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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by ciamarie
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I would suggest to give it at least 2-3 months, and see if perhaps you don't have fewer issues as time goes on. I believe it's not unusual for some people to have things get worse initially, though perhaps others will add their perspective on that. You said you'd tried probiotics at one time and they didn't help, perhaps you could try digestive enzymes or...
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ARCHIVED Please Help! Could I Have Celiac Disease?
ciamarie replied to sadsickgirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'd agree with what others have already answered, and just wanted to add that I used to have headaches about every day when I used to drink diet soda (with aspartame / nutrasweet). It took me a little while to realize that's what was causing them. Fatigue, joint pain and skin issues I've also had, related to gluten. -
ARCHIVED No One Will Come Over To Eat At My House
ciamarie replied to GFreeMO's topic in Coping with Celiac Disease
Or extra light olive oil? That's what I use almost exclusively. It's very neutral. Or Canola? Though I do sympathise on feeling left out, it pretty much stinks. -
ARCHIVED Do You Think The Vitamin Centrum Silver And Unison Are Safe?
ciamarie replied to mommyto2kids's topic in Gluten-Free Foods, Products, Shopping & Medications
If they're not specifically saying they're gluten-free, I'd skip it and go with something that is labeled gluten-free. You could also try the search term 'centrum silver gluten free' or something similar on the search on this site and/or your favorite search engine and see if anything comes up from others who have or haven't tried them? -
ARCHIVED I'm 98% Convinced...should I Bother With Testing?
ciamarie replied to rarmama's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you have a choice, I'd suggest you find a new doctor. -
ARCHIVED Brown Or White Rice
ciamarie replied to GFreeMO's topic in Gluten-Free Recipes & Cooking Tips
I sometimes use white rice, sometimes 1/2 and 1/2. One tip I picked up on a cooking show, was to soak the brown rice for about an hour before cooking it. When I've done that, it cooks much better in the same amount of time as the white rice. The method is just to add the brown rice quantity (i.e. 1/2 cup) as well as the water to the pan 1 hour or so before... -
My (not an expert) opinion would be to get some good probiotics. Udo's choice has one for yeast control, with a spectrum of bacteria (8 I think) and extra acidophilus. Some on here suggest Culterelle, I'm not sure if it has acidophilus though. Second idea would be to eat (drink) meat and vegetable broths, and very well cooked vegetables and see if you...
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ARCHIVED Childrens Recipes
ciamarie replied to GFdad0110's topic in Gluten-Free Recipes & Cooking Tips
I posted a recipe last month for banana bread, and I've made it again since then. It's good! -
Hey, it just so happens there was a thread by someone in the Coping topic area who was happy that her hair is growing back (linked)! As for the B vitamin question, you might want to wait a month or so, to give your digestive system a bit of time for healing, and start taking a good gluten-free multivitamin. I just started taking the Vitamin Code vitamins...
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ARCHIVED What Conditions Accompany Your Celiac?
ciamarie replied to Gfgoddess's topic in Related Issues & Disorders
Anemia, yes. Anxiety, yes. Heartburn (not diagnosed, didn't see a Dr. about it), yes. Fatigue, yes. Several years ago I thought it might be thyroid related, saw a naturopath and labs came back in the normal range. Giving up corn and especially corn syrup helped that somewhat, but not enough to be more than barely functional. I also had sore knees, especially... -
ARCHIVED Dermatitis Herpetiformis
ciamarie replied to kiwi kate's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I believe it depends on the type of test. If the rash you have is DH, then an endoscopy may not yield a 'positive'. There's also one of the blood tests (IgA I think?) that will only be positive if you have total villous atrophy. But if you have DH, then there are some of the other antibody tests that may be positive, since having the rash would indicate there... -
Great news! I noticed last weekend that an area on the top of my head (the crown area, near the back) which has been pretty thin for ages, and which I didn't attribute to Celiac or gluten at all, has started to fill in. I've been gluten-free for about 10 weeks or so, and have sporadically taken some probiotics and vitamins and try to eat some veggies on...
