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aikiducky

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Everything posted by aikiducky

  1. aikiducky
    I think it would be a good idea to get tested for deficiencies, especially since you're pregnant. Definitively ask your doctor to test your folic acid (I think it can be tested?). Symptoms and amount of damage don't go hand in hand so it's not really possible to tell that way. Did you have a biopsy? If you did the lab report should say how much damage...
  2. aikiducky
    I was unusually thirsty when I first went gluten free, and also if I accidentally get some gluten I'm thirsty for some days after that. So it could be something to do with that, but what mechanism exactly it would be I don't know. Good idea to check for diabetes though, that's not something to take lightly. Pauliina
  3. aikiducky
    You probably know but just in case.. are you sure the rice milk is gluten free? Some of them are processed with barley. Otherwise it could just be the withdrawal. As to yeast... you'll probably know after you've been everything else free for a while, since it will be easier to notice the symptoms then. Pauliina
  4. aikiducky
    I seem to be ok with some goats cheeses and less fine with others. I read somewhere that different goat populations can have different proteins in their milk so how you tolerate a cheese might depend on where it comes from. I stopped eating goats cheese altogether somewhere last year, I just suddenly didn't like the smell any more. Smells like milk...
  5. aikiducky
    Having symptoms for a few weeks from accidental wheat is not too odd if you indeed have celiac. There are people here on the board who take up to a month to recover from an accident. You can come across barley malt in things like corn flakes, could be that if indeed you are also sensitive to barley, and you haven't been checking for that, that it might...
  6. aikiducky
    I think to be on the safe side go back on gluten for three weeks or so, considering that you haven't been gluten free for very long. But there's really no exact rule to this. After you've had all the testing done, if you decide to try gluten free, don't be surprised if you get ups and downs again. It seems to be very typical in the beginning. One, it...
  7. aikiducky
    It's certainly possible to just be allergic or intolerant to wheat. I'd also be curious to know what happens if you have barley or rye? Pauliina
  8. aikiducky
    I didn't have constipation to quite such an extreme but I did have the same kind of change when I went gluten and dairy free. I think what happened is I used to have loose stools from dairy and gluten, and once I cut those out, my intestines just didn't know how to work without the irritant. See what I mean? I took extra magnesium for a while, that seemed...
  9. aikiducky
    I just wanted to second the suggestion of eliminating casein as well. Sorry. You might find out that it really affects your fatigue and neurological symptoms. At least try dairy free for a while. For the definition... you might be in the early stages of celiac where enough damage hasn't developed yet to get a positive biopsy, or you might have a form...
  10. aikiducky

    ARCHIVED Poll

    aikiducky replied to Lux's topic in Coping with Celiac Disease

    Longest I've taken was I think about three weeks, so one month seems to still be in the ball park... Pauliina
  11. aikiducky
    Biopsies look for damage to villi in the intestine. If they were positive for celiac there must have been some significant damage at the time. A positive biopsy is pretty definitive for celiac, blood work can easily be a false negative. You could ask for the lab report of the biopsies from back then to see exactly what it says. If it says something...
  12. aikiducky
    If your Ttg was given as "over 120" I guess it might mean that they stop counting at 120 and for all you know yours might have been a lot more than that. In which case it has come down quite significantly which is a good sign! How strict are you with cross contamination and such, do you work in an environment for example where it's difficult to stay safe...
  13. aikiducky
    If you have a positive TTg and EmA, you are making antibodies against your own tissue. That to me spells celiac. If you want to know whether or not there is damage to your intestine, you should do the endoscopy. No one can stop you from going gluten free after that whether or not it's positive, but then you'd know. I'm not necessarily saying that everybody...
  14. aikiducky
    Because the blood tests have a lot of false negatives. Pauliina
  15. aikiducky
    I think I may just have had the same virus! I'm just getting over the cough. It's tough if you can't take time off. A friend of mine gave a tip to drink sage tea, that did seem to alleviate my throat a little and not bother my stomach too much. I just made tea with some sage from my spice rack. While I was teaching I sipped little mouthfuls of water...
  16. aikiducky
    The combination of "increased intraepithelial lymphocytes at the villous tip" and a negative blood test makes total sense, you know. The blood tests tend to only turn positive after there's more damage to the intestine. The clinical proof you need is not the blood test, but a trial period on the diet. If you don't want to try the diet without an iron...
  17. aikiducky
    What ever you decide to do, what I would NOT recommend you do is replace a lot of your gluten foods with loads more dairy! Some people make that mistake in the beginning. So if you decide to keep dairy in your diet for now, just stick to moderate amounts. Pauliina
  18. aikiducky
    Yeah it's funny that most "non dairy" creamers actually contain milk. I guess they're ok for someone who is only lactose intolerant. But you eat/drink dairy with no problems, so that wouldn't be it? Pauliina
  19. aikiducky
    A lot of people with celiac have trouble sticking to the diet after a few years. What seems to happen to a lot of people is that their reactions become milder or non-existent, and so they don't have that natural aversion of "that will make me sick" any more. It doesn't mean that they aren't doing damage to themselves. But us humans have an amazing capability...
  20. aikiducky
    You know, I'm coming close to four years gluten free and I'm FINALLY feeling really really healthy. Last year was already good but this year I can clearly notice that I have more energy. Even so, I have a list of foods that I still avoid, and I'm not expecting to introduce any of them any time soon, since I'm feeling so well right now. One and a half...
  21. aikiducky
    Just curious - what are the ingredients of the non-dairy creamer you use? Pauliina
  22. aikiducky
    Two things that could give a recently diagnosed celiac d, without being another intolerance, are too much fiber and too much fat. Simply because your intestine might be too damaged right now to digest them properly. So you could try to cook your veggies to mush for now, and avoid chips and that kind of very fatty stuff. If that doesn't help, then look...
  23. aikiducky
    Open Original Shared Link Instead of writing the same response twice, the above is a link to another thread in another section of the board with pretty much the same question. Hope it helps. Pauliina
  24. aikiducky
    This list could be a start: Open Original Shared Link The easiest way to do it if you want to run a trial of a couple weeks is to concentrate on fresh fruit and veggies, meat, fish, some carb like rice or corn, olive oil, no seasoning mixes but single herbs and spices that you mix yourself. Cook as much from scratch as you can. That way you don't need...
  25. aikiducky
    Memory and concentration problems and difficulty with finding words are in my case symptoms of either a glutening or of getting casein (milk protein). You could try cutting out all traces of dairy for a while to see if it helps. What also has helped me a great deal are a vitamin B complex (not only B12 but all the B's) and a fish oil supplement. ...
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