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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by ciamarie
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ARCHIVED Ever Wonder Why Some Of Us Are Sick
ciamarie replied to AVR1962's topic in Related Issues & Disorders
Yes, I'm with you in wondering. However, I also recently read somewhere that there are TONS of people on multiple prescriptions for one thing or another; at least here in the U.S. I may have some food or diet issues, but I totally skew the statistics on prescriptions since I'm not on any. I plan to keep it that way. -
ARCHIVED Are Test Results Conclusive?
ciamarie replied to treyball3's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
From what I have heard about at least some of the blood tests, it is very rare to have a false positive. False negatives are about 30% or so. But, since it's from enterolab, I'm not sure how likely it is that an MD would accept those results; unless they were ordered by a Dr.? Have you asked for testing through a Dr. otherwise? -
ARCHIVED Flour Questions
ciamarie replied to AndreaMamie's topic in Gluten-Free Recipes & Cooking Tips
Yes, you can use your old recipes, which love2travel also answered. I posted a reply to a similar question - to save myself some typing I'll point you to this thread (and message 4 is from me): However, to avoid sulfites I now use baking soda only (with vinegar or cream or sour cream), or yeast. And at the moment I'm using rice flour only, I successfully... -
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So what do y'all think about them letting the coaches join the game? If I'd have voted, I would have voted no. I don't think it's right to make that big a switch a few weeks into the game. However, I'm not sure I liked the coaches thing anyway, so this will make it more interesting.
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ARCHIVED I Think I've Been Oatened!
ciamarie replied to love2travel's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
A new term in the celiac disease vocabulary! Oatenings... I hope you feel better soon! -
ARCHIVED Are These Gluten/wheat Intolerance Symptoms
ciamarie replied to Will29's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you have a gluten intolerance or celiac disease, then 'gluten lite' may not be enough to help with symptoms. I did want to jump in and let you know that if you want to be tested then you'll need to be consuming gluten in order for any chance for the tests to pick up any antibodies, so you may want to get tested before you do a gluten-free trial. After... -
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ARCHIVED What Happened To Me? Could Celiacs Have Caused All Of This?
ciamarie replied to JoyMurphy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
A lot of us are on pretty restricted diets, I'm still trying to figure out what I can eat due to being sensitive to msg, sulfites and soy as well as gluten. Eat the few foods you can eat, until you get some healing. Then you might want to look at something like the SCD or the 'fail-safe' diet. (SCD = specific carbohydrate diet). Due to malabsorption of nutrients... -
ARCHIVED Frustration With Celiac Awareness/people Writing Off The Effort
ciamarie replied to cintinative's topic in Parents, Friends and Loved Ones of Celiacs
+1 to what everyone else has said. I did want to suggest that you check out the Asian food section of the grocery store for rice noodles, if you're o.k. with white rice replacement noodles / pasta. They're generally in the shape of fettucine. Easy to cook (boil for a minute or 2, stir, then cover and soak for about 5 minutes, then drain), and easier on the... -
I loved the subject, so I had to look at the thread. That's great news! It is nice to be able to add something back, hopefully it works that way for you!
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ARCHIVED Spaghetti Sauce From Hell
ciamarie replied to Adalaide's topic in Gluten-Free Recipes & Cooking Tips
First, I agree with earlier sentiments about using a couple of teaspoons of the herbs, not tablespoons! This reminded me of a memory from long ago, when my father would travel he hired a baby-sitter of sorts for me and my brother. Long story short, we wondered why her spaghetti sauce tasted funny. One day while she was making some, I tasted it and it tasted... -
ARCHIVED Flour Or Starch
ciamarie replied to sora's topic in Gluten-Free Foods, Products, Shopping & Medications
For arrowroot, I'm not sure. I've only seen arrowroot powder I think? I suspect it would be the same if you see a starch and a flour, but someone else may have a better answer. However, for tapioca the answer is yes, flour and starch are the same thing. -
ARCHIVED Losing Hope...
