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aikiducky

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Everything posted by aikiducky

  1. aikiducky
    It means you have the genetic disposition to develop celiac, but it doesn't mean that you necessarily will develop it. Some people do, some don't and as far as I know, the reason isn't really known yet. Often people get sick after a major trauma or stress of some sort, like an operation, or having mono, or pregnancy, but what exactly triggers the celiac I...
  2. aikiducky
    I often say "You really don't want me to tell you during dinner" or something like that. :DIf they really do even after that, well they asked for it. I think a lot of it is a personality thing, not everybody likes being the center of attention of course. I don't mind so I also don't mind the questions. Hey, anything to get to talk about me, right? ...
  3. aikiducky
    A negative bloodwork/positive biopsy combination is actually quite common in adults. Your doctor might be willing to diagnose you without a repeat endoscopy? Pauliina
  4. aikiducky
    I think you should ask for a second opinion. I'm no doctor but I've never heard of near total vili flattening from a virus. My understanding is that it's possible to have some vili damage from other causes than celiac but if the damage is that bad it's much more likely to be from celiac. The negative blood work doesn't necessarily mean that much, a lot of...
  5. aikiducky
    My reason would be simply that I'm feeling fine on my restricted diet, and I still have plenty to eat...so I don't really feel the need. Pauliina
  6. aikiducky
    You've only been gluten free for a month? That's too soon to say if gluten free is going to be enough or not. Healing all the damage may take up to two years, so you have hope yet! Constipation is a common symptom of celiac, despite what doctors are taught. From people's stories here it seems to me that it often takes longer to resolve than diarrhoea...
  7. aikiducky
    The only way I know of to get completely off the gluten cravings is to be 100% gluten free. But I think the suggestion to replace with opther starches as much as possble is a good one. Something else that might help with the depression and such is taking extra vitamin B's. I'd take a supplement with all he different ones (B1, B2, B3, B6, B12, folate,...
  8. aikiducky
    You know, if you can hang in there until after the biopsy I would urge you to have it done now. Then go gluten free immediately afterwards whatever the results say. But having a positive biopsy means no doctor will have grounds for doubting your diagnosis in the future, and since we are talking about all of the rest of your life, that might come in handy...
  9. aikiducky
    I for one don't think I react to gluten through my skin. What I don't want, on the other hand, is for instance applying lotion to my face and then wondering about whether or not I remembered to wash my hands before preparing my food. Obviously that is one way I could ingest some gluten. So to me it's more about peace of mind than about thinking that I could...
  10. aikiducky
    I agree that this is probably true of many restaurants, but there are also great chefs out there that really want to make the best possible meal for every customer, and for them it's a question of professional pride to be able to cook a delicious meal even for someone with food restrictions. I know because I've met a few. In my experience the difficulty...
  11. aikiducky
    It's quite common for adults to have negative blood tests and still to have a positive biopsy. At least, that's what I've heard here in Holland. Pauliina
  12. aikiducky
    Do you mean you have been working around wheat stuff the last weeks, more or less the same time frame as this thread here, or did I read that wrong? One thing that maybe is useful for you to know is... if I have been glutened, EVERYTHING will give me bloating and discomfort for a week or two afterwards. At least, it used to. Now, after three years gluten...
  13. aikiducky
    It's quite possible that if you ask beforehand, that a manager isn't allowed to tell you that it's ok to bring your own food, but if you just do it discreetly, they wouldn't mind turning a blind eye. I don't eat out a lot, but the few times I do, I always try to talk to the chef in person if I can. That usually works much better. I never rely on a waiter...
  14. aikiducky
    You know, I've been completely cheese-free for almost a year now - before that I still used to eat goat's cheese every now and then. I bought a little bit of goats cheese two weeks ago just to try it again...and it's still in the fridge. I had two slices and I really didn't like it any more! It tasted like greasy salty spoiled milk. For chocolate...
  15. aikiducky
    Rock on, when I first went gluten free, an accidental glutening could make me feel "down" for a couple weeks. I've been gluten free for over three years now and nowadays I recover in a few days. I know it can be frustrating for my husband as well, so you have my sympathies, but it really isn't something he can snap out of. I wish it was! But at least with...
  16. aikiducky
    I used to have a huge appetite before I went gluten free. It was like nothing could make me feel full. Believe it or not this disappeared on the gluten free diet. You might be just postponing the answer. Have you had testing for celiac yet? Have you seen a doctor about possible thyroid issues? If you want to have a diagnosis from a doctor you shouldn...
  17. aikiducky
    Maybe we could sum up what we have so far: -magnesium -vitamin D, including making sure you get enough sunlight -moderate on meat if you're a meat eater -ditto on cow's milk -weight bearing exercise Did I forget anything? I think if one would take care of the above the chances should be pretty good of keeping bones strong, don't you think? ...
  18. aikiducky
    Some people who had a high ttg at diagnosis still have a higher than normal ttg when they have follow up testing six months or so into the diet, so I guess there's chance that you still could have some positives now. It's impossible to say of course since we don't know what your numbers would have been when you were still on gluten. I'd say in any case if...
  19. aikiducky
    The genetic testing won't tell you all that much... about 30% of the population has celiac genes, but only a fraction of those people actually develop the disease. On top of that, some people have celiac without having the known genes. So a positive for the genes doesn't guarantee that you have it, and a negative doesn't guarantee you can't have it. Pauliina
  20. aikiducky
    I can't handle some wines at all, I start to feel "hungover" while still drinking my first glass. But others are fine. I had three glasses of a very nice Spanish red wine on New years eve and hardly felt it. Another day in the holidays I took a small sip of a Hungarian white wine and started feeling funny in my head immediately, this was from hardly a mouthful...
  21. aikiducky
    My little sister and I made a resolution to eat well, sleep enough and party with moderation. Should be doable. Pauliina
  22. aikiducky
    A quick google found this wikipedia article on fructose malabsorbtion: Open Original Shared Link Somewhere in there there's a mention of the connection between FM and wheat (since you asked!) There's another connection with celiac though since FM can be a consequence of a damaged intestine. I wonder if staying gluten free for a long time people sometimes...
  23. aikiducky
    I think working at a pizza place is a pretty big risk. You probably won't know what's what until you stop working there, until then it could always just be that you are continually glutened. Even if it's just in a small way if it is happening all the time you just won't heal. So personally I would say don't start worrying about things like cutting out dairy...
  24. aikiducky
    I hope you don't need to wait too long! Good luck with the testing. Pauliina
  25. aikiducky
    You could try to get your hands on pure gluten. Bakeries use it as far as I know. But you'll need to keep an interval of at least two weeks, because it would take at least that long for the autoimmune reaction to die down enough for clear results. Otherwise you might be getting the reactions from a previous gluten set during the gluten free set. For example...
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