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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    Wow. Her #'s are high! Yes, she needs to be on gluten for the EMA. For the gene tests she does not need to be eating gluten but I'm sure you already knew that. I am wondering if rather than do any more testing at all if her ped would be willing to dx her right now with celiac based on the tests that were done. You should ASK. If you don't ask then you...
  2. squirmingitch
    You also need to get & post the ranges for her tests otherwise the #'s you posted mean nothing to us. Different labs have different ranges so it's not like one can say, "Oh, 108 is way up there". You understand?
  3. squirmingitch
    And I'll hold you to that IH! And the best part will be not worrying if I'm going to get cc'd or not!!!!!! Ahhhhhhhhhhhhhh
  4. squirmingitch
    Well, I happen to need to gain a few pounds so I don't need to take my pants off but I'll join the party! I have only had tiramisu twice in my life & while it was good it was not to die for but I sensed inherently that I had NOT eaten good examples of it. I have read recipes for it & I KNOW it's right up my alley! I was rather frustrated that the...
  5. squirmingitch
    Back again Kristie. Okay, here is a must have link: https://www.celiac.com/forums/topic/91878-newbie-info-101/ Be sure to read the entire thread & follow the links that are included & get your printer warmed up. And here is Stupid Stuff doctors say: https://www.celiac.com/forums/topic/89599-we-need-to-start-a-thread-on-stupid-stuff-doctors...
  6. squirmingitch
    How many people here have been down the same road as you have? Too many to count! Good for you; you figured out the problem & you are going gluten-free. Welcome to the board Kirstie! I'm have dinner cooking right now but will be back later with some info. In the meantime I'm sure others will be on to help you out. And we have tons & tons of insane...
  7. squirmingitch
    I know. I'm sorry you're feeling blue. It probably wasn't too great an idea to go out to dinner so soon yet. And I know all you can focus on right now are all the things you think you can't ever have again. But believe me, there are substitutions for all those things. Some are better than others. But I promise you it gets a whole lot easier. It really does...
  8. squirmingitch
    I'm not sure how long he needs to be off the steroids. I would think if it was Feb. that it would be okay. The doc should know the date or you could check with your pharmacy & they will be able to tell you.
  9. squirmingitch
  10. squirmingitch
    That's a mistake that SO many make --- going gluten-free before all the testing is done. NO, gluten-free during the day & then just one thing a day of gluten is NOT enough. And now that he is "gluten light" you will have to gluten him up for an endoscopy if the doc wants to do one. AND that will mean the equivalent of 3 or 4 slices of bread per day for...
  11. squirmingitch
    Before we found out my hubs had celiac every single time he drank beer he would get the most excruciating pain in his ears. He described it as a migraine in his ears. Now we know why.
  12. squirmingitch
    Your tests may not have consisted of the complete celiac panel & that's why you came up negative. Most docs don't know what the full panel consists of. Then there are also false negatives --- close to or 30%. At any rate you have discovered your problem as well as the answer to the problem. Good for you! What I said before about stronger reactions...
  13. squirmingitch
    Have you had any allergy testing? Food allergy testing? And did you ever post your celiac panel test results on here? Most docs don't know what the FULL celiac panel consists of. Who made the bourbon sauce? What are the ingredients? Which Campbell's soup did you use? You have to learn to read EVERY label.
  14. squirmingitch
    It happens. It's common to have a stronger reaction after going gluten-free than you had before going gluten-free. That's why so many refuse & simply can not tolerate glutening themselves for testing after they had already gone gluten-free.
  15. squirmingitch
    It's sounding more like he is celiac with the constant hunger thing. Common reaction when celiacs go gluten-free. Just put hungry, or ravenous, or starving in the search box above & you will come up with more posts than you can count about how when one goes gluten-free they can't stop eating & are hungry all the time. I would literally vacuum with...
  16. squirmingitch
    Robert, you made a comment above: "I am still not sure of which type of gluten is the biggest reactor" Would you clarify what you mean by that? Do you mean wheat gluten or rye gluten or barley gluten? Or are you talking about some other kind of gluten? As to your comment: "As for potlucks and friends I feel like I hurt their feelings bringing...
  17. squirmingitch
    You better know I'm wishing you luck & loads of it! The Artemisinin sounds very promising especially when you began to feel so much better so quickly.
  18. squirmingitch
    Ohhhhh rosetapper! What an awful thing to happen. So here you go again right? Take a deep breath & come out fighting! I'm sending you everything positive & good that I have in me & will continue to do so for as long as it's needed. (((HUGS)))
  19. squirmingitch
    LOL! Well, Irish can be what she wants. As for me, I'm jest a lil ol' southun belle who wouldn't hurt a fly.
  20. squirmingitch
    We ARE ladies Nick!
  21. squirmingitch
    I'll tell you what's the cheapest. Feed them raw that YOU provide. Meat, veggies & you can throw in rice. There is lots of info. on the net about feeding your dogs raw. I will say that as for veggies & fruits ---- freeze or cook them before feeding them (thaw them of course) to your dog. That breaks down the cellulose in the fruits & veggies which...
  22. squirmingitch
    Oh, I didn't HAVE to read it. I'm just a freaky little thing who loves to learn ..... about anything..... you name it..... also love to read the written word....can't resist reading anything that is within my sight. I will sit & read the stupid cereal box --- every single word on it if it's sitting on the table while I'm eating. Have always been like...
  23. squirmingitch
    Oh YUM! Your dinner sounds delicious! Making my mouth water just reading it & I just finished eating mine. Glad you can get the anemia test. If they will do vitamin levels too w/o charging too much then go for it so you know where you stand & know what to take. If you are celiac or even gluten sensitive then odds are you are lacking in the vitamin...
  24. squirmingitch
    Methinks me agrees.
  25. squirmingitch
    Awwww geez rosetapper; I don't have a clue. I'm so sorry that happened! What a "B"! Maybe lemon juice? Maybe milk? I wonder if Emu oil would do anything? We are the same age.
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