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aikiducky

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Everything posted by aikiducky

  1. aikiducky
    Yes I think it can be a sign of malabsorption, not digesting your food. The vomit smell is because that is essentially what it is, the food passes undigested or only partially digested from your stomach and through your intestine. I don't remember, are you in the process of testing, waiting for an endoscopy or so? Pauliina
  2. aikiducky
    As far as I know, though, if the villi are nearly gone like the original poster said, it's more likely celiac. The other things I think cause damage but not as thorough damage. To the original poster: one part of the process of learning to deal with a big life change is denial. It's normal to keep hoping that it might be something else, but hopefully...
  3. aikiducky
    I don't understand why your doctor didn't diagnose you with celiac if you have flattened villi? Did he explain why? There is a gradation of damage in celiac (the following is from Wikipedia but it's well researched, you can find articles in gastrointestinal journals and such): "The classic pathology changes of coeliac disease in the small bowel are...
  4. aikiducky
    Potassium lactate doesn't have anything to do with lactose even though the name sounds similar. Pauliina
  5. aikiducky
    As the previous poster said, everybody is different. It takes me about 4-6 hours for the really noticeable symptoms to kick in. Pauliina
  6. aikiducky
    I think it might be time to try something with gluten and see if you react in any way? Pauliina
  7. aikiducky
    When I first went gluten free i had blood sugar problems just like you describe. I couldn't go anywhere without a stash of food because i needed to eat all the time. It took a few months and then it sort of stabilized. Now I'm three years into the diet and i can do three meals a day without problems. Pauliina
  8. aikiducky
    Remember that gluten is a protein. If you leave it out of your diet, you might need to add some other source of protein in order to feel full in the same way. You also might need to learn to recognize other signs of eating enough, because you just might not get the same feeling in your stomach, even though you in fact have eaten enough. For the first...
  9. aikiducky
    As far as I know, it's possible to get email alerts to a thread, isn't it? So if you start a thread with the title you want, everyone who wants can subscribe to email alerts to that particular thread, and it can still be housed inside the chat forum. Just like the OMG thread has gotten a life of its own, kinda. Pauliina
  10. aikiducky
    A low total IgA means that she's not making a lot of IgA antibodies in general. That will mean that apart from the IgG antigliadin test all the other tests are bound to come in lower than they would in a person that does make IgA antibodies. In other words, the other tests aren't reliable in her case as far as I know. Pauliina
  11. aikiducky
    Would it be possible to see doctor in Italy? They are very knowledgeable about celiac there. If you want to go back on gluten free it's actually one of the best countries to eat gluten free as well. You just have to ask. Pauliina
  12. aikiducky
    My husband isn't gluten free either and we haven't got a dishwasher. You can clean stuff just as well by hand. That said. I do have my own skillet because he likes to eat breaded stuff like chicken nuggets and it's just easier this way. And we have separate wooden spoons for the gluten pan and my gluten-free one. Cutlery and plates & cups are easy...
  13. aikiducky
    One quick thing: You need to know that if you ever want to have an official diagnosis of celiac, you shouldn't go gluten free before all the testing is done. Otherwise you start to heal which might make the tests come back a false negative. Pauliina
  14. aikiducky
    I don't think you should try gluten free and losing weight at the same time. It's just too much in one go. If you eat gluten free for one week and don't count the calories that strictly, that shouldn't be the end of the world I would think. Pauliina
  15. aikiducky
    I was like this in the first months after going gluten free as well. It's three years ago so i don't remember exactly how long it took to stabilize, but I think it was longer than a couple of months. Don't try to limit your meals at this point, just try to eat nutritious food when you eat, and not too much low nutrition junk. In the first months I found...
  16. aikiducky
    It just means he has the genes for potentially developing celiac. It doesn't mean he will necessarily ever actually have celiac, just that he has the right genes for it. About 30% (or something close to that number) of the population has these genes, but obviously not all of those people have celiac. Celiac doesn't get inherited in a straightforward way...
  17. aikiducky
    It does sound like you might be (possibly temporarily) lactose intolerant right now. That's not uncommon in recently diagnosed celiacs. There is a lot of lactose in milk and ice cream, but less in for instance yoghurt, and very little in hard cheese. The chips were probably ok because whey is a different component of milk than lactose. You might be...
  18. aikiducky
    Maltitol is a laxative, could it be that you felt the effects of that? Pauliina
  19. aikiducky
    The biopsies are notoriously difficult to interpret. If your doctor or the person looking at them in the lab isn't very experienced with celiac, they might not have seen the damage. The criteria for celiac used to be that your intestine had been damaged so much that the villi are completely gone. Nowadays a lot of people get a biopsy before the disease has...
  20. aikiducky
    The bad news is you can't just pick something that seems safe. You really need to ask about ingredients and the way things are prepared. Otherwise your going to be sick quite often. I usually always carry some food with me. I eat at home, and then when I'm out and about I have some snacks with me. Then when I get home again I eat a more substantial meal...
  21. aikiducky
    Have you tried, very humbly and simply, telling your friend what you wrote above: "All I know is, when I eat at home or at places that *know* how to do gluten-free (such as Bonefish or Disney restaurants), I don't get sick. When I take chances at friends' homes or restaurants that don't understand gluten-free, I often do get sick. It's hard enough trying...
  22. aikiducky
    You having biopsy confirmed celiac mean your intestines were damaged enough to show on the biopsy. It takes energy to heal all that damage, and now that your body finally has a chance to do it it is telling you to get enough rest to have a chance to heal. It's also a good idea to take a vitamin supplement I think. Especially the B vitamins will help with...
  23. aikiducky
    I haven't got any experience with this... a glutening can make me feel cut off from the outside world, but not from myself. Is this how you have been feeling lately? Is there any chance of getting to see someone? It does sound like you might need some outside support, I'm a little bit worried now? Pauliina
  24. aikiducky
    Before worrying about eating out, vacations and such, give yourself time to learn the ins and outs of the diet. That way you'll be much better able to explain to whoever is cooking your food how it needs to be done. You're probably in denial, too. It's a natural part of the process of accepting a major life change. Remember the diet is for the...
  25. aikiducky
    What ravenwoodglass said... except I wouldn't have a repeat endoscopy before at least a year into the diet. Adults can take up to two years to heal on a gluten free diet, so an endo in six months might just depress you. Pauliina
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