Jump to content

aikiducky

Advanced Members
 View Profile  See their activity

  • Posts

    1,033

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by aikiducky

  1. aikiducky
    The fact that you were feeling better and then suddenly got D again would sound like a glutening to me. The time it takes for a reaction to start after ingesting gluten can vary from just half an hour or so to three days, so it's not impossible. You might also want to check what else you have been eating, maybe a product you thought was safe isn't after...
  2. aikiducky
    Are you taking any vitamin supplements, have your vitamin levels been tested? I keep recommending two things here, what has helped me a lot with feeling less depressed is taking a vitamin B complex, and fish oil capsules that have omega 3 fatty acids. Especially the omega 3's are important for your brain function. It takes a couple weeks before you...
  3. aikiducky
    I'd suggest, instead of ready made apple sauce: cook an apple in the microwave for a couple minutes. That way you only get apple, you can be 100% sure it's gluten free and doesn't have any extra ingredients, and I also find it tastes better! And don't go overboard with too many apples in a day. Maybe it's an idea to try to keep to very simple ingredient...
  4. aikiducky
    Not meaning to scare you but I think that sounds serious! You should get your vitamins checked because you might be seriously deficient in some. The first ones I also thought of are iron and B12. Pauuliina
  5. aikiducky
    If they retested her blood after five months gluten free, it's SUPPOSED to be negative, that's a sign that she has been following the diet. It's not a sign that she doesn't have celiac any more, her doctors are operating on seriously outdated information. You could maybe try to show her dr. Greens book or something to show that you're not just making...
  6. aikiducky
    One thing to think of: you live the diet every day. Other people don't. Most of us had a period of denial and not quite believing how incredible careful we have to be, but because we live with it every day, that period passes fairly quickly. Other people are going to take much longer because they only get confronted with this issue every once in a while....
  7. aikiducky
    Well it sounds like you're well on your way! I hope you'll be feeling better soon. Pauliina
  8. aikiducky
    I'd limit the amount of gluten free bread I eat in the beginning. You'll get better nutrition from veggies, fruit, meat, fish. One thing I like to do to substitute for bread is pancakes, you can easily replace gluten flour with for example buckwheat and cornstarch/rice flour for pancakes. That way you can keep it to a few simple ingredients. I find taking...
  9. aikiducky
    Enterolab doesn't give a celiac diagnosis. Basically what they claim is that anybody who tests positive for gluten intolerance on their test would feel better cutting out gluten. If you already cut out gluten and feel better, you already know that. Pauliina
  10. aikiducky
    I remember someone on the board here had elevated liver enzymes before going gluten free, and they retuned to normal on gluten free. But you've been gluten free for a while, were they ever tested before that? Pauliina
  11. aikiducky
    I don't usually do this, but on the off chance that it might help: Open Original Shared Link Just to be up front about it - I'm an Alexander technique teacher myself, and though it's not a therapy or treatment, it often helps with movement and musculature related problems. I'm not connected to that website in any way, I'm on the other side of the ocean...
  12. aikiducky
    You might want to check out the "Gluten intolerance and behavior" part of this board. Depression and anxiety get discussed a lot there. Open Original Shared Link Pauliina
  13. aikiducky
    Ursa, it can also vary a little from one European country to another. Here in Holland I mostly see "gluten free" versus "naturally gluten free". "Suitable for coeliacs" seems to be a UK phenomenon. All in all I'm actually quite ok with the European labelling laws. It takes some research in the beginning, but that's the case in other parts of the world...
  14. aikiducky
    A couple simple things that have helped me, on top of all the other good suggestions: taking a vitamin B complex, and eating food rich in good fats. Think sardines, leafy green veg, cold pressed rape seed oil (better ratio of the different fats than olive oil), avocados... a favourite of mine is making a salad with all of the above, so a green salad with...
  15. aikiducky
    The blisters can be biopsied (they need to take a sample of skin next to the blister, not in the centre of the blister) and if it's DH, no need for any other tests. DH means he has celiac and needs to be gluten free. Pauliina
  16. aikiducky
    One thing that struck me was that even though your B12 was normal it wasn't very high. It might help to take a supplement if you aren't already. Many people experience symptoms of low B12 way before their levels drop to what doctors consider too low I've noticed reading the boards. Pauliina
  17. aikiducky
    There is another member on the board with brain lesions. She'll have more to say I'm sure. It's true that being gluten free will effect the test results. It's supposed to. After being gluten free for a while tests should be negative, it's a sign that the diet is working. One thing you could do is have blood drawn ASAP before your husband has been...
  18. aikiducky
    I don't think it's necessarily addicting to everyone. But I think to people who have more of the neurological and mood symptoms, a lot of those people say they were big bread eaters and found it hard to quit. So I think it's quite possible that gluten has a different effect on some people, you shouldn't generalize from just your own experience (although of...
  19. aikiducky
    The suddenness of your reaction, and the feeling of your throat swelling, makes me think it was an allergic reaction to something in the flour mix. Maybe one of the types of bean they use? Do you eat beans otherwise? You could try baking with buckwheat, corn starch and rice flour, those are easy to find (rice flour in Asian markets, corn starch I think...
  20. aikiducky
    Here in Holland they recommend that siblings get tested periodically every few years. The reason is that celiac can get triggered at any age. Even if a child tests negative at one point, it doesn't mean that they will never develop celiac.
  21. aikiducky
    Young children usually heal pretty fast, so I think after six months it would be very unlikely to get a positive biopsy. Pauliina
  22. aikiducky
    One of my most annoying symptoms is fatigue and brain fog. I don't mind the GI symptoms so much. One thing that helps me is taking a vitamin B complex that has all the vit. B's in it, when I get glutenend I take an extra dose. Just check that the ones you get are gluten free! Pauliina
  23. aikiducky
    I don't have an official diagnosis because I went gluten free before testing. I do however react to very small amounts of gluten, so I'm very strict about my diet, actually stricter than some diagnosed celiacs I know. I'm lucky in a way to have such clear symptoms because it keeps me from cheating. Pauliina
  24. aikiducky
    If you want a positive biopsy, which will give you an official diagnosis, you need to keep her on gluten until the biopsy is done. Pauliina
  25. aikiducky
    Kissing is the one thing you have to be careful with. Ask him to at least rinse his mouth before kissing you if he has just eaten something with gluten. And maybe better to brush teeth as well. Pauliina
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.