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aikiducky

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Everything posted by aikiducky

  1. aikiducky
    Hi Joe, haven't been to this forum for quite a while but today this discussion caught my eye... hope this link works: Open Original Shared Link That's a list of restaurants in the Hague that are familiar with gluten free. You should I think still talk with the manager, preferably call in advance, basically all the precautions you'd take eating...
  2. aikiducky
    Amber, as far as I know the dextrose etc. aren't processed differently in different parts of the world. They are considered safe because indeed the amount of gluten left after processing is very very small. Some people, including me, do react though, which makes shopping a bit of a pain... I don't know the source of the glucose syrup in the free from...
  3. aikiducky
    About chocolate candy and lactose - all milk chocolate will have some lactose simply from the milk that is one ingredient. But lactose is also commonly used as a sweetener in chocolate, so some chocolates will have even more lactose because of that. Pauliina
  4. aikiducky
    My first quick thought is fatty acids, are you supplementing those since our diet is apparently very low fat? Pauliina
  5. aikiducky
    Just a quick note that buckwheat despite it's name has nothing at all to do with actual wheat, so unless you're avoiding buckwheat for some other reason, it shouldn't put you off a product! Pauliina
  6. aikiducky
    It sounds to me like your mother-in-law really doesn't have a problem with accommodating you, so it's really just a problem of your own making so to say. Think about it the other way around: if your mil would have celiac, and you would cook for her for the first time - would you prefer that she gave you very clear instructions how to go about it, or...
  7. aikiducky
    (((((((HUGS)))))))) You're not a hypochondriac, you're really ill. You're doing the right thing putting your health first. You'll get there, with time! Seriously, a couple of years from now it's quite possible that you'll be healthy enough to handle both work and school, and a couple of years after graduation it won't matter one whit...
  8. aikiducky
    One thing you could do is keep a symptom diary. Give how you're feeling a number every day, and over a longer period of time you might start to notice that even if the numbers do go up and down, there is a general tendency to improve (or not, in which case you need to figure out why). Even better, combine it with a food diary, that way you can see if there...
  9. aikiducky
    Mama2two, I see you've been around for a while, is it that you have celiac children but no diagnosis yourself? If you don't, maybe it's time to ask for the blood tests for yourself? Now that I've been gluten free for four years, I notice I don't get as depressed after getting glutened, and it lifts quicker again. A sign of getting healthier I hope. Whenever...
  10. aikiducky
    Imagine if the situation was the other way around... How sick would you get of telling your boyfriend or partner "it's ok, you don't need to feel guilty"? How about feeling appreciative (is that a word, lol) instead, everybody loves being appreciated. Pauliina
  11. aikiducky
    Have they seen him when he's sick afterwards? Or do you always leave before that? My family was even more supportive after they saw how sick I got from accidental gluten exposure a couple times. Telling them about it was not as effective as seeing it with their own eyes. It's not that they didn't want to believe me (in my case at least) they just couldn...
  12. aikiducky
    I think it depends on what you have been eating to replace it. If your diet has been low on fiber, for example, and you suddenly eat a lot of whole wheat in some form, the increase in fiber might be uncomfortable. And any sudden change in eating habits might give you some digestive symptoms, but I'd think that would pass in a couple days if it's just from...
  13. aikiducky
    Not that I know of, especially since they were both positive and the TTg was pretty high. EmA is very specific for celiac. How are you being treated for the B12 deficiency? The symptoms sound like they could come from that. Pauliina
  14. aikiducky
    About the accuracy of the tests - if you want an official diagnosis that a doctor will accept, what you need is a blood test (nowadays usually endomysial antibody (EmA), tissue transglutaminase (TTg) and total IGA) combined with a biopsy of your small intestine (so an endoscopy, NOT a colonoscopy). I think the parent site of this board, celiac.com, has...
  15. aikiducky
    It's past 2 am here so I'm not my most coherent... but wanted to post a quick note of sympathy in any case. Pauliina
  16. aikiducky
    I'm not an expert by any means, but I know there's been a lot of discussion about a gluten and casein free diet helping some (not all) autistic people. As I understand it it's about a leaky gut letting gluten and casein proteins pass into the bloodstream and acting as an opiate of sorts, which obviously would make it even more difficult for a person to connect...
  17. aikiducky

    ARCHIVED I'm Stuck!

    aikiducky replied to shan's topic in Related Issues & Disorders

    My favourite breakfast is gluten-free cornflakes, coconut milk, apple sauce and one banana, all mixed in a bowl except for the cornflakes which go on top. I like to buy a coconut milk without preservatives, the others taste unpleasant I think. Another favourite is leftovers from dinner the night before, especially if I have a long day ahead of me. ...
  18. aikiducky
    One more thought... it's very easy to try and do more to fix things. But it might be that you need to ask more to get more instead of trying to do more yourself. If you see what I mean. Pauliina
  19. aikiducky
    I bet it's because he feels rejected, but that it's not on purpose. Feeling rejected is really painful, it might be easier to avoid you if that is how he feels. Would it be possible to ask? (On a good day!) Does he know how to give you what you want? You might have to really be very direct about it and explain what you need. Otherwise he might think...
  20. aikiducky
    I suppose if you would make more IgA antibodies your Ttg would be even higher. In any case, the positive result is reason enough to investigate celiac further. Do you already have an appointment with a gastro doc? Pauliina
  21. aikiducky
    Maryruth, I'd think of it this way: if it actually turns out that you have celiac disease, then that means there is an autoimmune reaction (meaning your body is attacking itself!) that gets triggered even if you just taste a tiny bit of gluteny food. It doesn't matter that you just take a tiny bite, that tiny bit is like pushing on a button that sets the...
  22. aikiducky
    Ok, fair enough! I'm completely dairy free, I use coconut milk for a lot of things, especially for baking, and for the rest I just cook food that doesn't require dairy. Can't really help with substitutes. Oh, for a creamy salad dressing or taco filling I sometimes do avocados mixed with whatever, variations on guacamole sort of. Pauliina
  23. aikiducky
    If you can handle yoghurt, I don't really understand why you couldn't handle cheese? Is it too fatty or something? If it's a lactose issue, cheese actually has even less lactose than yoghurt generally. If it's a casein issue, you shouldn't have yoghurt either. Pauliina
  24. aikiducky
    Oh yeah. I need to be reminded of that from time to time as well. What works well for us is sometimes I say "I need a verbal hug". Then hubby knows that he needs to make some conversation for a change. Plus that way he gets what it means to me. Pauliina
  25. aikiducky
    Good for you! It doesn't matter what you do, if you're not an outgoing person, try to find other things that you like to have in your life. For me for example it's absolutely vital to have something, anything, to read on a regular basis. One of the first things I looked for when we moved here was a library. I just noticed you've only been gluten...
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