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Jnkmnky

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Everything posted by Jnkmnky

  1. Jnkmnky
    Oh... So you need to contact MORE organizations then! I understand that they cannot tell you about the family, but they shut you down too quickly. There has to be some reassurance that your child will be safe and properly fed!! When I signed up to be a host family this summer, I told my facilitator that we were open to kids with special dietary needs...
  2. Jnkmnky
    Well what state will he be in? Can you know that in advance? Once you DO know, get on line and look up the closest Whole Foods, Trader Joe's, Boney's, Wild Oats and Henry's stores. Those are all standard American Health food stores. They usually carry comprehensive lines of gluten free/casein free foods. Your child's host family should be able and willing...
  3. Jnkmnky
    When you slip up, you notice you don't feel well?? So why try and prove it with a test? You don't even want to hear that you have to eat lots of gluten prior to testing...sooooo...... Hey, you can't eat gluten. Now that you've found this site, work on being 100% gluten free and see how that makes you feel!
  4. Jnkmnky
    Who the *&%& said that to you???!!! What an a$$. A sick child ? We're all born "terminal". The prognosis is death the minute we're born. If everyone with celiac disease stops breeding, who will eat all the Quinoa?
  5. Jnkmnky
    The doctor works for you, so he better listen. You don't need a dr to agree with you. You get what you want by telling him what to do. You can keep your child gluten free and hope that in a few years there will be a new test that doesn't require gluten in the diet in order to test. Two of my kids are gluten free and don't have celiac disease. I had...
  6. Jnkmnky
    But here, you're just talking about villi damage, right? I think the damage for those who experience a peptide problem are not being looked into. My son becomes practically catatonic when he is glutened. Drooling, non-verbal... I mean, he'll talk to some degree, but good Lord, you never saw a reaction like that! So, for a kid with that kind of reaction...
  7. Jnkmnky
    I am naturally snarky. There are no "traditionlists" in the Catholic church anymore than there are "really" Catholic people or "Liberal" Catholics... "progressives" and whatever else. We're just Catholics. We were all invited to the supper. What's inappropriate is quibbling over how much gluten a host needs in order for it to turn into God. Seriously...
  8. Jnkmnky
    Open Original Shared Link This site has Gluten-free Casein-free products that are downright tasty. Enjoy!!
  9. Jnkmnky
    An alcoholic cannot receive holy orders because alcoholism is considered a moral problem. A celiac cannot receive holy orders because it causes controversy/scandal. Now.. I don't care either way. Jesus said, "Do this in memory of me." He wasn't refering to a bread recipe he was showing the Apostles how to make. There is no recipe. There's the most likely...
  10. Jnkmnky
    Make sure you check her shampoos, lotions *many contain oats and wheatgerm*... also check her multivitamins and any meds she takes. Dairy is fine if the villi are not completely atrophied. Search this site for meal ideas, foods that work with small kids. Have you found Tinkyada Pastas? They're the best. Here's a link to a very good bread site. Shipping...
  11. Jnkmnky
    I posted about this in another thread. The Catholic church ..."in order to avoid scandal..." says alcoholics and people with Celiac disease cannot be priests. Priests are directed to handle Celiac members of the congregation with quiet acceptance, offering the wine only if the low gluten hosts will not be acceptable to the celiac. Because the "recipe...
  12. Jnkmnky
    Citric acid is fine on a gluten free diet. Are you familiar with the gluten free diet??? If you have any questions, ask them here and I'll look and answer you quickly so you can get some food and start eating again!!
  13. Jnkmnky
    People just do NOT want to know about celiac disease. I've tried to tell some people who are on the verge of having surgery for ulcerative colitis, a parent of a child with autism, a DR!!! with M.S.... All I've done is suggest they look into gluten in their diet as a possible source of inflamation... falls on deaf ears. The minute you suggest "taking...
  14. Jnkmnky
    Why not? Are you just too afraid at this point.
  15. Jnkmnky
    Eggs- deviled, scrambled, hard boiled, etc Corn tortilla wraps Spilt pea soup - bag of peas, chopped onion, chopped ham or bacon. In pot with water. Simmer till peas are broken down. SOOOO easy. Healthy, too! Hardly qualifies as "cooking". Chili- dump ingredients in pot. Don't use meat if it's too difficult to cook up. Lots of beans, though...
  16. Jnkmnky
    Wait. celiac disease and gluten intolerance are the same thing. Right? Also, I'm confused.. did you say you have been tested and were positive for celiac disease? I don't know why they denied the celiac disease test, seems like every time I asked for a test they would deny it only for me to jump doctors till I got it and I was right, They keep telling...
  17. Jnkmnky
    I'm just milking my rice grains and sticking with that.
  18. Jnkmnky
    Which begs the question - do dr(s) want to know the cause or are just the symptoms been addressed? Oh, you are so right.
  19. Jnkmnky
    Are you in the U.S.? How can they deny you a test you request? It doesn't matter, I guess.... Nowadays, the tests are even better and more reliable. Get the blood test now. I recommend Prometheus Labs. They'll send you a kit, you bring it to your dr. Your dr draws blood and sends it off to Prometheus Labs. Your dr actually does very little. Leave...
  20. Jnkmnky
    I've found a wonderful variety of oils- avocado oil *different flavors* and others at my WholeFoods. There are so many. I use the avocado basil in salads, the avocado lemon on chicken, .... I've got a pantry full right now of "exotic to me" oils that I use on different meals. Mashed potatoes are fine with whatever oil floats your boat that evening. Get...
  21. Jnkmnky
    Tinkyada pastas are great.
  22. Jnkmnky
    I know someone with MS and they just don't want to hear this association. Is there a way to discuss issues like this and actually help? I feel bad like I turned the person off completely and all I did was suggest he look into a connection between the two diseases. It's so awful to think bringing it up may have made the person hide from even considering...
  23. Jnkmnky
    Scary.... is "mom" taking anything with Benzodiazapine???? I took xanax for a single panic attack. Took the benzo for 14 days and had excruciating joint pain for 4 months. No rheumatoid factors either. No joint swelling, nothing to indicate RA, but horrifying pain. Long term allergic reaction to the benzo. Not proven, but clearly the culprit...I took...
  24. Jnkmnky
    Open Original Shared Link Open Original Shared Link Kinnikinnick has great products all around. Chebe is great, but shipping sucks. Your mom needs to be tested for celiac disease. She sounds like an immune system disaster. The book Dangerous Grains tells how all of these immune system disorders are apparently related. celiac disease is the ONLY...
  25. Jnkmnky
    There are 200+ symptoms associated with celiac disease. They present in a myriad of ways. You can even appear to "outgrow" celiac disease. Some used to say the disease was outgrown as a child aged. NOT true. Sometimes celiac disease appears to be cured, but the villi damage persists all the while. Reactions change over time or worsen, or remain the...
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