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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    It could be, it could not be but it seems like you're starting to get it other places now besides just on your fingers. The only way to know for sure is to get a dh biopsy. You have to make sure they take the sample on a clear area adjacent to an active lesion AND you MUST have been continually eating gluten or else you will get a false negative. Yes...
  2. squirmingitch
    Thanks! That's what I will have to use is almond butter as right now peanut butter is a no go for me; it comes under that "other food intolerance" umbrella.
  3. squirmingitch
    Bake them at what degrees?
  4. squirmingitch
    No, the control test is to verify that she will react to that particular type of test. If she didn't, then certain of the bloods would not be applicable to her. They would be false negatives. As far as tests being weak positives, that's like being a little pregnant. A positive is a positive. Period. Since she does have one positive that is enough...
  5. squirmingitch
    I think Tessa meant to say: You need to be consuming gluten for a TEST to be valid, not for a negative to be valid. I agree with what she said. You should go get the blood testing. But don't think that you can go tomorrow & do it because you've "only" been off gluten a week. That week off gluten could give you a false negative! You don...
  6. squirmingitch
    Here is info. on how toilet paper & paper towels are made & glued. This is REPUTABLE info., not just hearsay from people on the internet who are talking about things they haven't actually researched. Open Original Shared Link If you scroll down in that link, it tells you: Protein Glue Since paper towels are used in a number of...
  7. squirmingitch
    Can you provide a reputable link that says wheat glue is used for toilet paper & paper towels?
  8. squirmingitch
    He ordered celiac antibodies........ it depends on the lab. some labs do the whole celiac array & some don't. Was your blood taken at the docs office or do you have to go to a lab & get it taken? If you have to go to a lab, then ask them what specific celiac antibodies they are going to run. If your blood was already taken at the docs office, then...
  9. squirmingitch
    Yes, the steroids can return false negatives on the rash biopsy also.
  10. squirmingitch
    Where did the term take the biopsy from? On a lesion or on clear skin adjacent to a lesion? Anxiety is super common with untreated celiac. All the GI things you named are common with celiac. BTW, you need to be eating gluten everyday for testing for celiac. That includes the dh biopsy, the blood tests & the endoscopy.
  11. squirmingitch
    Good to hear!
  12. squirmingitch
    1) In the Sargento stuff you're eating, I see SOY, in every. single. one. many of us do not do well with soy, especially in the beginning. For some, soy is anathema for years, maybe for life. 2) I heard you loud & clear about cooking sooooooooo Ensure, Boost, whatever brand, those nutritional drinks. You have a mini fridge in your room you can...
  13. squirmingitch
    One of my biggest pet peeves!!!! They used to be much worse about it, so it's getting better but there are still plenty who don't post the date.
  14. squirmingitch
    This paper does not show the entire celiac panel, just a small part of it. Do you know if they did more than what is on the paper?
  15. squirmingitch
    You don't have to wait to see the doc in order to get copies of your blood work as well as endoscopy & pathology results if you're in the US. Just request them from the office. Is the docs entire office closed down? That would be the only reason you can't get those copies while the doc is on vacation. In the US, you have the right to copies - it's the...
  16. squirmingitch
    You have a positive on the TTG IGA. The fact that it's not off the charts high is irrelevant. The only thing that matters is that it is positive. A positive is a positive is a positive. Period. Just like you can't be a little bit pregnant. You either are pregnant or you're not pregnant. This result would, by medical standards set forth for diagnosing...
  17. squirmingitch
    BTW, you don't get a colonoscopy for celiac disease, you get an endoscopy with biopsies.
  18. squirmingitch
    If your doctor will diagnose you based upon the blood work alone then it's your choice to get an endoscopy or not but if the doctor insists on an endoscopy to diagnose you then you need to consider what Gemini said about will you be able to stick firmly to a gluten free diet. The other thing is, if you have kids or not. If you don't have a written diagnosis...
  19. squirmingitch
    No I didn't. Actually my back broke out & it began down low, all the way across & then in hours it had moved right on up my back all the way up & across. At the time, I thought it was nerves (as in mental) because I was going through a terribly stressful time. The stress is undoubtably what triggered it. Then by the next day it had crawled over...
  20. squirmingitch
    Yes, people with dh still get the gut damage but it can tend to be patchier so make sure the GI understands this & URGE him/her to take 8 instead of the usual 6 biopsies. The thing is though, if you get a positive dh biopsy then you don't need an endoscopy because the dh biopsy is definitive.
  21. squirmingitch
    The rash, for me, and I think for most of us from what others have said on here, the sensation follows nerves. I can get rash that itches like mad 3 or 4 inches from the actual lesion. I think it's following the nerve pathways. Before I had my first major outbreak of rash, yes, I would get those sensations like little pops of hot oil landing on my skin. Funny...
  22. squirmingitch
    Thanks! Yes, I'm going to check them out.
  23. squirmingitch
    That's right Ennis. I've developed an intolerance to peanuts though so now I have to find nut flours with no exposure to peanuts. It's getting trickier. I have managed to find an almond flour free of peanut exposure as well as a coconut flour.
  24. squirmingitch
    Me too as well as that you're getting the rest of the family tested.
  25. squirmingitch
    You're so welcome Jewels! It's literally taken me years to rat it all out. I can't tell you how many calls & emails I made besides spending reams of hours on the computer doing the pre leg work before calls or emails. Thing is, when all is said & done, I can't definitively say whether it's oat cc or minutia of gluten OR BOTH that get me because I...
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