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aikiducky

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Everything posted by aikiducky

  1. aikiducky
    Since no one mentioned it yet... if you look at the parent site of this board, celiac.com, you should find a safe ingredients list and a not safe ingredients list. You can print them and take with you to the grocery store, and then just read read read labels. It's a lot of work in the beginning but once you get the hang of label reading it really helps with...
  2. aikiducky
    Usually what is called silent celiac disease, as far as I know, is someone who has no symptoms when they eat gluten, but if they are biopsied, their intestine is damaged. So yes, for those people it's important to not eat gluten, since you don't want to go around with a damaged intestine...l the kind of damage celiac does to the intestine can eventually lead...
  3. aikiducky
    I really like your attitude about this! Thank you for posting. Pauliina
  4. aikiducky
    You already know that if you're having a biopsy taken you shouldn't go gluten free before that, right? Just wanted to point that out just in case. That said, you could use this time to already find out about ingredients, and start learning how to read labels, and maybe try some gluten free products to see which ones you like. And eat all your gluten favourites...
  5. aikiducky
    Celiac is really well known in Finland and Sweden, I have more experience with Finland. University cafeterias usually have separate gluten free options on their lunch menus, cafe's usually have at least some gluten free muffins or cookies, most restaurants are aware of it. Even small grocery stores carry some gluten free bread etc. I haven't been...
  6. aikiducky

    ARCHIVED Stupid Doctor

    aikiducky replied to ~alex~'s topic in Doctors

    Considering that about 30% of the population has one or two genes for celiac, I guess he's thinking of tube tying on a truly massive scale... :rolleyes: Pauliina
  7. aikiducky
    Actually that time frame sounds about right. I usually react in about six hours but a bit longer wouldn't surprise me at all. Though it does sound like a very mild reaction. The kind of auto immune reaction a celiac has to gluten is different from an immediate allergy type reaction. First, the gluten needs to get to your small intestine, then, it takes...
  8. aikiducky
    Well, you said you're not gluten free yet. You might find, once you are, that the consequences of one beer won't be worth it. I get sick for three weeks from less gluten that that... Guess if I'm ever tempted? Pauliina
  9. aikiducky
    Have you had an IgE allergy test? The "classical" allergies are IgE types. That might explain why you didn't get a positive for wheat on a IgG test. Pauliina
  10. aikiducky
    To be honest though it sounds more like a wheat allergy to me. The itchiness and the quickness of the reaction sound like allergy symptoms to me. Pauliina
  11. aikiducky
    There is one scientific study that I know of that concluded that gliadin (the part of gluten that is the problem for celiacs) does indeed get into breast milk. You can read the abstract here: Open Original Shared Link Pauliina
  12. aikiducky
    Obviously you need to talk with the people organising the trip if there are times that meals are included and you all eat together. It might be that you need to arrange food for yourself separately some times. That said, London is not a bad place to visit as a celiac. Restaurants are generally fairly well aware of it. Sainsbury's and Tesco carry gluten...
  13. aikiducky
    I don't remember what the actual percentage was but it was around 30% I think, of adults who have negative blood results but turn out to have positive biopsies. So yes, it's possible. Pauliina
  14. aikiducky
    When I first went gluten free a glutening could last up to three weeks! Now, three years later, they usually last a week for me. But it varies from person to person. Pauliina
  15. aikiducky
    Is it possible that there is another food that you can't digest very easily? Dairy is one that many people find will give them trouble. Pauliina
  16. aikiducky
    It might just be because you are getting older. Children's bodies produce lactase, the enzyme needed to digest lactose, but as you grow up, many people stop producing it at all. Some people in dairy consuming countries continue producing the enzyme longer but it can get less as you age. And different people produce different amounts so you have a very personal...
  17. aikiducky
    You're not boring anyone, that's what this board is for! ...I mean I didn't mean this board is for boring people... It's 1.13am here... Glad you're feeling better, and yeah for me it was the same in the beginning, a lot of ups and downs but the ups got slowly longer and more frequent. But it will take some time so keep at it and be patient...
  18. aikiducky
    It's ok to have tea, the only thing you need to check is some herbal teas have barley malt for flavour but that will be listed in the ingredients. Ordinary black tea is safe. Gosh I would feel weird just from going without tea for a week... Pauliina
  19. aikiducky

    ARCHIVED Poll

    aikiducky replied to L.A.'s topic in Coping with Celiac Disease

    I eat out very seldom but mostly I've been fine. I always talk to either a manager or the chef. The only reason I ever do it though is for the company, I like my own cooking much better than most things I've ever had at a restaurant. Pauliina
  20. aikiducky
    I get the rage and depression, too. It's my main reason for being very strict with my diet! Mine isn't quite as bad as the original posters, though. The irrational anger part usually only last for a short while (an evening for example), then I'm depressed for a few days. The longer I'm gluten free the milder this has gotten luckily. What really helps...
  21. aikiducky
    You may very well have had a false negative on the first biopsy. That or there wasn't quite enough damage yet at that time, or the results were interpreted incorrectly. Really there are a lot of possible explanations for the negative test. I do think the symptoms sound like celiac, plus you did have a positive blood test (which one?). Personally I would either...
  22. aikiducky
    An allergy test won't pick up intolerances, only allergies, and it also won't pick up celiac disease. A positive biopsy however is a sure sign that you indeed do have celiac. You can stop doubting that. Things that bloat me that have nothing to do with gluten: legumes (peas, beans, soy), nightshades (potato, peppers, eggplant), eggs, dairy I was still...
  23. aikiducky
    It won't completely destroy the villi in one go... for that you need to keep eating gluten for a while. The villi renew themselves constantly, they only get completely destroyed if the rate of damage is higher than their ability to repair themselves if that makes sense? But if they need to repair themselves more often than they naturally would you also have...
  24. aikiducky
    Two weeks on the diet is no time at all, especially if you have gotten glutened again. Consider that many people will need three weeks to recover from a single glutening, and you are essentially trying to recover from glutening yourself all your life until now. I wouldn't worry just yet, just do your best to really be gluten free. A diet of plain fresh produce...
  25. aikiducky
    Well my first thought is that you have an unusually sensible doctor! Your mom will have to be allowed to go through her own denial....either she'll get used to the idea in time or she won't, you can't really do much about it. It might seem unlikely now but remember that if you're going gluten free for life, that means in ten years you're still going...
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