
squirmingitch
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Everything posted by squirmingitch
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ARCHIVED Cross Contamination in new living situation
squirmingitch replied to Nadtorious's topic in Coping with Celiac Disease
This may seem like a lame idea but I think sometimes visuals can really bring home a point like nothing else can. To help them both understand just how little it takes to make you sick as a dog, how about a visual demonstration? How about getting a measuring cup full of sand & asking them if they think that would be roughly a million grains of sand....- 6 replies
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- cross contamination
- new home
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Cyclinglady & I must be long lost sisters or something. I use the Vaseline Intensive Care (white bottle) also. I was also going to suggest coconut oil or even olive oil. We don't have a Costco here so no Costco shampoo for me but I use the Suave Naturals shampoo - cheap & I have hair down past my rear; it works great & I have zero complaints about...
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ARCHIVED Endoscopy results
squirmingitch replied to Paula Davis's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for updating us! I'm so glad you've finally gotten a doc who seems to be paying attention. -
ARCHIVED DH , no allerigies , angeodema
squirmingitch replied to Indy Diana's topic in Dermatitis Herpetiformis
I have a rather large torus palate Open Original Shared Link I've had it as far back as I can remember. It never bothered me except when the dentist puts those darn x-ray things in your mouth that you have to bite down on. Oh man, those things stick into that torus palate & hurt like the devil! Well, roughly 3 years before celiac diagnosis ... -
ARCHIVED Lab Results Help
squirmingitch replied to cdwiggy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Great links you two! -
ARCHIVED Lab Results Help
squirmingitch replied to cdwiggy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Non alcoholic liver disease is associated with celiac disease. My liver numbers were elevated in the year or two before diagnosis and I was dx'd with fatty liver (non alcoholic). After I went gluten free, my numbers came right back down to normal. I also had microscopic blood in my urine & had all kinds of tests & scans run for that until the docs... -
All first degree relatives should be tested every 2 years in the absence of symptoms or immediately if symptoms present. It is hereditary and can present at any age. Make sure they are eating gluten daily for at least 3 months before testing if they have been gluten free. Welcome to the club you never wanted to be a part of. Check out our Newbie...
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ARCHIVED Positive Blood Tests
squirmingitch replied to jenna3's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
jenna3, you are going to feel human again!!! Do not stop eating gluten until all testing is done & over with. Have a gluten glutton fest. As soon as all testing is finished, then go strict gluten free. Read our newbie 101 in the link below. It will tell you how to keep yourself safe. You'll need to get some new kitchen items and do a lot of cleaning... -
ARCHIVED Now it's my turn
squirmingitch replied to Feeneyja's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My dizziness took a while to go away & when it began to go away, it became fewer times per day until it would only be once or twice on some days. Just slowly lessening in intensity and occurrence. It took months, maybe 6 months or more but I can't remember exactly & didn't write down exactly how long each symptom took to resolve. -
ARCHIVED How do I know my DH is healing?
squirmingitch replied to flabslapper's topic in Dermatitis Herpetiformis
You might want to be aware of higher iodine foods as well. For instance, noting if seafood makes the rash worse --- also carrageenan aka sea kelp aka sea weed & all the other names it goes by. Foods from the sea are very high in iodine. Iodine often makes the rash flare.- 15 replies
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- celiac disease
- dermatitis herpetiformis
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ARCHIVED Different gluten foods give different reactions?
squirmingitch replied to BarryC's topic in Related Issues & Disorders
I react much stronger & much more quickly GI wise, whenever I am exposed to barley malt than to wheat. See? Everyone is different. -
ARCHIVED Different gluten foods give different reactions?
squirmingitch replied to BarryC's topic in Related Issues & Disorders
You can buy gluten free beers online & have them delivered right to your door. This is one example: Open Original Shared Link Or you could ask your local liquor store to order gluten free beer for you. -
ARCHIVED Undeclared wheat & soy Recall on Rice Seasoning
squirmingitch posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Futaba Sesame Hijiki Rice Seasoning There is a recall on this product because it contains wheat, soy & other undeclared ingredients. See: Open Original Shared Link-
- contains wheat
- recall
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ARCHIVED How do I know my DH is healing?
