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squirmingitch

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by squirmingitch

  1. squirmingitch
    We are all wishing you a great night of uninterrupted blissful sleep!
  2. squirmingitch
    Raven, you can eat salt. Just make sure it is non-iodized salt. There is some back & forth on the subject of weather sea salt contains iodine with some sources saying no & some saying yes. So when in doubt...... I just get non-iodized salt. BTW, many celiacs can not tolerate soy. I am one of those. Who knows if we will ever get soy back but that...
  3. squirmingitch
    Ohhhhhhhhhhhhh Jane! Great big ((((HUGS))))!!!!!! Been there, done that. We told you before that you have dh & therefore celiac. Yes, it does look like dh Jane.
  4. squirmingitch
    Here are some links to learn about what foods contain high sals, medium sals & low sals. Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link With people with dh, anything that is an irritant to the skin can keep the dh going. Sort of like since the skin is already fired up then anything...
  5. squirmingitch
    Make sure you & the kids keep eating gluten until ALL testing including endoscopy are completed. Even going off gluten or going gluten light for a week beforehand can skew the tests & you want the best chance possible. There are false negatives but no false positives. See the FULL celiac panel for blood work on this thread. Also pay particular...
  6. squirmingitch
    You only quote 2 tests there. Were there more than that? Here is the FULL celiac blood panel: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA The DGP test was added recently to the full panel. If you didn't get all...
  7. squirmingitch
  8. squirmingitch
    In your scalp!???!!!! Oh horrors!
  9. squirmingitch
    I got that mostly before going gluten free & my arm would get red & the back of the hand &/or fingers would swell. Either arm --- sometimes both at once. Such PAIN! If a feather brushed my arm or wrist or hand or whatever it was all I could do not to scream. I also got that in my feet, lower legs, knees, hips, shoulders & upper arm ---- it...
  10. squirmingitch
    Nor mine.
  11. squirmingitch
    You are playing with fire eating things from places like Subway. You need to learn about cross contamination. You can get glutened easily that way.
  12. squirmingitch
    Great points all IH! And BTW, I was headed right straight down the same road you had traveled; becoming more & more unable to function each day dealing with horrible pain. I thank my lucky stars for getting off that rotten road before one more day went by. And that is why even though I curse my dh; I also praise my dh. Without the dh manifesting so...
  13. squirmingitch
    Dani, I am SO glad you will now be able to get the vitamins! YAY! Yes, Prickly, Queen Of All Pears, found the resource for you. I think you dubbed her right & we should call her that from now on.
  14. squirmingitch
    I wonder if the blood panels for celiac which were done on you were the full panel. Often the full panel is not done & that can certainly cause a false negative. here is the full celiac panel: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG...
  15. squirmingitch
    You certainly have a problem with gluten. We need the normal ranges on your celiac panel not just what you tested as. And it looks like some of the tests were not done. The correct FULL celiac panel is: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA...
  16. squirmingitch
    Were you gluten free before your blood work or endoscopy was done? Were you gluten light? Do you have a copy of the test results for either or both the blood & endoscopy? If you don't, then you should get them & post them here. Often docs don't know what the FULL celiac panel is so they don't do the full celiac panel on the blood. There are people...
  17. squirmingitch
    Please note that the OP has not posted since they said they were quitting gluten-free on 2/27/12.
  18. squirmingitch
    Mickey, here are some links to recent threads discussing different aspects of Paleo diets. You may find them informative & I'm sure if you pm some of those posters they will be happy to help you out --- OR --- start a new thread inquiring about how Paleo might work for your situation & sensitivities. https://www.celiac.com/forums/topic/93269-first...
  19. squirmingitch
    HOORAY!!!!!! Small strides forward add up. Off to google Red Robin & see if there are any in my state.
  20. squirmingitch
    And you also need to be consuming gluten even for the dh biopsy. And there's a 40% (I think 40% -- or close to it) false neg. on the dh biopsy even when performed correctly. Post your results like shroomie says. And I echo beachbirdie --- you don't need anyone's permission to eat gluten free.
  21. squirmingitch
    Mickey, I don't know a whole lot about it, haven't been on it but it sounds like the Paleo diet might suit your needs. There are many on this board who do or have done the Paleo of some form or another. I recall them saying grains are not in it. I understand there are quite a few versions of the Paleo. I'm sure someone will be on here soon to help you out...
  22. squirmingitch
    I know. I have a dear friend who IMO could very well be celiac. She has thyroid issues, neuro issues, & was "diagnosed" as having colitis which she takes pills for & they control the problem; also depression (pills). But I know better than to say anything to her about it. I KNOW better. All I can do is wait until more issues crop up & then be...
  23. squirmingitch
    Yes, I know methylcellulose has been around. I read labels before I had to go gluten-free. It's Dow that I don't trust.
  24. squirmingitch
    And it's very nice to have a member of the younger generation caring so much!
  25. squirmingitch
    Did you find out if he was married?
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