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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    But they left out the Deamidated Gliadin Peptide (DGP) IgA and IgG test which as I understand it is specific for celiac disease & that's why it was recently added to the full panel & is supposed to be more spot on. Someone correct me if I'm wrong about that please.
  2. squirmingitch
    Carolyn, I'm still learning myself. And since I have dh (the skin rash of celiac) I have a bit of a different situation & since I'm gluten-free & NOT ABOUT to gluten myself for testing then some things I am not proficient in --- such as interpreting your test results. But there are those on here who are amazingly knowledgeable so we will get them...
  3. squirmingitch
    You can never tell which products use iodized salt unless you check so I have been doing some research today on that subject. My dh is sensitive to iodine and we are about to try the hubs on low iodine to see if his will calm down more. Frito Lay gluten-free products: I spoke with Page & she tells me Frito Lay uses non iodized salt in all their snacks...
  4. squirmingitch
    I agree. Too much processed food & soy. Soy kills me. Take it all the way down to very simple stuff & those salads --- use your own oil & vinegar. Salad dressings, even gluten-free ones are generally heavily dependent on soy. Better to simply use wine vinegar & olive oil. Check the ingredients on the almond milk too. It might have soy in there...
  5. squirmingitch
    I think if I had my cast iron dutch oven everything would turn out better. I know exactly when the oil is the perfect temp.; been doing it so long it's second nature to me. UGH! When we get those things out of storage I'm going to have to go through a process to de-gluten them & then re-season them.
  6. squirmingitch
    Have you been tested for the anemia since? And did it resolve? When were you last tested for anemia? MAKE SURE YOU DO NOT GO GLUTEN FREE UNTIL ALL TESTING HAS BEEN COMPLETED!!!!!!! I can not stress the importance of this strong enough. There are enough false negatives as it stands. You want the best chance so keep eating gluten. Also, it would be helpful...
  7. squirmingitch
    Carolyn, it certainly sounds possible. I'm curious as to why they did a celiac test on you 8 years ago? Were you having problems then? I think I would try calling the doc who decided to test you for celiac previously.
  8. squirmingitch
    I find it very interesting also that according to her the lab says : "However, since the biopsy was not entirely negative, they suggested further testing. They said they have seen cases where there was a family history of DH and family members had fluctuating levels of IgA in skin dependent on consumption of gluten products." During my time on this...
  9. squirmingitch
    What a riot Razzle! I love your sense of humor. Just make mine say what yours does --- it's perfect.
  10. squirmingitch
    Well Dani, if that's what yours looks like then there isn't any doubt in my mind about it. Not that there was anyway with all the other info. I know about you.
  11. squirmingitch
    Yes, I agree that the letter is MOL a confirmation. She, of course, doesn't want to say that but we know she is a god & gods are never wrong nor do they apologize. I forgot about your mom being celiac. Now I remember your story. I would think that any Dr. worth their salt would dx based on everything else as Aerial said. I don't know why your PCP wouldn...
  12. squirmingitch
    Hi Laura. Yes, you would need to be back on gluten to do the tests & you would need to be on it for a bare min. of 2 months @ 3 or 4 slices of bread per day. YUK!!!!!! Really considerate of her to tell you that little piece of info also right? Tells you you can do a gluten challenge but doesn't say what you have to do to do it. Furthermore, she's only...
  13. squirmingitch
    He will come around to the diet when he becomes more accustomed to how good he feels. And I daresay that somehow a change takes place within us when the body is free from the grip of gluten where we become turned off by even the thought or smell of gluteny foods & our bodies & hence our brains tell us that fruits & veggies really DO taste good...
  14. squirmingitch
    Many things could have caused the negative result. Either it truly is negative or it was a false neg. which happens a lot! The doc could have failed to do the FULL celiac panel which often happens. The doc may not have known how to interpret the tests which we have seen happen a lot. Many here had neg. blood & positive endoscopy. Ask your doc for a copy...
  15. squirmingitch
    The cornstarch doesn't have any potato flavor & when fried up tastes like fried chicken done with wheat flour. Yes, the cornstarch is much easier on the pocketbook than tapioca flour. Also, the potato flour really, really stuck to your fingers, the bowl, anything it touched --- very difficult to get off. Cornstarch was easy peasy --- so was the tapioca...
  16. squirmingitch
    You can't save the world. You can't save your family if they aren't listening or willing to save themselves. And I don't mean to sound cruel saying that. I liken it to alcoholics -- no matter how much family members want to save the alcoholic; the alcoholic has to want to save themselves. It sucks that the testing is so imperfect. Further sucks that so...
  17. squirmingitch
    woodnewt, I'm wondering if you use/d the soapy dishrag to wash the counter tops down as so many of us do?
  18. squirmingitch
    Razzle, I'm worried about you tonight! Something could happen in your sleep. Listen to these gals, they really know what they're talking about. I'm just a babe in the woods compared to these gals & when I see them so very concerned about you that really takes me sit up & take notice.
  19. squirmingitch
    Please do get those test results & post them -- there are people here who are very good at reading them. Yes, it wouldn't hurt his mom to get genetic testing done either. Question --- is he or has he ever been on Lisinopril for the bp? Have you read this? It's a great place to start: https://www.celiac.com/forums/topic/91878-newbie-info-101/ ...
  20. squirmingitch
    I'm just the messenger. All thanks go to Chef Mike for being such a sweetheart & getting this for us. I'm thinking the BRM flour is the All Purpose Baking Flour as I have a bag here & the ingredients are: Garbanzo Bean Flour, Potato starch, Tapioca flour, White Sorghum flour, Fava Bean flour. I love that the recipe is so simple too!
  21. squirmingitch
    My friend Chef Mike Hicks, a chef at Disney World was kind enough to help us celiacs out by contacting the executive chef at the Disney Raglan Road Irish Pub to get the fry batter recipe they use there. We actually use a Bob's Red Mill brand, which is made from potato, garbanzo and fava. I have attached the recipe we use at the restaurant for the batter...
  22. squirmingitch
    Tracess, first BRAVO to you!!!!!!! Your fiance' is the luckiest man alive to have such a smart, savvy & loving gal. And welcome to the board! You said he has had every test known to man but the biggest question is: Did any docs ever do the celiac panel on him &/OR do an endoscopy where they took samples to biopsy for celiac disease? And if the answer...
  23. squirmingitch
    Oh I'm sorry Razzle --- my bad; I got you mixed up with someone else.
  24. squirmingitch
    And my friend Chef Mike who has been a chef at Disney for 14 1/2 years says & I quote: "Years ago Disney NEVER gave out their recipes Now you can buy Disney cook books!! The location I have been at for 11 yrs even prints recipes to hand out to the guest if and when they ask. If we don't have it handy there is a actual chef that we forward requests...
  25. squirmingitch
    I don't understand why you are glutening yourself Razzle. You said you blood was positive & your endo was positive so why are you eating gluten?
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