squirmingitch replied to flabslapper's topic in Dermatitis Herpetiformis
You're so welcome! Honestly, this rash can truly make you think you're losing your mind. Yes, it can take years. It can take a LOT of years --- longer than 2, OR it can take only months. We can only speculate it has to do with how long you actually had celiac but didn't know it & assume that the longer you had it, the antibodies were building up...- 15 replies
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- celiac disease
- dermatitis herpetiformis
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ARCHIVED quote feature not working?
squirmingitch replied to kareng's topic in Board/Forum Technical Help
Woooooo Hooooooo! -
ARCHIVED How do I know my DH is healing?
squirmingitch replied to flabslapper's topic in Dermatitis Herpetiformis
DH is extremely sensitive to the tiniest little trace of cross contamination. It's imperative that you make sure you get a solid handle on those accidental weekend glutenings. You see, with dh, the antibodies deposit under the skin and they can lay there for long times. They can lay there dormant so to speak ~~ where you don't have an outbreak ~~ & then...- 15 replies
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- celiac disease
- dermatitis herpetiformis
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ARCHIVED quote feature not working?
squirmingitch replied to kareng's topic in Board/Forum Technical Help
Thank you Scott. -
ARCHIVED quote feature not working?
squirmingitch replied to kareng's topic in Board/Forum Technical Help
I just tried to quote Karen's last post about who fed the forum gluten. Great line Karen!!! Thanks for the laugh. Alas, the quote feature doesn't work for me either. Safari on a Mac. -
ARCHIVED Confused!!!
squirmingitch replied to Raelynne's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi & welcome Raelynne! I agree with the previous posts. I was dx'd with blepharitis of the eyes prior to discovering celiac. I also, for years, had a lot of clear to whitish mucous accumulation in my eyes all the time. I don't recall how long after going gluten free, all that went away. I want to mention one thing. My best friend (non celiac... -
ARCHIVED Just for Fun- Do any of you have pets that..
squirmingitch replied to ravenwoodglass's topic in Introduce Yourself / Share Stuff
My dog watches TV but she is discriminating in what she watches. She likes it when horses are on the screen. She will watch movies for long periods & then seems to get bored with them & takes a dog nap. She watches dogs when they are on the screen but not all dog breeds. She is a terrier breed & when she sees a terrier of any kind on TV then she... -
ARCHIVED Unknown source of gluten
squirmingitch replied to heatman's topic in Coping with Celiac Disease
I don't really buy into the cc business on the strawberries. I live in FL where we grow a lot of strawberries. Since I was a teen & I'm 60 now, I have done plenty of U-Pick strawberries at small growers & have seen countless large commercial acreage plantings & all were on plastic. The only times in my life that I have seen strawberries growing... -
ARCHIVED Unknown source of gluten
squirmingitch replied to heatman's topic in Coping with Celiac Disease
Thanks, will take a look at it. I'm not sure but it seemed I was having some problems when I was eating fresh strawberries. We had some great fresh ones in our stores & fantastic prices too. I adore strawberries, I mean I'm bonkers over them, especially fresh but it ended up with them on my "possibly a problem" list so I quit them. Haven't re-tested yet... -
ARCHIVED Unknown source of gluten
squirmingitch replied to heatman's topic in Coping with Celiac Disease
@Ennis_TX Can you please provide links to info. on cc of strawberries please? -
ARCHIVED Understanding test results
squirmingitch replied to Rosie282's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
YVW! I would hate to see you do without all dairy if it isn't necessary. I love dairy!!!! -
ARCHIVED Trouble getting in enough calories
squirmingitch replied to Fbmb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Great suggestions above. Anything I was going to suggest has been covered except this: Baker's sweetened Angel Flake Coconut has 70 calories per 2 tablespoons. Open Original Shared Link And this is what I make with it: Open Original Shared Link Oh golly! These things are scrumptious!!!!! I just finished devouring 2 of them.