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Ninja

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Everything posted by Ninja

  1. Ninja
    What kind did you buy, if I may ask? The dosage might've been too strong. Did you take them with a meal or alone? So sorry to hear that you're feeling sick.
  2. Ninja
    There is quite a bit of research out there on Celiac's who do not have DQ2 or DQ8, considering the supposed "rarity" of them. Seems to be somewhere between 3-5% of people who ARE celiac and have tested positive blood and biopsy do not have ANY of the associated alleles. I do not have the beta units of DQ2 or DQ8, did not have biopsy (or endoscopy for that...
  3. Ninja
    Make sure you get copies of the biopsy report, too! Sometimes doctors don't consider celiac until the biopsies show severe damage. ...but there are signs earlier than that: increased intraepithelial lymphocytes being one of them!
  4. Ninja
    The cookies have bothered me too - I seem to be ok with one every once in awhile but any more frequently than that and I feel crappy. They are good though, IMO.
  5. Ninja
    The plentils are very very good. I also liked the crunchy cookies, but not the soft ones. I also like their gluten and oat free granola (cinnamon raisin). And the chocolate, of course... Have fun!
  6. Ninja
    Multiple Sclerosis is in my family... but yes, extremely odd. In some ways, I'm glad I had it done...in others, I'm just continuing to realize that we really know very little about this stuff!
  7. Ninja
    Just got my enterolab genetic tests back. I am double HLA-DQB1*0602. Hmm..
  8. Ninja
    Oh, well I'm sure it's possible! Just depends on where the damage is and how your body is affected by it. After all, it seems like anything is possible with celiac. I was slightly iron-deficient, but had a more significant b12 deficiency. Folate was apparently fine. Laura
  9. Ninja
    Have you had your ferritin checked? Ferritin measures iron stores. In the case of iron-deficiency anemia... ferritin is usually the first to start dropping. If your doctor is going solely off of your hemoglobin levels, he/she is being lazy. I'd be hesitant to call anybody with other vitamin deficiencies as not iron deficient without a more thorough workup...
  10. Ninja
    Razzle, Have you had any luck with digestive enzymes? (I really liked Enzymedica Digest Spectrum or Digest Gold.) The reason I ask is because fat malabsorption can be caused by pancreatic insufficiency. You might wanna give them a try if you haven't. Hugs! Laura
  11. Ninja
    Actually, I've read studies wherein they've found up to 6-8% (I think) being negative for both the alpha and beta chains of DQ2 and DQ8 (which includes, by default, DQ7.5), the study had a very large cohort as well. Let me see if I can dig it up... EDIT: Here are a couple I've read a long the way.... still digging for the study that showed only 93% of...
  12. Ninja
    Hi Razzle, Have you looked into/been tested for SIBO? I've heard that many people who continue to develop food intolerances, to the point of losing many whole, good, and nutritious foods, have had SIBO. Abdominal bloating, cramps, pain, "fullness" and weight loss are just some of the symptoms. HUGS, Laura
  13. Ninja
    Thanks for pointing this out, Sora! Whose definition of "disproportionate or maladaptive concern" are we going to be using? Furthermore, what makes "their" (I'm assuming medical personnel) definitions more accurate and applicable to my life than mine? Their schooling does not catapult them into knowing who I am any faster than a person who has not had...
  14. Ninja

    ARCHIVED Iodine And Dh

    Ninja replied to Ninja's topic in Dermatitis Herpetiformis

    No problem. Keep on digging, I will.
  15. Ninja

    ARCHIVED Iodine And Dh

    Ninja posted a topic in Dermatitis Herpetiformis

    Just out of curiosity, does anyone know if DH is the only rash that has been documented to react to iodine consumption?
  16. Ninja
    I think low testosterone can be found in men with hypothyroidism, too... (if you're still having hypo symptoms it could throw off the hormones, regardless of the meds). There is a very strong link between Hashimoto's hypothyroidism and celiac as well. I agree with mushroom: I would encourage your doctor to run the tests now. You have enough symptoms that...
  17. Ninja
    Thank you for posting this! Spurred me to go back and look at my cholesterol results. Mine is lowish as well (140)... or was before gluten-free. Not sure what it is now...
  18. Ninja
    Hi Becca, It looks like your new GP didn't bother with a full celiac panel, which is normal... and frustrating! What is strange is that the GP decided not to run tTG IGA and IGG...that one is usually pretty common and also quite an important piece of the celiac puzzle, IMO. It does look like your celiac tests were all negative, though. The celiac tests...
  19. Ninja
    I really love Tinkyada brand pasta (brown rice). Easy for me to find, tastes great and doesn't get mushy! My favorite bread is Udi's, however I can't remember if they use corn in their bread products or not... Gemini: Thanks for the recommendation! Going to look for it.
  20. Ninja
    islandmomma: You have to be beyond assertive! I honestly don't understand why doctors are so hesitant to call it celiac? Malabsorption can be assessed a multitude of ways so... malabsorption + careful observation of symptoms + careful observation of the resolution of symptoms and other benefits + reemergence of symptoms with the re-introduction of gluten...
  21. Ninja
    I guess I will play the waiting game again with the gene test results from enterolab... Thank you everyone for your ideas and support!
  22. Ninja
    I will not tolerate this steady decline backwards, when we have the technology to make so many positive advances in medical diagnosis and testing.
  23. Ninja
    Yes, you are homozygous for DQ2. To be honest, I don't think many doctors know how to read the results, either. For the ones that do know how, I think it makes them feel good to be able to read the jargon...
  24. Ninja
    Hi lobbyart - Did your parents go through the same doctor/lab for testing that you went through? You seem to have 1 copy (alpha and beta chains) of DQ2.5 and 1 copy (alpha and beta chains) of DQ2.2. Each parent has the capacity to give you 1 copy. Since you have 2 copies, both of your parents have at least 1 copy of DQ2. They cannot skip generations! Somewhere...
  25. Ninja
    Gottaski: I actually went back to look through my blood work from age 10 up. My WBC dropped (relatively slowly) around age 14/15 and stayed low from then on, sed. rate went up, and celiac symptoms started. I went gluten free when I was 17/18. I believe I had active celiac for 2ish years before testing was done. The kicker was that he was ready to diagnose...
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