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ARCHIVED Pop-Tarts / Toaster Pastries
ciamarie replied to Katrala's topic in Gluten-Free Recipes & Cooking Tips
It is impressive, they look good enough to scarf down! Where can I get one? -
ARCHIVED New- Understanding Labs
ciamarie replied to Mom-of-Two's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I've been reading the book Wheat Belly, and it said that after 5 years of a gluten-free diet, one's risk of those other diseases attributed to Celiac goes down to 'normal'. So, you're not always at higher risk IF you stick with a gluten-free diet. I also thought I'd mention that probiotics might help after all of those anti-biotics, though it was years... -
ARCHIVED Trying To Figure Out "glutened"...
ciamarie replied to slee11211's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I went completely dairy free for a while, including taking out butter and switched it for the same as you mentioned (Smart Balance). It seemed ok for a week or so, but then I started reacting, including stomach pain and foot cramps. That was a few months before I started eating gluten-free. After doing some research about soy I went back to butter and even... -
I realized today I need to replace my non-stick griddle pan, it looks almost new, though I've had it a couple of years I think and I thought I cleaned it pretty well. I made some buckwheat pancakes on the pan a few days ago and got heartburn. I had heartburn all day, and the DH on the back of my knees acted up some. Since I was basically testing my reaction...
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ARCHIVED I Need Suggestions For Dietary Fiber Supplement
ciamarie replied to cahill's topic in Gluten-Free Foods, Products, Shopping & Medications
Though I'm still new'ish to this myself, I find probiotics tend to be more helpful for me than trying to increase my fiber. I just got some Udo's choice adult probiotics yesterday. However, for fiber you could try Psyllium husks powder -- which is the same thing that metamucil uses, but without the flavorings. I have a 12 oz container of it here and the... -
ARCHIVED Anxious About Weird Symptoms, Looking For Support
ciamarie replied to takesflight's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I know I have woken up with blocked ears, which appears to be due to dermatitis herpetiformis (DH). I'd actually had that issue many years before, but not quite the same back then (it didn't have itchiness and weepy-ness). I saw a Dr. about it and he suggested to try an anti-histamine to see if that would unblock it, as it might be due to some inflammation... -
ARCHIVED Tea
ciamarie replied to the.gf.bf.'s topic in Gluten-Free Foods, Products, Shopping & Medications
I know when I've looked at Tazo teas, I haven't seen any ingredients listed. That's why I've opted for Stash teas, which do list ingredients, in addition to my 'regular' Red Rose tea which is just 100% black tea. I also saw a thread that said that Stash has confirmed their teas are gluten-free. In case that helps! -
ARCHIVED Unresponsive Dh To Gluten Free Diet?
ciamarie replied to CNV2855's topic in Dermatitis Herpetiformis
Those Cheetos may actually (note I said *may*) confirm my msg suspicion, I wasn't aware they were gluten-free, and they're on the list of Open Original Shared Link products that don't contain MSG; but their web page says they are produced on the same line as products that do contain msg, and they are washed between batches. "Although the lines are washed... -
lol, at least we all understand brain fog on here, eh!?
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ARCHIVED Unresponsive Dh To Gluten Free Diet?
ciamarie replied to CNV2855's topic in Dermatitis Herpetiformis
I have a theory about MSG and related items (glutamates) causing DH to flare up, and I recently saw a thread about riceworks chips that adds a bit to that theory. Check out: Open Original Shared Link as well as Open Original Shared Link to see what foods or ingredients may be suspect. I'd be interested in your observations about whether any of that might... -
ARCHIVED Pop Chips Gluten Free? Bad Reaction.
ciamarie replied to Kippen's topic in Gluten-Free Foods, Products, Shopping & Medications
DH is dermatitis herpetiformis, which is basically celiac disease of the skin. Those of us with DH generally have fewer intestinal problems, but lean more toward the neurological issues. At least from what I've gathered in the couple of months I've been researching that topic. As for MSG, I've known that I can't tolerate that for years. My reactions are... -
ARCHIVED Need To Speak To Moderator!
ciamarie replied to cougie23's topic in Board/Forum Technical Help
I use a program called Open Original Shared Link (which is the X Windows version for those of us that use Linux), and for Win users there's Open Original Shared Link which works great for storing passwords. I just remember the one password, and it's easy to back up the database. Where I used to work I had a Word doc that I password protected to keep my list... -
ARCHIVED Pop Chips Gluten Free? Bad Reaction.
ciamarie replied to Kippen's topic in Gluten-Free Foods, Products, Shopping & Medications
I had a bad reaction to Pop Chips too, though I was very new to eating gluten-free at the time. I noticed they were very salty, so it may be the salt and the low iodine diet on thyca (for those of us with DH) says to avoid salty foods since they may use iodized salt. However, I think it's possible in my case that it's more of an MSG reaction. Whether they...