ciamarie replied to kswan08's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hey Miriam, and all -- I wanted to add to this, since I'd been reacting to beef myself. I'm curious how you found out they'd injected a solution? Did you ask at the grocery store? I've recently found out that when it comes to beef and USDA regs, if it is labeled 'natural' then it can't have any additives. After I found that info., I tried some beef... -
ARCHIVED Corn Avoidance
ciamarie replied to Razzle Dazzle Brazell's topic in Food Intolerance & Leaky Gut
Here's a couple of links that might be helpful, ref. avoiding corn: Open Original Shared Link Open Original Shared Link Also, I avoid some corn derivatives like corn starch and corn syrup, but it turns out they're probably a problem for me due to being processed with sulfites. I do o.k. with whole corn -- usually organic only. I don't eat a ton of... -
ARCHIVED Some gluten-free Bread May Not Be Gluten Free!
ciamarie replied to DogWalkerNYC's topic in Gluten-Free Foods, Products, Shopping & Medications
I unsub'd from the GFS newsletter, after reading an article that was somewhat alarmist but had almost no references. It was something about many gluten-free foods containing high levels of gluten, I believe. I even left a comment, but it said it was pending approval, I don't know if it was ever approved for posting or not. My comment asked whether the (allegedly... -
ARCHIVED My Biopsy Word For Word
ciamarie replied to troykm's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I started getting headaches, as well as being very tired in the afternoon after about 3 weeks of eating gluten-free. I think that lasted about 2 weeks. However, you should probably double-check what you're eating, and possibly food prep areas, etc. to rule out being glutened. If you have improvement in a few issues, it sounds like that's your answer -- along... -
ARCHIVED Pain From Undigested Food?
ciamarie replied to Yumeji's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, was the lemon juice fresh-squeezed or from a bottle? If it's from a bottle, it'll probably have sulfites. As for coffee, I started reacting badly to it, so I now drink black tea (red rose). I searched and searched, and found nothing about it having sulfites, but that doesn't mean it doesn't, it just means I didn't find anything that told me it does... -
ARCHIVED Pain From Undigested Food?
ciamarie replied to Yumeji's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Looking at the first few items on your list, I'd suspect something like a sulfite sensitivity. I posted some links on message 4 of this thread, in case it's helpful: -
ARCHIVED Have You Read The Book Wheat Belly?
ciamarie replied to lookat's topic in Related Issues & Disorders
I read the book before I gave it to my brother as a birthday gift. He won't read it. Then again, he got himself a kindle so if I'd have gotten a kindle version he might have looked at it. I think Dr. Davis provides a lot of very good info. about the harmful effects of modern wheat. However, when it comes to America's waistline, I think that's only part... -
ARCHIVED Noodles At The Asian Markets?
ciamarie replied to GlutenFree-MLDub's topic in Gluten-Free Foods, Products, Shopping & Medications
They should have an ingredient label, in english as well as possibly french (along with Thai or Chinese or whatever language). It's funny you mention this, because I was just at a local Asian market I found to get more rice flour and vermicelli (very thin) rice noodles, the dry kind. But last time I was there I picked up some of the fresh rice noodles... -
New season starts tonight! 9pm I'm pretty sure, so if you're on the east coast you're missing it. And yeah, I admit to being addicted to BB, it's one of the few 'reality shows' I can say that about. We'll see how it goes this year, I may be able to miss an episode or 2 and survive. I don't subscribe to the live feed, however...
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ARCHIVED Pancakes Falling Apart
ciamarie replied to Ghosty's topic in Gluten-Free Recipes & Cooking Tips
I haven't tried it with almond flour, but my rice and buckwheat flour pancakes used to fall apart, even though I put a little bit of guar gum in it, I think. What I do now is add some psyllium husk powder, about 1/2 teaspoon per 1 cup of flour. Then I let it all sit about 10 mins or so before I start to make them. I still can't flip them or try to move them... -
ARCHIVED Now What's My Problem?
ciamarie replied to livelifelarge24's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I read a comment on a wheat belly blog post about that topic that has helped me, and that is to eat more foods with soluble fiber, and less foods with insoluble fiber. From memory, soluble fiber foods are beans, peas, psyllium husk (powder), maybe carrots. Foods with insoluble fiber will apparently sometimes block absorbption of nutrients (sound familiar... -
I like kareng's suggestion! But I bought a large bottle of Dawn at Costco, and since it's so concentrated I have a smaller bottle that I refill about 1/3 to 1/2 with Dawn and add lukewarm water and turn the bottle around (upside down) several times until it mixes together. When I'm doing a LOT of dishes, my hands do get dry, so I sometimes use rubber gloves...