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Nevadan

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Everything posted by Nevadan

  1. Nevadan

    ARCHIVED Insensitivity

    Nevadan replied to Janie's topic in Coping with Celiac Disease

    It appears that most of the posters on this thread suffer from actual celiac disease. This is just a comment from the non-celiac disease gluten (or at least wheat) sensitive viewpoint regarding the social/emotional ramifications of being gluten-free. Clearly for those with celiac disease there is clear medically accepted evidence that following a strict...
  2. Nevadan
    Carole, A very interesting article. Could you please post it's source? Thanks. George
  3. Nevadan

    ARCHIVED Osteoporosis

    Nevadan replied to Jen H's topic in Related Issues & Disorders

    Jen, I have taken Fosamax for 4 yrs. The only side-effect I ever noticed was a slight quesy stomach for about 3 hrs after taking the once/wk dose; that only occurred during the first few months of taking the med. During the 4 yrs my bone density essentially remained constant; of course I have no idea what it would have done without the Fosamax. I decided...
  4. Nevadan

    ARCHIVED Osteoporosis

    Nevadan replied to Jen H's topic in Related Issues & Disorders

    YES! I was dx'ed with osteoporosis at 55 yrs old after my older brother was dx'ed. It turns out that 20% of the people with osteo are male. I suspect if more males were tested the % might increase. I have taken Fosamax without any apparent side-effects; however, just remember that Fosamax is a relatively new drug, so who knows what will surface. One...
  5. Nevadan
    The American Heart Assoc published a study in their publication "Circulation" which found that eating almonds reduced total cholesterol. I tried it and it worked for me (25 almonds/day, choles decreased from 215 to 167 linearly over two yrs). I recommended it to two friends and their choles went down by over 20% within 6 months (they said they ate more...
  6. Nevadan
    Hi Claire, I remember reading a post a few months ago that claimed that Cigna insurance had covered some Enterolab testing. Enterolab does provide the procedure codes for filing with an insurance; however, as far as I know one usually has to have a dr's "order" before most insurance co's will cover tests. George
  7. Nevadan
    Since this looks like a "Ladies" thread, I thought I would mention that us guys also have a significant risk of osteo - at least 20% of those with osteo are male. A good reference: Open Original Shared Link . It's definitely a silent killer. I watched my father-in-law die of complications of a hip fracture almost certainly due to osteo and it wasn't pretty...
  8. Nevadan
    There is another very good celiac disease article today to be found at Open Original Shared Link Happy reading. George
  9. Nevadan
    Right on!! George
  10. Nevadan
    A new article regarding stool testing for celiac disease can be found at Open Original Shared Link If necessary click "Begin Manual Download". George
  11. Nevadan
    Danijela, The body generates several types of antibodies with differing effects. The creation of these antibodies is a normal reaction of the body to an "intruder", or foreign substance. The main purpose is to lead to the distruction of the intruder; however, often the bodies own cells get attacked as innocent bystanders leading ot many symptoms. I...
  12. Nevadan
    Beginning Jan 1, 2006, the FDA requires all food labeling to contain explicit information regarding certain antigens, wheat being one. The following article explains the new law pretty well: Open Original Shared Link George
  13. Nevadan
    I was dx'ed w/ osteoporosis 5 yrs ago (@55 yrs old, male). At the time I was referred to an Endocrinologist who prescribed Calcitonin plus a 600mg calcium supplement. It improved my density by about 5% in one yr. At the end of the yr he thought perhaps Fosamax would do better, so he changed me to it and I've been taking it ever since along with the calcium...
  14. Nevadan
    Congrats on your persistence to get a dx. Be certain to do the bone density testing - and post your results. My most serious symptoms are osteoporosis and anemia. Osteo is a very silent disease! Get on that gluten-free diet and stay there. George
  15. Nevadan
    The Jackson County, Oregon "Mail Tribune" has good article regarding gluten sensitivity. You can view it at Open Original Shared Link It does have a little mis-information (e.g. suggesting spelt is ok), but in general it is otherwise an excellent article. I emailed the reporter thanking him for the article. We have to keep the awareness momentum...
  16. Nevadan
    I was dx'ed with osteoporosis at 55 (male). My doctor initially prescribed Calcitonin which I took for a year and showed about 5% improvement. Subsequently my doctor switched me to Fosamax looking for a better improvement. For the next three yrs on Fosamax my bone density remained essentially unchanged. You might want to discuss Calcitonin with her doctor...
  17. Nevadan
    If you haven't tried the gluten-free diet yet, that would probably be the most conclusive test - observe how your body responds. After a few days of gluten-free, if your body responds positively and you are still not convinced, you might try gluten again and see if your body responds negatively. I did three gluten-free/nonGF cycles before I became convinced...
  18. Nevadan
    Hello Igleeson, I hear you and apologize for my generalizations; however, it does get pretty frustrating when there seems to be evidence that some, not all I'm sure, suffering from some pretty common maladies such as arthritis, osteoporosis, anemia, reflux(heartburn), etc only get prescribed expensive drugs that usually treat only the symptoms, not the...
  19. Nevadan
    I emailed the 2bars7 ranch and they are sending me a brochure. They also stated they are offering 20% xmas gifts which I interpret to mean if one books now, there is a 20% discount. If I don't get any negative feedback, I'm planning to make some reservations for next summer. It looks like too good a thing to pass up. George
  20. Nevadan
    I assume you may be referring to my previous post. I wasn't knocking your point that other antigens often cause lingering problems. I was just stating my observation about my experience with the York testing not leading to obvious cause/effect relationships which I found very disappointing. My intuitive feeling is that having multiple reactions show up...
  21. Nevadan
    I have had the same experience as Claire. I tested with York Labs IgG ELISA tests. They found reactions to all forms of gluten, wheat, etc and all dairy which is consistent with my dietary experiments; however, they also found several other reactions. I have never eaten some of these and the others I have eliminated and then resumed with no discernable...
  22. Nevadan
    I just ran across an ad in "Living Without" mag advertising vacations at a western ranch in south Wyoming near the border with Colorado. It seems that several of the ranch family members have celiac disease, so they schedule about 3-4 weeks per year with totally gluten-free food, their Celiacs Weeks. It called the 2bars7 ranch ( Open Original Shared Link...
  23. Nevadan
    Suggestion for getting media attention for celiac disease: Keep in mind that one of the media's primary criteria for selecting topics is business based: how many customers would read, listen, view, etc. Last Friday's excellent celiac disease article in the Wall St Journal was not only well written but it also got lots of reader attention. According to...
  24. Nevadan
    Deb, many thanks to your husband for participating in the WSJ celiac story. What a great opportunity to help spread celiac awareness. Speaking of celiac in the media, in attempts to get more celiac coverage in the media to increase awareness keep in mind that one of the media's primary criteria for selecting topics is business based: how many customers...
  25. Nevadan
    For what it's worth, as of 10:00p PST Sunday Dec 11 according to the WSJOnline statistics, this celiac article from Friday is the number 3 "Most emailed" article of all articles within the last week and number 7 for all articles within the last month. The reporter seems to have attracted lots of interest in celiac - hopes it helps raise the awareness. ...
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