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aikiducky

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Everything posted by aikiducky

  1. aikiducky
    I know it's hard to keep eating gluten at this point but I'd really encourage you to do it. A clear diagnosis can make life much easier sometimes (I don't have one, btw,). On the positive side waiting for the biopsy gives you time to do research into celiac and gluten free eating so you're all set to go once you've had the biopsy. It's a roller coaster...
  2. aikiducky
    If I accidentally ingest a trace of gluten, irritability is my first symptom, even before the gas and other digestive symptoms start. If I start to yell at my husband out of the blue he nowadays asks "what have you eaten?". It's very unpleasant because I can't really control it, I don't want to be so angry at that moment, I just am. If you have family...
  3. aikiducky
    If you have DH you could also try to have the skin near the rash biopsied, a positive for DH means celiac full stop, no other testing necessary. But the anti-endomysial is very specific for celiac, I really don't know what else it could be. Time to start learning about ingredients I think. Pauliina
  4. aikiducky
    Are you really desperate for work & money? Because I think with your qualifications there should be something better to be found, no? Or is it just that you didn't have the energy to look for something better? I think if you could document any of this it would be grounds for some kind of lawsuit, I really can't believe that kind of work conditions...
  5. aikiducky
    Here in Holland I think at least some doctors recommend that family members be tested every five years or so, unless they have suspicious symptoms and should be tested sooner. Why don't you just request the blood tests now, just in case? Pauliina
  6. aikiducky
    It's funny, I've seen LOTS of people say that they felt better for the first two months and then felt worse again. Seems there's a typical third month dip or something. It's true that your symptoms if you get some gluten in you can get worse when you have been gluten free for a while. That's quite normal. Your body isn't used to dealing with gluten...
  7. aikiducky
    What nonsense. Villi damage doesn't just appear out of nowhere overnight, it develops over a period of time. I've read of quite a few people who were periodically tested over a number of years and eventually developed enough damage to get a diagnosis of celiac. If you want an official diagnosis of celiac you should request another biopsy I think. Otherwise...
  8. aikiducky
    It means that genetically, it's possible for him to develop celiac. Whether or not he does is another question. Pauliina
  9. aikiducky
    It sounds to me like really your best realistic option is to just go strictly gluten free. You already know that it makes you feel better, so why not? Pauliina
  10. aikiducky
    What could be happening is that your body has started to produce even less lactase, if it was still producing a little bit until now. That would mean that you need to take more pills for the same amount of dairy. Pauliina
  11. aikiducky
    You might have just lost some water weight and bloating if you recently started the gluten free diet. That happened to me. I very quickly lost a few pounds when I started the diet. If I accidentally get some gluten I gain a couple pounds over night and then lose them a few days later when the reaction starts to be over. There's a thread about constant...
  12. aikiducky
    If it's the same home test kit I'm thinking about, I believe it's fairly reliable if it's positive, but just like the lab run Ttg tests, it has a pretty bit ratio of false negatives especially if you're in the earlier stages of celiac. So if it's negative I wouldn't take that as a final answer. Pauliina
  13. aikiducky
    Renee, it gets better. It truly does. You're trying to get used to a big life change and that's painful, being angry and sad and in denial are all part of adjusting to that change. I eat gluten, milk, egg, legumes and nightshades - free. What I did at one point was to say, ok let's see what I CAN eat - and then I figured out how to make meals out of...
  14. aikiducky
    Your body is probably trying to make up for what it hasn't been absorbing of vitamins and nutrients, plus now that you're not getting gluten any more, your body can start healing, which takes energy. At least that's my explanation for this phenomenon. You're certainly not the only one, I've seen lots of people mention being hungry all the time when they started...
  15. aikiducky
    What Tarnalberry said - all the genes for celiac aren't well researched yet, the two most common ones don't cover 100% of the celiacs. You probably just have a version of genes that the lab doesn't test for. I wouldn't argue with a positive biopsy and TTG and positive diet response though, you pretty much can't have more positive proof than that. Pauliina
  16. aikiducky
    It's pretty inevitable to sometimes get accidentally glutened, since the whole world isn't gluten free. You don't have to worry that you go right back to square one, but you do need to try to keep the glutenings to a minimum, because if it happens too often you will start to accumulate damage again. The reaction might actually be more dramatic after...
  17. aikiducky
    Withdrawals would be a big clue... Yeah if you have an idea that dairy affects your mood, and especially that you seem to be a bit addicted to it, I think it would be a good idea to cut it out at least for a trial period. Is there a special reason why you're not eating any carbs? I'd think it would be more sensible to eat a small amount of carbs in...
  18. aikiducky

    ARCHIVED Vent

    aikiducky replied to MDRB's topic in Coping with Celiac Disease

    A lot of it will have to do with what your relationship with your mother is in general. Does she play this kind of games with other things as well? If she does, then I guess you need to take some distance and also not expect too much in terms of support for your diet. Or try to work on your relationship in general. If she doesn't and you actually have...
  19. aikiducky
    As hard as it might be to keep eating gluten now, I really would recommend that you do. Thing is, being gluten free for a week and then having some gluten again might be surprisingly hard, some people get a much more intense reaction after being gluten free for a while. The window of opportunity for getting all the tests done is now, before going gluten free...
  20. aikiducky
    I wish I could remember where I read it, but I read somewhere that sometimes antibodies can go up at first before they start to go down. Really it's early days yet on the diet for your daughter, I think you just need to stick with it for longer. Lots of people here have reported ups and downs during the first year or so, and also blood sugars being all...
  21. aikiducky
    When I first went gluten free, for a few months I really had to take care to eat every couple of hours or I would get symptoms of low blood sugar (light-headedness, headache, nausea). Eventually it went away and nowadays (three and a half years gluten-free) I can go for seven-eight hours without food if I need to. Though I like to eat so I seldom do...
  22. aikiducky
    I so completely agree with Ursa I wanted to quote her in full. It would be a good idea to try cutting out lectins and adding a bit of meat back. That way you do get the protein you need but you have a good chance of avoiding the kinds of proteins you seem to react to. Pauliina
  23. aikiducky
    I think it's pretty safe to say that if you don't have digestive troubles, lactose isn't a problem for you. The typical symptoms of lactose intolerance as far as I know are gas, bloating and diarrhoea. It's a pretty straight forward intolerance where some people's intestines don't produce lactase, the enzyme needed to digest lactose, and consequently the...
  24. aikiducky
    It's not that uncommon... you have to remember that you've made a major change to your eating habits, so your stomach and intestines might need some time to get used to the new way of eating. What have you been replacing gluten foods with? Have you been eating a lot more dairy for example? That could give you stomach rumbles if it's just too much dairy...
  25. aikiducky
    I don't know about the specific medicine that you're taking, but as your intestines heal that will certainly affect absorption of everything. I've seen lot's of people here mention that they had to lower their dosage of thyroid meds for example. Pauliina
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