while. Many get it back later...
  23. squirmingitch
    The time line varies from individual to individual. Sorry, just can't put a # of days on it. But all in all I'm going to say you should begin to get some relief soon. But there will likely be ups & downs. Good days & bad days. I have dh & not really the GI issues so I really can't give you any advice on what to take for the stomach rumbling...
  24. squirmingitch
    I agree!
  25. squirmingitch
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