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squirmingitch

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by squirmingitch

  1. squirmingitch
    And Tillygirl, be FIRM with the doc about the tests especially the celiac panel. Don't just tell the doc this & this & this needs to be done --- when the doc says, "Okay I have ordered the tests", then you MAKE the doc repeat back which specific, individual tests enumerating each one by name. Otherwise you can find yourself dragging out the testing...
  2. squirmingitch
    I can guarantee there is such a thing as gluten withdrawal! I've HAD it. And just read the posts on this board & see how many have gone through it. It's REAL & it EXISTS! If you haven't gone through gluten withdrawal then you are a rare bird & it does happen sometimes. I am overjoyed that you were spared the misery of that. Seriously, I mean...
  3. squirmingitch
    Yay for a magic button! Yeah boy! Unfortunately even if the blisters are surfaced it doesn't mean they will be any help. It's a sucko disease is what it is. Yes! We need more studies!!!!!!! But I will say this Dani & I believe it is true. I believe that it won't be toooo many years down the road before they come up with a way to diagnose celiac disease...
  4. squirmingitch
    I'm posting this for those whose dh is affected by iodine. Since mine is & I know how hard it is to find iodine free, gluten-free multi vitamins then I have found 2 which fit the bill. 1) Solgar brand "Vitamins Only" which are also free of soy, yeast, wheat, gluten, dairy, artificial flavors, artificial colors, & artificial preservatives. 2...
  5. squirmingitch
    Dani dear, you have been gluten-free too long for a biopsy of the rash to be positive. And just eating some crackers to make the rash appear will not do it. You DO have to go full scale glutening yourself even for the dh biopsy. I'm sorry but just like your blood tests they will turn up neg. b/c you have been gluten-free. Lord knows, I wish that were not...
  6. squirmingitch
    Misty, SURE looks & sounds like dh to me & I outta know! Go gluten free immediately! You now know you have the antibodies in your skin --- the rash is telling you that. Take it from me --- you don't want it to go any farther! It's going to take a while for the antibodies to leave your skin as it is; please quit gluten now & try to save yourself...
  7. squirmingitch
    And soy products too if you have not already eliminated them. When I had my colonoscopy I was worried about bloat as I had friends who had terrible bloat pain from colonoscopy. The nurse told me to lay on my left side & draw my knees up as close as I could to my chest. It WORKS! Not your right side but your left side.
  8. squirmingitch
    Okay, I found 2 of them. I know I have 3. Will have to hunt further. Here is one. Read dwon just before the chart to where it says" In children, celiac disease tests may be ordered when a child exhibits:" And see it says " Autoantibody levels should initially be ordered when a person still has gluten in their diet. Positive or indeterminate results...
  9. squirmingitch
    I'll second that emotion!
  10. squirmingitch
    YVW birdie! We also use the Bisquick for pancakes following the recipe on the box & we swear they are better than gluten pancakes & I'm a pancake freak. Also mash bananas in that too sometimes (we like bananas- can ya tell?). I make the pancakes just slightly thicker than the recipe though but only a tiny bit. I haven't tried to do any yet that...
  11. squirmingitch
    That's gluten withdrawal starting to show beebee.
  12. squirmingitch
    NO! I can provide documentation that you need to be actively consuming gluten for a while EVEN to get the rash biopsy. I'm really pressed fro time at the moment & will be most of the day so I can't locate those medical ref. to support what I'm saying right this moment. Will get to it asap.
  13. squirmingitch
    I liked that one Peter!
  14. squirmingitch
    Because your son was gluten-free (gluten free) the crackers won't give him a positive biopsy. You have to be actively eating gluten for 2 months at least & at 3 or 4 slices of bread a day. Even then the biopsies are notoriously negative --- 37% false neg. rate. BUT, that may be why he tested neg. on the blood work. Celiacs with dh tend to test neg. on...
  15. squirmingitch
    I have a great Belgian waffle recipe that hubs & I both love. 1 1/3 cups of Bisquick gluten-free pancake & baking mix 1 1/4 cups of milk 3 Tblsp. of canola oil (or oil of your choice) 2 eggs, separated 1 tsp. vanilla extract 2 Tblsp. sugar Put the Bisquick pancake mix in 1 bowl. In a second bowl use a wooden spoon to beat together the...
  16. squirmingitch
    I cried reading your story of you & your daughter. I'm SO happy you both are doing great!!!!!
  17. squirmingitch
    Yes! In fact last night I had the scariest dream that little blisters popped up all over my buns & I was scratching like mad & all upset that it finally covered both my buns. What a horrid, horrid dream! I was so happy to come to consciousness & discover it was all a dream! Whew! Yes, dh has a mind alllll of it's own.
  18. squirmingitch
    Aerial, Yes, low iodine for a week or two & then in moderation. We only need 150 mcg per day in the first place --- I wonder JUST how many mcg the ave. person consumes per day? I am li right now & am about to come off it as my 2 weeks is up. I seem to have a continual running dh (not nearly as bad as it was in the beginning!) & need a break from...
  19. squirmingitch

    ARCHIVED A Biopsy

    squirmingitch replied to cristalbleu13's topic in Doctors

    Your problems really ARE due to the celiac dear --- they really are. I know it seems hard to believe but believe. There are countless people who have posted on this board who can attest to the myriad of things untreated celiac causes to happen. You have had celiac disease your whole life. It will never go away but you will be fine if you stay on a strict...
  20. squirmingitch

    ARCHIVED A Biopsy

    squirmingitch replied to cristalbleu13's topic in Doctors

    It means total villous atrophy or completely flattened villi. Completely atrophic. . It is in this extremely uncommon setting that a lymphoma is more likely to occur. See: Open Original Shared Link Open Original Shared Link Open Original Shared Link Have you been gluten free since the age of two? Was this the results of an endoscopy at the...
  21. squirmingitch
    A) you've already eaten several bowls of it. So you will know soon enough. freeze the rest of the soup until you find out you don't have a reaction. C) If you don't have a reaction; then thaw, eat & ENJOY!
  22. squirmingitch
    Welcome to the board Beebee.
  23. squirmingitch
    Oh yeahhhhhh, frosted flakes are great for snacking on right out of the box. YUM!
  24. squirmingitch
    Bartful, I feel like dancin', dancin', dance the night away! I'm doing a happy jig over your news! LOVE the inspirational success stories. I can't wait for the day I can tell one. But I know the day will come; because of people like you who post their wonderful news.
  25. squirmingitch
    And bringing that cute little border terrier with you! Border crossing the border!
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